Thank you!! I just got your information. My daughter took the three hour glucose test and they did not find anything even though her blood Sugar dropped to 41 during the test. I have to make sure she eats every two hours or her blood Sugar drops low. She has been okay for the past month, but she woke up about four weeks ago and past out. Her blood Sugar was 34. We have been dealing with this for a year and a half and I have read everything and seen several doctors and they can't seem to tell me anything. They don't even know if she has ketonic hypo. they are just assuming that is what she has. Her blood sugar tends to go high for a few days before it goes low. They have tested her for diabetes but she passed those tests! Are you dealing with any of this? Thank you for your help, I have not been able to find anyone dealing with these issues.

I am in agreement with HypoCoach. I have a son that was diagnosed "adrenal hypoglycemic" when he was two days old with a blood Sugar of "0" The doctors brought it back up quickly, which caused seizures, etc. He is almost 8 now and to make a very long story short, have had no severe episodes with him from the time he was 18 months until two weeks ago. When he was first diagnosed when he was born, they put him on cortef, because they said the pituitary wasn't producing a certain hormone. He took that until he was 5. They re-did blood tests last September on his hormone levels and everything was "normal." They said we would never see them again...until two weeks ago. He had fasted for 12 hours or so and blood Sugar went to 35. Took him to E.R. and transferred him to the hospital of his endocrinologist. Now they diagnosed him with "ketonic hypoglemia" which they explained to me that his body doesn't store "energy" like most peoples. He is young with no fat and no muscle for storage. We have a glucagone shot, but they said that wouldn't help either (since they misdiagnosed him from beginning) because the glucagone secretes the insulin from the liver and at the point of low blood sugar, he has no storage in his liver either. We bought him a tube of "glucose gel" which is teh same as a tube of cake frosting and a 3 oz bottle "glucose drink" for when it gets extremely low. It helps instantly. Anyways, the HypoCoach is right about all the sugars. They need protein, protein, protein...a lot of fiber also. Try to avoid processed foods.

Let me share an exerpt from a book I have on "natural health remedies." "There seems to be an epidemic of low blood surgar in America these days because of our poor diets filled with sugar, alcohol, soft drinks, simple carboydrates, caffeine, chocolate, and coffee. Hypoglycemia may take a while to diagnose because the symptoms resemble those of other diseases, such as allergies, chronic fatigue syndorme, asthma, neurological problems, weight problems, thyroid and pituitary disorders, kidney disease and adrenal exhaustion. Often dietary changes alone can resolve this condition. Eat a high-fiber diet, with some form of protein at each meal. Eat beans, brown rice, vegetables, low-fat cottage cheese, tofu, yogurt, nuts, seeds, avacados, almond butter and soy or rice cheese. Avoid sweet fruit juices. Dilute them 50/50 with water. Eliminate sugar, soft drinks, alcohol and refined and processed foods." There are supplements you can take also, just let me know if you need them and I can list them for you.

I know how hard this is as a mother to watch your child go through all of this. I am also praying that this helps for us also. Let me know how your daughter is doing.

I have not checked this forum for awhile so here is the update. They now believe that my daughter has Glycogen Storage Disease Type O. My two year old son started having the same problems and the entire Endo team got together and they now believe that this is what they both have. We are going to test them soon. Good Luck!!