ketonic hypogycemia PLEASE HELP!!!!!!

Is anyone dealing with a child that has ketonic hypogycemia? My daughter is almost four and she has been dealing with this since she was two. We have spent thousands of dollars in test and the doctors do not have any answers for me. I have to test her blood Sugar pretty much daily. When her blood Sugar is low she passes out. We have to get Sugar in her or a glucagon (sp?) shot. Her blood sugar usually goes high for a couple days and then she crashes. When her blood sugar is high she can't seem to control herself and she screams and yells. She has been tested for everything and still no answers. Can anyone please give me some advice on what I am dealing with and what I do now. Thank you!!! Tweet