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Hi all!
I'm thinking that the FSH forum is really more of a blog. I am posting my experiences with trying to find a cure for this insiduous disease with the hope that one, I will find a cure, and two, that other sufferers or researchers could read of my experiences and gain some benefit.
Since no one else on CZ has FSH, and since extremely few people come here who have MD that would even think to look for the "fascioscapularhumeral dystrophy forum," why not make the forum what it really is.
I am no expert when it comes to natural health. I really have no help to offer anyone other than support and encouragement. I can't say, "Hey, here's the cure- do this and all will be well."
If anyone would like to visit my blog and offer a comment, I'd love it.
I have to tell y'all what a blessing you at CZ are to me. It just doesn't get much better than to have knowledgebale friends like Bob, Tyler, Owen, Southernbelle (whose love I feel every day), thebirdlady, and califlady. It's also a tremendous blessing to know people like Eileen45, Ev, and others are praying for me and people I care about on a regular basis. Thank you all so much.
Sending my love to each of you,
-Donna (who is a real person in Central Texas with a really big family and a real relationship with Jesus Christ and is fighting a really serious degenerative disease for which, supposedly, there is no cure)