Hi, I have a friend with neurofibromatosis, so have found out a little about it. The form described by von Recklinghausen is the most common & accounts for around 95% of all cases. This is also known as Nf1. It's equally common in males & females of all racial & ethnic backgrounds. Around 2 million people in the world have it. The other forms of Nf are pretty uncommon. Nf1 is caused by an abnormality in a gene on chromosome 17 & it's a variable disease & no two people are affected in the same way.

The major features are cafe-au-lait spots & dermal neurofibromas also Lisch nodules (small nodules on iris of the eye). People with NF1 may also have another form of skin pigmentation unique to the disease; freckling in unusual places like the armpit, groin or around the base of the neck.

About a third of people with Nf1 develop complications e.g. plexiform neurofibromas. These are usually much larger than the dermal neurofibromas & more difficult to remove. Some people also have learning difficulties, there can also be orthopedic problems.
Hope this is of some use to you.

Dear Friend,

The best place to learn all about diseases is the Merck Manual.
If you want to learn about health I suggest my book "Common Sense Health and Healing" which you can find on Amazon.com or call my company, Natural Healing Publications at 1-877-TEACH-ME
Get Well,
Dr. Richard Schulze

Hello My name Is Rachel, I am 23 years old and I have NF 1 I was born with it, I have headaches from the disease and loss of hearing and a tumor on my spine. I started getting more tumo rs on my body when I became pregnate with my first child I have 5 children of my own and 1 step child. 2 of my kids so far dont have it or any signs of the disease. There is a 50 percent chance that if you have a child that the child would have it. I started getting muscle spasums in my right side of the body, loss of balance. The tumor on my spine is very painful and only perscribed pain meds help. The way I get rid of my tumors on the skin is with the neurologist and they perform surgery. if there is any thing that might help the tumors disapear without surgery please let me know thank you.