(Reposted and slightly edited from a reply I wrote to someone on this forum saying theirs had fallen out:)


Hey,

The same thing happened to me. I didn't even know it had happened and I've had this one in for what would have been 3 years in February, and it's my second one. The other night my boyfriend and I had sex and afterwards I had a really bad pain like a period cramp. That was for hours but I didn't notice anything in the bed.

Then we were hanging out the other day and he said he found something in the bed. We weren't at home so he couldn't show me, but he said it was shaped like a T and made of plastic. He thought maybe it was part of my sewing machine. I didn't put two and two together however.

..Until tonight, when I saw it on our dresser thirty minutes ago! I woke up and walked to get water and came back and there it was! I picked it up as soon as I saw it and was in disbelief, but sure enough it was my Mirena. Now I think that's why I hurt so bad after sex the other night.


Now that I've read some stuff about it though, that other women have had MS-like symptoms and weight gain while on it, and after that pain the other night (during which I scheduled an appointment to have it out on the 30th), it's kind of a relief that it fell out. It's scary feeling like you're coming down with a neural disease or digestive disorder of some sort, or both. Or to feel like you hit your head one too many times and will be permanently brain damaged and "foggy". I don't know if these symptoms are from the Mirena but after doing some research and hearing other women's stories with the EXACT SAME SYMPTOMS I definitely think it is.

Here is what happened to me...

I don't know yet if it's related, but in the beginning of September 2013 and right after Burning Man, I got this weird rash-less itch that slowly spread from my scalp to my whole body. Some hair fell out on the side of my head and it was red and flaky and looked like sunburn and itched like CRAZY! I thought it may be the alkaline environment on the Playa but I tried apple cider vinegar and Epsom Salt baths, anti fungal and antibacterial creams and lotions, oatmeal baths, you name it. I would shower 3x a day to try and make it go away but nothing helped. It was so embarrassing and frustrating, and a lot of my friends thought I had scabies but I knew it wasn't bugs because there were no bites, tunneling or rashes. It got so bad that I would scratch my breasts and back until they bled on accident :( I would cry about it. It was miserable. I related it to Chinese water torture because it didn't hurt per se but it definitely F***S with you to the point of frustration. Think poison oak all over, all the time. It minimized in Spring 2014 but it's made a mild comeback in the past couple months.

I've also had this crazy brain fog I can't shake that started in the past couple months. I feel stupid, literally, like I'm concussed or something. I can't access my entire vocabulary all the time, I walk into rooms then forget what I came in for, I stare into space. Sometimes I get dizzy, get blurry eyesight and faint. I've had crazy joint pain in my left hip and wrist that I've been afraid it was Rheumatoid Arthritis or carpal tunnel. I've also felt fatigued and gained about 30 lb in the past 3 years since I've had this particular Mirena. That is to say that I am pretty active and into yoga, eat really healthy and drink lots of water, and try to lose weight constantly. Weight was never an issue for me before my 2nd Mirena, always being around 120 lb at 5'2". Now I'm almost 150 lb and it's really frustrating and has affected my self-esteem. I used to model and I'm a fashion designer so it's affected me a lot and I've felt there's nothing I can do.

My sex drive is sh** too which is crazy because usually I have a really high sex drive. I never want to have sex with my man who gets sad about it, which makes me sad. I've tried telling him that I don't know what's happened to me, and I'm sorry and I wish I didn't feel this way and I don't think he really believes me. It's quite depressing.

Speaking of depressing, I have felt INSANELY bipolar/on edge ever since this Mirena, too. Usually I'm super chill and never get mad, but I've felt MEAN. And I hate it. I want to be nice but I just feel like an antisocial bitch all the time.

I've developed extremely painful cysts on my ovaries a few months ago too. I asked them if the pain could come from the Mirena dislodging or coming out of place and the doc said no, which now I kinda feel is BS because mine fell out, even after they did a pelvic exam on me in the hospital..

I have had IBS symptoms back in April-September of last year. Every time I had to make a BM it was extremely sudden, urgent, and painful and I had to go RIGHT THEN. Solid food would pass in my stool like kale and carrots. Ew. And it would never be solid.

I have developed heart palpitations in the past few weeks. I have had "fluttering" of the heart which feels really weird. My heart rate will sometimes increase while I'm chillin which is really noticeable because my resting heart rate is around 44 bpm (IDK why it's that low, I said I was pretty active not an athlete..). Twice this year I have thought I was having a heart attack: once in March, and I was back east at my mom's who is an EPNP. She calmed me down and told me I'd just been partying too much, which I took as true. Then a few weeks ago I was feeling particularly brain-fogged, itchy, sore, I was lying down on the couch at home and my chest just like gripped super tough and my back clenched and I thought I was having a heart attack for real. I sat up and waited and it went away after like 10 minutes, maybe less.

In the past week I've developed a weird brownish discoloration on my face that looks like a bruise, as well as some weird dry red bumps on my face that's pretty unsightly :\ as well as the itch coming back, but the rash doesn't itch itself. This is the first time I've ever had a rash on my face.

I've been having hip pain as previously stated, but last night my boyfriend was giving me a back rub and when he got to my hip bone right above my butt he was like "WTF is that?!" It's this big kinda hard lump under my skin... Idk if it's inflammation or what... but I think that has to do with the hip pain.. it's definitely not normal.

OH and after Burning Man this past year (2014), I was wearing this really awesome pair of dark purple shorts from designer Kayo Anime Clothing (check it out!). I didn't wear underwear (it's Burning Man..) and wore them pretty much every day. By the end of the week there was a BLEACHED spot where my vagina was. BLEACHED. Orange. That has happened to my black underwear too in the past few years. I thought it was BV but it happened even after they gave me the Antibiotics for it. After the burn was the craziest though.

So:
1. Neurological symptoms
2. Hair loss
3. Rashless itch
4. Weight gain
5. Fatigue
6. Emotional issues (depression, anxiety, moodiness)
7. No libido
8. Joint pain
9. Headaches
10. Heart palpitations
11. Fainting
12. Vaginal discharge that bleaches clothing
13. Pain after intercourse
14. Ovarian cysts

And so much more. If only I could think of it all, at once and write it here. I've had to keep going back and editing to include this, and it's been quite the journey, thinking it's neurological, digestive, allergies, candida, and coming up with no answers..

IDK if my symptoms will improve because it's only been a few days but you can imagine with all those symptoms piling up how nervous I've been about coming down with MS or something like that. I'm hoping it's been the Mirena and I can reclaim my life now. I found a naturopathic OB/GYN (I am all about natural medicine) a couple hours from me I want to go see to get the truth about this. I used to swear by Mirena but I will NEVER recommend it again!

-Danielle

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Has anyone else had a similar experience? As I said I made an appt to have it out on the 30th anyways... but should I still go just as a kind of follow up?

HAS ANYONE HAD THE ITCHY SKIN PROBLEM?!

That drove me INSANE and I'm hoping it'll go away now.