How many of you have been tested for... 
alesiom11
11 y
2,249
The salivary gland biopsy seems to prove that I suffer from this immune condition.
But the blood tests were fine.
- Re: How many of you have been tested... longterm
11 y
2,030
This is a reply to # 2,109,819Your blood test for Sjogren was negative, but your biopsy was positive? I had a negative blood test, but I think my problem is related to celiac disease with yeast infection from it.
- Re: How many of you have been tested... alesiom11
11 y
2,104
This is a reply to # 2,109,942Yes. It was 5 years ago, so don't remember exactly.
I've tried the gluten free diet for a few weeks but finally give up as there was no progress in regards to e.c. evolution
- Re: How many of you have been tested... longterm
11 y
1,933
MoreThis is a reply to # 2,110,005I do not think the gluten-free diet will work unless one has celiac disease or possibly high sensitivity to gluten. I think the yeast overgrowth also needed to be addressed, though.
I bet there are others who might have Sjogren, then.- Re: How many of you have been tested... grayson
11 y
2,069
MoreThis is a reply to # 2,110,033Saw this post on sjogren website.
"Leah, I had something similar happen in high school. I now think it was related to Sjogren's, but at the time I didn't know anything about that. My doctor gave me some anti-viral pills, thinking it might be an out-of-control cold sore, and that made a HUGE difference. Any chance you might be experiencing something like that? The bumps you're seeing, the yellowish/clear crust, and the extensive dryness on your lips that won't go away all sound like what happened to me."
http://sjogrensworld.org/forums/index.php?PHPSESSID=b33f1bcd3fdfd99df953b0b67...
- Re: How many of you have been tested... lipshitz
11 y
2,417
This is a reply to # 2,110,037http://www.sjogrens.org/home/about-sjogrens-syndrome/diagnosis
I had an anti-nuclear antibodies test done (ANA) and it was negative. 70% of Sjogren's syndrome patients are positive, so I have that much confidence I don't have it. I will get more tests after my antibacterial treatment is completed, perhaps including the biopsy.
Peace,
C.S. - Re: How many of you have been tested... longterm
11 y
2,017
This is a reply to # 2,110,037Alesiom,
Do you think the Acne medication could have dried out your saliva glands or that is why the biopsy was positive? I do not know if dry saliva glands is what diagnoses this condition.- Re: How many of you have been tested... alesiom11
11 y
2,154
This is a reply to # 2,110,094Hi,
Sorry, I don't know about your 1st question.
About the minor salivary gland biopsy as a diagnostic tool for Sjogren syndrome,
http://www.ncbi.nlm.nih.gov/pubmed/19650134
http://scielo.isciii.es/scielo.php?pid=S1698-69462007000800005&script=sci_art...
Grade 4 in my case (see Picture Gallery )
More
- Re: How many of you have been tested... longterm
11 y
2,083
This is a reply to # 2,110,118Interesting...In some cases, there is a link between Sjorgen's Syndrome and Gluten Sensitivity. I just read in this article that Sjorgen's Syndrome can be reversed by a gluten-free diet...if gluten is causing it. But, the gluten-free diet needs to be started early on. Advanced cases cannot be reversed with a gluten-free diet. It does not state why.
http://www.glutenfreeremedies.com/wordpress/wp-content/uploads/2011/11/Journa...
This article also states that an ultrasound can be done of the salivary glands for diagnosis.
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- Re: How many of you have been tested... longterm
11 y
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- Re: How many of you have been tested... alesiom11
11 y
2,154
- Re: How many of you have been tested... lipshitz
11 y
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- Re: How many of you have been tested... grayson
11 y
2,069
- Re: How many of you have been tested... longterm
11 y
1,933
- Re: How many of you have been tested... alesiom11
11 y
2,104
- Re: How many of you have been tested... alesiom11
11 y
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- Re: How many of you have been tested... longterm
11 y
2,030
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