Stopping Protopic 
Healing2021
11 y
2,287
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Ive decided to stop Protopic. I kept trying to tell myself to give it some more time but it is clearly just making my inflammation worse.
If I just wasnt seeing results then I would continue with it, but it just makes my lips look and feel so much worse. The burning is still there and my affected area is extremely red. And although the burning is common at first, I think its only for the first few applications, and making the condition worse is not normal.
So I guess I am just going to continue using Biafine and Vaseline and hope for the best. This is what seems to have shown the most progress in the past anyways.
Im also going on vacation in a week and Im really banking on the constant sunlight helping me. It REALLY helped last summer, even when I had those huge crusts on my lips, so Im hoping it will help.
Anyways Ill probably take awhile away from here since Im kind of just playing the waiting game. Good luck to all.
- Re: Stopping Protopic traumatizedlips
11 y
2,253
MoreThis is a reply to # 2,090,029I found this on a website for you, I really think its better to stop using it :)
SIDE EFFECTS: The most common side effects of tacrolimus ointment are skin reactions at the site of use, including redness, burning, and itching. Flu-like symptoms, allergic reactions, and headache also have been reported. Continuous long-term use of tacrolimus should be avoided because rare cases of skin cancer and lymphoma have occurred during tacrolimus treatment.
Good luck Healing ! I hope you enjoy your time and forget this damn EC :D , have fun ^^
- Re: Stopping Protopic #174340
11 y
2,108
MoreThis is a reply to # 2,090,044Are these the side effects of all immuno-depressants or just tacro. products...
Also to, Traumatizedlips, has your doctor ever asked when sick if you are allergic to penicillin? What answer do you give?- Re: Stopping Protopic traumatizedlips
11 y
2,234
This is a reply to # 2,090,056No I am not allergic to penicillin, different bodies react to products differently, I think that it all has to do with the immune system , sometimes the immune system considers the drug as a pathogen thus forms an allergic response to it
- Re: Stopping Protopic #174340
11 y
2,187
This is a reply to # 2,090,103Yip, traumatiizedlips TL, I was told I was not allergic to it either. I think it is safe to say it was not that.
Excuse me bringing up topics already discussed here though, I know after an Rx of AB with penicillin, my brother got eczema, I reckon he was lucky it resolved itself.
I still have hope that the problem is localised in the lips. All we will need then is a simple .script.: "Take this twice a day, two hours before a meal, for two weeks?" I bet it is that easy - just a dream though.
Good luck with reading recomm. msgs, and all the others advice. I am beginning to get a headache just proof reading my own lazy typing...........
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- Re: Stopping Protopic traumatizedlips
11 y
2,140
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This is a reply to # 2,090,114Hhaahhaha me too , lets just hope for the best coz only time would tell what's next :) , I am certain we will be cured one day
- Re: Stopping Protopic traumatizedlips
11 y
2,140
- Re: Stopping Protopic #174340
11 y
2,187
- Re: Stopping Protopic traumatizedlips
11 y
2,234
- Re: Stopping Protopic #174340
11 y
2,108
- Re: Stopping Protopic #153025
11 y
2,217
This is a reply to # 2,090,029I too felt that protopic kind of increased the thickness of peeling skin. But I didn't wanted to discourage you from trying. One thing is for sure, "one thing doesn't cure all", if one cure theory cured all then it wouldn't be called exfoliative cheilitis.
Keep trying until success... keep goin..all our hopes ..- Re: Stopping Protopic ECnewbee
11 y
2,166
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This is a reply to # 2,090,055I'm into my 8th week of protopic now. I wanted to quit after the second week because of the burning feel, but my doctor encouraged me to continue with it for a little longer. I'm going to see him in a week and will probably stop using it then, or at least reduce it gradually since I don't see any improvements. I've also tried Elidel before and I quite after a week since the burn is even more unbearable than Protopic.
- Re: Stopping Protopic Healing2021
11 y
2,187
Lugol’s Iodine Free S&H
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This is a reply to # 2,090,083ECNewbee,
Did the burning ever stop for you? And did the Protopic make your skin redder? I am still juggling whether to stop using it or not, I hate to stop so soon.- Re: Stopping Protopic ECnewbee
11 y
2,133
This is a reply to # 2,090,116There is still a little burning, but not as bad now compared with the first month. I remember the burning started almost immediately after putting it on initially, not sure if that's the case for you. It doesn't seem like its making my skin redder either, but I do get that tingling feeling on the lips like you mentioned before.
- Re: Stopping Protopic ECnewbee
11 y
2,133
- Re: Stopping Protopic Healing2021
11 y
2,187
- Re: Stopping Protopic #174340
11 y
2,115
This is a reply to # 2,090,055Protopic is safe to use on the lips? However you look at it the ointment has its limits and is probably best suited to being a first step. When or if the lips improve after using it, this will be a good thing especially in people who seem to have large areas of the lips affected.
- Re: Stopping Protopic anushkabeira
11 y
2,291
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Protozoa, Amoeba, Pin Worms?
Hulda Clark Cleanses
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 2,090,121In theory protopic is perfect for this, but it looks like there is a simple explanation for why it won't work for the lips.
I think there is 'hormone-like agents' produced in the affected cells that form the 'bad tissue' to reoccur in the same pattern. But when you use a suppressant to stop these "agents" from being produced, you also stop the 'helpful agents' to repair potential good skin underneath the thick build-up.
- Re: Stopping Protopic anushkabeira
11 y
2,291
- Re: Stopping Protopic ECnewbee
11 y
2,166
- Re: Stopping Protopic traumatizedlips
11 y
2,253
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