Wow. I've struggled with #1-9 at various times over the last year since I've had the Mirena removed. I started having problems after it had been in for 1 1/2 years. I had it placed when my baby was 10 months old, however, so a little later than you. I had a brain and optic nerve MRI. Both normal. I feel better after a year since having it out, but still struggling mostly with tremors, weakness in my arms and legs (worse on the rt. side), heavy legs, vision distortio, slight dizziness (it was vertigo at first so this much better and doesn't bother me too much), occasional twitching (most recently my eye lid twitching horribly for a month. Now it has stopped.

Get the IUD out and start recovering! Glad you've joined us!

:)

Keep posting,
Diana

Hello Ashymae and welcome,

I hope you are doing ok and have continued to feel better. Thank you for sharing you symptoms.

I had mine in for 4 years

year 1

Night sweats
leg pain
hip pain
Distended stomach

Year 2

only leg pain
some sweating
distended stomach

Yeas 3

Arrived at complete loss of posture
Began to have sudden weakness

Year 4

heavy legs
stiff body
extreme weakness
upper back pain
anxiety
tearfulness
Diorhea
Emotionally like I was pregnant
Lack of coordination of legs and hips

Post Mirena
Body Crash
Flu like symptoms
Loss of appetite
extreme pain in various places
Numbness in half of face and slight damage to vision on that side
pain in knees
unbearable weakness
loss of walking
feeling like nothing is supporting my insides
See sick felling
breathing problems
insides spasming
vibration inside
exhausten all the way through
heart palputations
chest pains
obbsessive thoughts about suicide


7 weeks post
Have regained walking
Weakness has improved
No more anxiety
Explosive anger
Feel that my body tissues are damaged but don't know what to do about it.
Still some pain
horrible feelings in body
dry mouth
extreme body odour


My mri
lupus tests
Auto immune tests
have all come back clear, but I know something is still wrong.
Having nerve and muscle tests on the 15th

Thats my Mirena story told a concisely as I can and i have probably missed some symptoms. This site is amazing and you will find it an absolute godsend through your recovery. Take it easy on yourself. This can be a slow process, so give yourself time.

love Clare x

Sounds very similar to mine. Here is my story.

November 2009 -son is born
January 2010- IUD inserted
end of OCt. 2010 when I started weaning my son I noticed a numb spot would come off and on in the middle of my back, like someone had applied icy hot. I also had a day of vertigo.

since then, I have experienced the following:
1. facial numbness and tingling, more on the right side around the ear, but also other parts of my face and lip.
2. legs numb and tingly especially calves. More on the right side also.
3. restless leg feeling, especially at night. My leg feels tight and like it wants to twitch, but it doesn't
4. My body kind of jerks as I am falling asleep, like I am scaring awake.
5. stiffness in knees, particularly when I take a bath.
6. Numbness and tingling in arms and hands
7. dizziness and nausea -I feel like when I am pregnant or motion sick.(I am NOT pregnant)
8. throbbing/aching in legs, more in right leg
9. anxiety -probably due to the fear of having MS

I have had an MRI- it showed tiny spots, but the neurologist wasn't sure if they were normal for my brain or due to something else. The report said not diagnostic of MS, but early ms could not be excluded completely.
Blood work was all normal. I had a spinal tap, but the results will not be back until later this week. I am praying it is all normal and I do not have to head over to the MS forum. I have not had my Mirena out yet, but if this test is normal, I will.
Hope this helps you!
Trisha

The side effects that everyone is experiencing, that they think is or is like MS, is not MS it is a bad side effect of levonorgestrel, a harmon that they use in your IUD/Mirena. If you are having these side effects, you should have it removed as soon as possible by a ob/gyn, not yourself, and do not let anyone talk you out of doing it, unless you want to have worst problems. You can look at the list of side effects caused by levonorgestrel on, http://www.drugs.com,
and put levonorgestrel in the search engine.

hello,
I am from Poland, and- any way, first sorry for all my mistakes and missunderstundies ;)- but I'm reading this forum and I start to scare! I have Mirena since 3 months and I feel worse and worse :( I saw many doctors- and nobody see anything bad, but I feel sick! Do you really think that there is a problem with MIrena?
In Poland all of doctors whom I know (gin) say that it is the best way and the most saftly from the other??
I will be really very happy when you will answer me!

best regards,

tina

I'm reading these posts and literally feeling like there might be hope in the future for me. I am having my Mirena out next Friday. My doctor says "It's been lost in your vagaina". Great.

I had my IUD put in in 2009 with very little side effects. I was thrilled that my periods were so light. I bragged about how great it was.

This summer has been living hell. I woke in the middle of the night to painless muscle twitching in my legs. Annoying, but I didn't think much of it. Now, in October, I have muscle twitching over my entire body, my leg and arm muscles are so weak I can barely walk or hold my hairdryer. I have had MRI's, xrays, bloodwork enough to fill the blood bank, Lyme disease testing, nerve testing, and seen 5 different doctors. I cry ALL the time. A mother of 2 (3 if you count my husband) I don't want to slow down, and this has literally immobilized me. At one point I thought I was having a seizure because the "buzzing" wouldn't stop. My joints are inflammed, and I hurt everywhere. I sleep, but wake up as if I haven't slept in days.

My doctor's response "You must have a virus". Thank you all for posting and making me feel as though there is hope on the way. I will keep you posted on my status after they rip this thing out of me!