For me...
dizziness (much of the time - had some issues premirena too)

twitching all over my body (has gotten MUCH better, but I do still notice it at times)

acid reflux (funny had never connected this to mirena, but I do have it if I eat certain foods, not sure if its related or not. Tums are my best friend.)

left side feels awkward (my left side still feels different, like my nerves are more sensitive to heat/cold, etc.)

wake up at night with arms and hand's falling asleep, (THIS IS A HUGE ONE FOR ME. I dont know what it is and I dont see it mentioned here often. I KNOW THIS IS FROM MIRENA. This is my most specific complaint, it began happenin within two weeks of me getting mirena, and it hasnt stopped, even with it out since Feb 2009)

feeling of not getting enough air,(I have had some issues wtih this in the past, but figured out it seems to be bothered by my allergies, if i take claritin or other antihistamine regularly i am fine).

feeling like if my head was too heavy for my neck,I'm constantly holding my head with my hand under my chin, (totally been there. truthfully I had this feeling mildly before mirena but it got SO MUCH WORSE after, it has to do with the dizziness I know but I dont know how. They have put me on various meds for migraines and each one has taken this feeling away almost completely, but other side affects from the migraine meds always make me go off the migraine meds.)

I hope it helps to feel you are not alone. I wish I had answers for you.

SOmeone awhile back posted about this condition getting diagnosed post mirena, I find it interesting that it talks about limbs sleeping at night.

If you want to talk more feel free to send me an email here.. it sounds like we have a lot in common.

Best of luck.

Staci

WOW!! It is like I wrote what you said. Word for Word I feel the SAME way! All of your symptoms and every feeling you have is exactly how I feel. You are NOT alone! I know for a fact that me and "cardiactech" know how you feel! We WILL get through this together. Jesus is Lord and we are never alone!

Oh my gosh!! Thank you so much for posting your story. I am going through the same thing. I am 2 and a half years post-removal of the Mirena.. I have been suffering ever since. I went to a homeopathic doctor, she told me that I have a hormone imbalance.. Estrogen dominant!! I changed my life.. I became a vegetarian, take a multi-vitamin, progesterone cream,and B-Vitamins to help. I was feeling great, for awhile... I am back in the hormone mess again! I feel great during my period, then after the 5th day.. I feel dizzy, my eye sight is weird.. Almost an out of body experience in my head. I get super tired for no reason, depressed, angry, and weak.. Sometimes it gets so bad that I feel like dying..

I hope that you feel better and find out what is going on! Please keep posting on your progress! Thanks again for posting!! :)