Please be advised that the following article does not only pertain to the United Kingdom. These very same measures are being implemented in hospices and assisted living facilities throughout the United States. I personally witnessed one such conversation between one patient's daughter and her doctor while I was in a hospital in California and a similar experience was relayed to me with regard to a hospice in Texas. I believe this is most serious and something that needs to be addressed. Be forewarned before you consider placing a loved one in hospice or an assisted living facility. Love and compassion may be masked by sinister activities behind your back.
At around 4am on Monday, a friend of mine was woken by a call from the private care home in south-west London where her 98-year-old grandmother is resident.
"Mrs ------- has breathing difficulties," the night manager told her. "She needs oxygen. Shall we call an ambulance?"
"What do you mean?" my friend responded. "What's the matter with her?"
"She needs to go to hospital. Do you want that? Or would you prefer that we make her comfortable?"
Befuddled by sleep, she didn't immediately grasp what was being asked of her. Her grandmother is immobilised by a calcified knee joint, which is why she is in the home. She's a little deaf and frail, but otherwise perky. She reads a newspaper every day (without glasses), and is a fan of the darling of daytime television, David Dickinson. Why wouldn't she get medical treatment if she needed it?
Then, the chilling implication of the phone call filtered through – she was being asked whether her grandmother should be allowed to die.
"Call an ambulance now," my friend demanded.
The person at the other end persisted. "Are you sure that's what you want? For her to go to hospital."
"Yes, absolutely. Get her to hospital."
Three hours later, her grandmother was sitting up in A&E, smiling. She had a mild chest infection, was extremely dehydrated, but was responding to oxygen treatment.
It was a happy ending – of sorts. My friend is reeling from the care home manager's questioning. Had she really been asked to pronounce a possible death sentence on her grandmother, a woman with no underlying ailment other than old age? The issue of a "Do Not Resuscitate" order had never been raised with the family – if it had been, they would have dismissed the idea. And why was her grandmother found to be so dehydrated on her arrival at hospital that she remains on a drip: is this down to negligence, or something more sinister?
Withdrawal of fluids (and drugs) is one of the steps on the controversial palliative care programme known as the Liverpool Care Pathway, which has been adopted by 900 hospitals, hospices and care homes in England. The intention is admirable: to prevent unnecessary invasive treatment and help cancer patients to die comfortably.
But there is growing evidence that patients who don't fit the criteria are being railroaded on to the Pathway, and into premature death.
The Daily Telegraph reported two cases this week. Hazel Fenton, an 80-year-old from Sussex, was admitted to hospital in January with pneumonia and put on the Pathway regimen. Her daughter, Christine Ball, fought to stop her mother from being left to "starve and dehydrate to death". Nine months on, Hazel is doing well and is "happy", Christine says. Jack Jones, a cancer patient from Merseyside, wasn't so lucky. Doctors did not treat the 76-year-old's pneumonia because they claimed his cancer was spreading aggressively. A post-mortem examination found otherwise. His wife has never managed to confirm that Jack was on the Pathway, but she has no doubt he was denied precious time with his family. Readers, I am sure, will have their own, similar experiences. I'd like to hear them.
We've long accepted the practice of easing terminally ill patients towards death, by upping the dose of morphine so that pain and consciousness are blunted until respiration is suppressed completely. Sensible people view it as the most compassionate of acts. But being "made comfortable" is no longer the reassuring euphemism it once was. While we've been preoccupied with the moral pluses and minuses of living wills, assisted suicide and euthanasia, legalised execution of some of society's most vulnerable has become available, most probably at a hospital near you. How did we let this happen?
http://www.telegraph.co.uk/comment/columnists/lizhunt/6322738/Pathway-for-the...
I'm sorry FromOz, I cannot agree that withdrawing fluids from any patient, even hospice patients is admirable. From the people that I have spoken to, this does nothing but prematurely facilitate death. When a person nears death, it is they who lose the desire to eat and drink. The body starts shutting down so to speak. This is an entirely different story, and the normal process. Artificial intervention by outsiders deciding when fluids should be removed is an intrusion on one's own process of dying. As birth, death is a normal process of life, and it should be left that way, it should be respected.
My Best,
Luella
Ummmm......... Maybe not anymore. Things have changed. Luckily, when my mom was in hospice at home back in 2005 this was not the case. At least I don't think so. If anybody gave me instructions as to how to withdraw fluids, I conveniently blocked it out.
Having a loved one under hospice care at home at least gives you some control. However, when instructions are given as to their care, the unsuspecting person is apt to follow them. Case in point: My roommate at the hospital. She was placed in hospice at home. Her daughter was given instructions on how to withdraw fluids, and I guess not knowing better, she followed them. A few days went by and she noticed her mother's skin color changing. She was turning gray. Her mother was dying. She knew something was not quite right with this scenario. She immediately called an ambulance and informed hospice that her mother would no longer be under their care.
At the hospital, I witnessed a conversation between the daughter and her mother's doctor. She recounted this story and the doctor's very words were.......... "Yes, hospice facilitates death. Your mother still has life in her." I sat up on my bed behind the curtain horrified.
Since then I have heard of a similar experience in Texas. The person was in a hospice facility and after I told my story, the daughter suddenly realized.......... "That's what they did to my dad. They starved him to death."
This is serious folks.
And you know........ The hardest thing I ever had to do was honor the DNR request made by my very own mother. I held her in my arms as she crossed over to her new life.
Luella
People indeed have rights. Unfortunately, the not so healthy are becoming indispensable. One day this may very well be you and me.
Hugs,
Luella