thanks so much for responding, bugsymalone. that makes me feel better, though I'm really concerned that you still have problems even a few months after it was removed. I talked to the nurse at my dr's office who never heard of my pains being associated with mirena (of course), but I have an appt to have it removed next week. I cannot believe you have clicking in your hip - I have been trying to figure out how I got it, it is the strangest thing - everyone thinks I'm crazy. Thanks again.

Back/chest pain was one of my first symptoms, within 3 weeks of insertion. I am still dealing with it today, 6 months post removal. Some days its there, some days not. I also have the jaw thing as well - feels like my face is stiff, like my jaw doesnt want to move right... its a weird sensation and I am painfully aware of it when I talk to people. It also comes and goes.

I would remove it asap. The recovery is long, but leaving it in has got to be worse.

Jane, I too have looked into that alot and I do believe that your hypothesis is what makes sense to me - autoimmune reaction brought on by the silicone.

I do hope it burns out. One day at a time...

I think it is very possible that the Mirena is causing the joint clicking and muscle spasm as well as weight gain, acne, mood swings and migraines. I thought my fibromyalgia had been improving before I had this inserted but as I read more and more on this site I am doubting that. I want to have it removed but I don't even want to go back to my same gun who would have put this into me in the first place. Can a different Dr take it out than put it in?

Hi - thank goodness I found this site, I thought I was going crazy. My face constantly hurts, I catch myself clenching for no reason during the day. I assumed I was grinding and wear my mouthguard when i remember to.

I wanted to check in and see if after removal, have your symptoms improved- jaw pain, still facial muscles??

Hopeful,
Allie

So glad I found this form I couldn't figure out 2yrs ago why I had been suffering with the shoulder neck back pains as well as shooting pains down my left arm muscle spasms even tingle fingers. The left side of my body actually went numb and they had to get me to the hospital because they thought I was having a stroke it ended up that I was not having a stroke thank goodness. Then this past December 13th I was diagnosed with Breast Cancer it is non-invasive which I'm thanking God about but the surgeon that's doing the lumpectomy told me that I need to get the Mirena removed immediately because she sure that is a Cause. It did not occur to me that all of this was behind the Mirena until then

I've had a horrible year in 2017 ever since having the Mirena IUD placed in 2016. In 2016 I was already experiencing headaches and I thought it may have been sinuses, I even had an MRI done on my brain requested by my neurologist. After having the test done I was told by my neurologist to go to the emergency room because they had a lesion on the right side of my brain. Well, that was no surprise to me because I knew something was wrong with me, it wasn't my sinuses. The neurosurgeon that was asked to the hospital that I was being kept at to give his expertise on what he thought the lesion was, no one knew what it was but they speculated that it might be a bacterial infection it was too small to be a tumor according to the neurosurgeon. They ordered a spinal tap to be done so that they could get the answer from the fluid in my spine, fast-forward to the spinal tap, it was the first time I had ever gone through that procedure, it was the most unpleasant thing I've ever experienced. They attempted to get the needle thru my bone several times at least 4 never succeeding to get the needle thru the actual spine. The procedure was a complete waste of time and pain. In August 2016 I had the impression that I had a bacterial disease or a life-threatening tumor, the neurosurgeon I was seeing waited half the year to get another MRI and when he finally did order one I had it done and all of sudden the lesion is gone but my symptoms are still here. Skip to my visit to my GYN because I was still having heavy painful and long periods, it was a doctor filling in for my doctor because she was out of town after being convinced that the Mirena IUD was my last resort after being on other birth control to regulate my pain I give in and get the IUD placed in, skip to 2017 I'm feeling a tightness in my head that will not go away, pains in my muscles including my jaw, neck, shoulders, and back. I tell doctors about this and they tell me it's a migraine and I associate the pain with the IUD it took some time to realize this but I put the pieces together and I know it's the IUD no questions about. I started seeing another neurologist and I ask her for a spinal tap something I would never want to get again but if it will tell some things about my body and give me the answers I've been looking for since August of 2016. It's 2018 and I'm miserable and depressed because I know my ailments are keeping me from living my life I want to work without pain and I don't want to suffer like this anymore. I pray there's a doctor that will start taking me seriously and exam me well enough so that I will get well. I didn't feel my best in 2016 but the way that I felt then is nowhere as bad as I feel now because of this device, I'm going to stop listening to doctors and go with my own instincts something kept me from this device before and I should have stuck to my guns and never got it in the first place, and I'm sorry I did get it.