A recent health crisis got me thinking. Now, in my mid-50s, I wonder how does one get doctors to really listen and help you? Let me explain...
When I was in my late teens, I started having bad menstrual cramps. At first, it was once in a while and some aspirin or tylenol, a hot water bottle and lying down with my feet propped up help alleviate it. However, gradually things got worse. Aspirin and hot water bottles did no good neither did a prescription for Darvon. Eventually, things got so bad that one day a month I was incapacitated. The cramps on those days were excruciating. I couldn't even keep water down, I was constantly throwing up. Anyone who saw me on those days could tell that I was really sick. When I was out of college and working, I had to miss a whole day or half a day of work each month. I went to doctor after doctor with no results. Some would listen sympathetically, examine me and tell me nothing was wrong. Others would ignore me when I tried to explain. The worst one was an arrogant woman who wrinkled her nose and looked down at me and told me that she took Tylenol for her cramps. Finally, she gave me a prescription for a narcotic painkiller, all the while making me feel like I was a drug addict for asking for help. The painkiller made me feel out of it but I still had cramps.
Finally, after telling women I knew about my problem, my aunt wrote me a letter and told me that my cousin got a prescription for Motrin and it made a difference. A relative who was a pharmacist gave me a sample. Wow! What a difference! I got my life back! Yet, I was left wondering---why oh why didn't any doctor make the connection and prescribe it for me? Back then, you needed a prescription for it.
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Once the cramps were taken care of, I developed IBS-D. At first it wasn't so bad as to prevent me from going out. The first occurence was when we moved to a new place. One thing I loved to do before the IBS showed up was to take walks during my lunch break. I would eat some lunch and walk until it was time to go back for work. Soon I noticed that everytime I did that, the diarrhea came. Things only worsened when I had my gallbladder removed. My life really became restricted as did my diet as so many things triggered diarrhea. Well...poor diet by necessity and no exercise for fear of diarrhea---the weight gain came. Again---telling doctors and nurse practitioners got me nowhere. Just useless advice like "don't get stressed and eat lots of fiber". Telling them, that doesn't work didn't help. Other times, I was just ignored. Finally, last year, my doctor really listened and prescribed Cholestyramine---and relief! I got my life back! My only guess as to why she listened---she was out for a year due to health problems (I suspect she had cancer) and I know when doctors become ill, it makes them more compassionate towards their patients.
Meanwhile, I thought that no one prescribed Cholestyramine before because it was new. Wrong! It had been around for a while. Again, why didn't anyone listen? I even went into details describing what I experienced.
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Yet, another example. After my daughter was born, my periods became heavy. Again, I told the GYN and the nurse practitioners, even once asking if I could get tested to see if I had a hormonal imbalance. Not necessary, said the nurse practitioner, after all, don't we all get heavy periods? Besides, tests for hormonal imbalances are painful. Really?, I wondered---I just thought all it took was a blood test. Well, one day I had the worst period ever when it came to bleeding and then 2 weeks later, yet another horrible period. By now, we had internet service so I began to wonder---could it be fibroids? So...I began researching. Well...the symptoms matched up to what happened to me.
So...back to the GYN. This time I said "I think I have fibroids" and explained why. The answer...oh, let's send you for a pelvic ultrasound! And sure enough, I was right! Again, why didn't anyone suggest the ultrasound before?
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Now, I'm no hypochondriac. I don't go to the doctor for every ache and pain. Nor do I go for every sore throat or runny nose. I try to treat these things at home and will only go to the doctor if, after a reasonable amount of time, I'm not better. I do this because I know that if doctors label you as a hypochondriac, they tend to be dismissive of any problems you have. I once saw a news report where doctors admitted that if they didn't like a patient, they were more likely to not listen to them and do all they can to push him/her out of their office. One doctor even said he had a woman for a patient who had a whiny, grating voice. She came in with a problem and he was dismissive. He just wanted her out of his office. She ended up dying because he did this!
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So, what is the answer? Just how does one get a doctor to listen? That's where I'm now stuck. If I get poor service at a store or restaurant, I speak up and talk to the manager. However, I think that with doctors if one comes across as loud, obnoxious or pushy, the doctors tune out. However, I'm tired of doctors who don't listen. Also, it scares me, too. What if the problem is very serious and the doctor is dismissive? We belong to an HMO so going outside the system means paying out of pocket---which is not cheap. As a patient, I should be able to describe my symptoms to a doctor and have him/her either 1) tell me what is going on or 2) send me for tests to find out what is wrong.
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I know this is long but I needed to get this off my chest. Yesterday I was thinking about how much I've lost due to doctors not listening. Something could have been done about the cramps, the IBS-D, and the fibroids a lot sooner. Due to, in large part I believe, the IBS-D not being taken care of earlier, I now am told I have type II diabetes. All those years of not being able to excercise and eating a poor diet took their toll. I'm not on diabetes meds---yet. However, I've decided that I'm going to tell the doctor I don't want to go on them. I'll explain why---all about the lost years and how now I'm working hard to make up for lost time.
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Any thoughts and advice are truly appreciated. Thank you!