I am new here :-) I am a 28 yo stay at home mom two two preschool age children and live in the United States.
I had a mirena inserted first week of November 2008. Absolutely no problems with insertion.
Week before Thanksgiving, I awoke to a numb/tingling left foot.. its like I could feel it but the sensations were off?
The whole next week I felt awful, aches, pains, my back hurt, I cant even remember everything, but just generally awful (like the flu). Then, my left hand started doing the tingling, then my right hand... to the point where I couldnt go to sleep becuase the sensations in my limbs were so crazy.
I was exhausted. My muscles started to ache... Mid December my legs became so weak that I stopped even attempting to go anywhere, I felt like I would collapse. My arms would feel like just to hold them up was too much effort. I had sharp pains in my legs, my fingers were so tired. My brain felt tired. I stopped driving, I felt like I couldnt even grip the wheel because the muscle fatigue in my arms was so bad.
My GP (who is very supportive) has run so much bloodwork and had no idea... then sent me for an MRI and to speak with two separate neurologists because she was fearing MS. But both neurologists feel that is not it. The last neuro did talk to me about migraines (which I have had for a long time) and asked about birth control.. When I told him I was on Mirena, he said that should be fine, but when I said that it was just since right before all this got worse, he told me to pull it out. So I made an appt with my GP last Thursday and had it removed.
And then, Saturday night, I found you people. And boy did that shock me! I thought I was pulling out the Mirena for the migraines, but now I am totally wondering about it causing all this other stuff.
So, does this sound like it 'fits'? And what next? I did talk to my GP today, and she was very interested in what I had read here, but had never heard of anything like this before... She said she would do some looking, but she didnt know what to tell me as far as what next.
I have thought I was crazy now for months... I spent Christmas holidays an emotional trainwreck, thinking I was dealing with MS and so worried about the future for my kids. I am feeling so very tired from all of this and I am just so glad to have found you all. How many people are here?