Hello Everyone:
Someone sent me this via email that was sent out by the Morgellons' Foundation. Please follow the links and view the report. I think it will be of interests to all who is concerned about Morgellons. (I'd appreciate it if whoever monitors the forum on appropriateness to not erase this message -- this is a PUBLIC letter that went out to millions and not a private matter. Thank you.) The PHASE ONE REPORT in this notice is rather significant.
MRF
Morgellons Research Foundation
PO Box 357
Guilderland, NY 12084-0357
August 2008 Newsletter
Topics:
1. Microbiologist's report
2. NIH Undiagnosed Diseases Program update
3. The Doctors show
To MRF Registrants:
Microbiologist's Report:
A microbiologist whose work was funded through a grant from the Morgellons Research Foundation (MRF) has issued a phase one report. The microbiologist was clear that the information provided to the MRF in this report was absolutely preliminary and not conclusive in any way. The microbiologist has submitted a request to the MRF for an additional two phases of this study which we hope to be able to fund in the future. The microbiologist's name has been omitted at their request since they do not wish to be contacted by patients and the media and wish only to do their work.
You can read this phase one report here:
Phase One Report
NIH Undiagnosed Diseases Program:
Unfortunately, according to an official at the NIH Undiagnosed Diseases Program, a decision has been made at the NIH that patients with Morgellons disease will not be accepted into this program. We sincerely apologize for this situation, especially for those of you whose physicians already submitted your information to this program. The CDC is continuing to investigate Morgellons disease and will release their findings when they are ready.
The Doctors:
We would like to thank a patient with Morgellons disease for her participation in a segment of THE DOCTORS, a new, one-hour syndicated daytime talk show which will premiere in September on CBS. . We will give you additional information about the date this segment will air when the information becomes available to us.
As always, we will update you as quickly as possible when any new information becomes available to us.
Best wishes,
William T. Harvey, M.D., M.P.H., M.S., Chairman
Mary M. Leitao, Executive Director
Douglas Buckner, Ph.D., Associate Director
Janelle Fossen, Secretary
Dale Cowher, CPA, Treasurer
Roy Houchins
Board of Directors
Morgellons Research Foundation
The Morgellons Research Foundation is a 501(c)3 non-profit organization