Timeleft, hang in there! 
mpdela
16 y
2,028
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Hi timeleft,
See your inbox for a few messages I've sent you.
I'm sorry you're having a difficult time lately. I read your posts, and I see that you have been trying many things, from going to your doctors and dentist to trying the different remedies and diets. If your doctors tell you that you don’t have infections, but rather inflammation, then you might want to try a low choline diet and TMAU remedies (that are not expensive at all), for approximately a month, to see if you respond favorably to that. I know that you want to rule out the possibility of having TMAU, but I suggest you firt try the cleansing, short-term and long-term (only if the short-term works) treatment that I sent to your inbox, and then if it doesn't work at all, you can probably be more confident that you really don't have TMAU. But if it does work for you, then you should definitely be tested for it.
Sometimes these efforts don't always work for you the same way it does for other people because either these treatments address a problem you don't have, or because you first need to do a simple intestinal cleansing prior to starting the supplements and diets, and maybe what causes your BO is a combination of factors (sinusitis, digestive, hormonal) and treating them all simultaneously would help you best.
I always recommend that you start with one treatment at a time, introducing remedies and foods of one type of treatment at a time, only so that if it doesn’t work, you can determine what condition you should rule out. Ideally, you should be tested for a number of ailments, however, if you live in the U.S., that can be prohibitively expensive. So, what my son did is to try the TMAU diet and remedy, and now that we know it’s working very well for him, so he is planning to go through with his testing which will cost him over $300 as soon as he gets the money. I think that you need to give yourself at least 2 to 3 weeks of sticking to a treatment plan before you determine that it is or is not working for you.
Remember that what works for one person may be detrimental for another. For example, urine therapy is an old Indian ayurvedic tradition that has survived the test of time for the reason that it has worked for many people. Modern medicine claims that the main constituents of urine are water and urea, and it also contains small quantities of many hormones, metabolites, including corticosteroids, and antigens that could support the lymphatic system to produce antibodies against abnormal cells. Urea has been claimed by some to have an anti-cancer effect; however, these claims have not been supported by intensive scientific testing yet.
Even so, urine therapy it is not recommended for people who are taking chemotherapy, as this might alter the acceptable dose of the chemo in their bodies when re-introducing the chemicals in the urine back into the body by drinking their own urine. In the case of TMAU, which is diagnosed with the undigested TMA (the chemical that produces the odor) found in the urine, then retaking TMA into the body is adding more odor back into it.
In other words, what may work very well for some, may be detrimental to others, depending on the fundamental cause of the odor. You can't go wrong with any cleansing regimen, especially before beginning any new treatment.
Remember to stick to one treatment at a time.
Sorry I missed you when you logged on. Hope this posting and my emails help you. DON’T GIVE UP, we’re here to help you.
mpdela
- Re: Timeleft, hang in there! timeleft
16 y
1,777
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This is a reply to # 1,130,171First of all, I want to thank you so much for replying, your PMs are blocked so I decided to reply here. For the supplements, do you recommend any brand? I searched them and there were a lot of brands for the same product. I also can't find cooper chlorophyllin but I could find activated charcoal and vitamin b12. I also didn't see a gastroenterologist because my parents don't even believe me that I have this illness, they think it's a joke. I was also eating spinach this whole time and didn't know it had a high choline count. I'll try the long term treatment as soon as I gain enough money to buy the supplements. Thank you for all your help again, I really appreciate it.- Re: Timeleft, hang in there! mpdela
16 y
1,830
This is a reply to # 1,131,468Hi timeleft,
I don’t really know why my PMs are blocked, I’ll try to look into that. You can reply to me in whichever way is comfortable for you.
Please see the posting I just made to jennyc for more info on TMAU.
About your parents, sometimes parents of many people in this forum who were diagnosed with TMAU don’t seem to detect the odor that perhaps perfect strangers do in a social setting. This does torment the person with the odor because it only confuses him/her. Other time, like in my husband’s and my case, we detected it on my son before he himself did. My son’s odor was so extremely intense, that everyone around him noticed. However, somehow my parents, who are his grandparents, never did notice in these past 8 years. They had entered into his room many times, and still didn’t notice it, and we could never figure out how that could be possible. I guess some people just don’t have a keen sense of smell.
About a brand, I don’t really know which would be better; I just shop primarily based on the price of the product. I found the activated charcoal at just about every pharmacy in the digestive aide section, and the Vitamin B2 (riboflavin) only in some pharmacies, not all. However, the Copper Chlorophyllin was nowhere to be found, so I looked it up online. I did some price shopping, and found that the chlorophyllin ranged from $24.00/U.S. (way too expensive for me) to
$16.49 (chlorophyllin with zinc)
http://www.betterlife.com/prod_home_page.asp?prod_id=28213
to $6.48 (chlorophyllin with alfalfa powder).
http://store.thecatalog.com/2645.html
My son originally started with the one with the alfalfa powder, and it worked well for him, and it was good on a short-term basis. However, people have been telling me that chlorophyllin contains copper and copper accumulation is not good for your body, so you need zinc to neutralize the copper for the long-run. I just ordered the chlorophyllin with zinc for him today, and it’ll take about a week to get here. Meanwhile, he’s taking the one with alfalfa powder.
http://www.betterlife.com
also sells the activated charcoal for $5.95 on up based on the brand name, and vitamin B2 from $4.49, and castor oil for $1.92. My son used the castor oil to RUB ON HIS LOWER ABDOMEN (not to drink it) to clean out his intestines. You should only do this one time, and then be ready for possible uncontrollable diarrhea the following morning. But right afterwards, be ready to restore your intestines with any of the high-fiber foods listed on the low-choline list.
http://store.thecatalog.com/2645.html
doesn’t carry activated charcoal, sells the Vitamin B2 for $4.12, and castor oil for $4.71.
You might want to compare the total prices of each including shipping cost because I think it’ll come out cheaper to get them all in one place in order to not have to pay shipping costs twice.
The acidophilus needed to restore the “friendly bacteria” in your gut after the cleansing is probably going to be a little more expensive since you should purchase it in person directly at a health food store because you need to be certain that it has been refrigerated at all times or the bacteria dies at room temperature. If you will have difficulty affording this item, then you can also get a smaller dose of this acidophilus in yogurts. Make sure you restore your intestines with any of the high fiber foods listed on the low-choline diet, especially if you can't get the acidophilus.
If after your odor goes away with this treatment, you can slowly try foods that have a higher choline content just to see if the odor comes back. If it does, the supplements will take care of it, and you’ll need to return to your low-choline diet right away. Then, to see if you have TMAU, you’ll need to be tested, but your parents would have to approve and arrange for you to have it. Meanwhile, the diet and supplements can hold you off odor-free, and you will feel much better in social settings.
Although the short-term treatment recommended by the U.S. National Institute of Health, should not harm you, you should tell your parents that you are planning on doing this just to see if the odor goes away. PLEASE REMEMBER THAT the Institute of Medicine, National Academy of Sciences states that the adequate daily intake of choline for male adults is 550mg and for female adults is 425mg. Explain to them that some people may not notice your odor, but other people react very strongly to it. In case you can’t smell it yourself, all you need to do is to lick the palm of your hand and smell the saliva. You may be able to smell it then. Also, keep in mind that just because you have Body Odor does not mean that you have TMAU. There are many other causes of BO and this forum is full of suggestions. I am just mostly informed on the TMAU treatment.
Let me or anyone else in this forum know if you have any questions or concerns that you would like us to answer for you.
Best of luck,
mpdela
- Re: Timeleft, hang in there! mpdela
16 y
1,830
- Re: Timeleft, hang in there! timeleft
16 y
1,777
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