Hi,
I was looking for your story but wasn't able to get past the diagnosis part. My husband was diagnosed 1 1/2 years ago. We have detoxed and changed diet. His epiglotis is compromised so he can't really eat so we have a peg tube for feeding. I try to juice as much as I can for him but need to get calories in him because he's about 130 lbs and he's 5'11.
I'm always interested in any findings you might have. I was just at an ALS symposium and found out that spiralinga isn't really good for ALS patients. I don't have real conclusive evidence but I feel I'd rather be safe. My husband has lost upper body (shoulder, part of neck and uppper arms) but he's still walking and has full use of his fingers.
I'd love to stay in touch with someone that's on the same page as I am.
So please email if you can.
Thanks