I’m experiencing technical issues posting on this site right now so I’m unable to create a new post. I would like to backtrack on prior posts. I just had my whole genome analyzed unlike 1% genome data analyzed from ancestry DNA websites. With only 1% genome data, it’s harder to accurately predict the percentage risk you have for a medical condition if it only analyzes a few of the genetic variants or not all of them. My results showed the highest risk for Sjogren’s Syndrome at 97%. I have been diagnosed with other medical conditions at a 96% percentage risk or lower. My blood antibody test ...
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My DNA shows that I’m prone to progesterone deficiency. I don’t know know if EC may be a combination of several deficiencies. Men with low progesterone will also have low testosterone.   [End]
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In the past I wrote about a vitamin A absorption issue I found after I took a specialty vitamin absorption blood test. blood test. The only vitamin I wasn’t absorbing at all was vitamin A. I had no explanation why, but I figured it was related to celiac disease. New DNA results for vitamin A absorption shows that I have a gene mutation affecting my body’s ability to absorb vitamin A from food. This is something in addition to my vitamin B12 issue. I can’t explain why the blood test didn’t show an absorption issue with vitamin B12, but the test measured it in blood cells or not absorption i ...
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It’s challenging to find a soothing lip product so what works for others is appreciated.   [End]
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Was the Sjogrens Antibody blood test positive (if you took that test)? The test was always negative for me. It sucks if you have this condition.   [End]
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Another Update: While the Methylcobalamin increases my heart rate too much (it might just be due to Niacin in the B Complex), the Hydroxocobalamin/Adenosylcobalamin increases my blood pressure too much (the dosage was much hugher at 2000 mcg istead of 500 mcg in the Methylcobalamin. The side effects of Hydroxocobalamin/Adenosylcobalamin can either be high or low blood pressure. It might be due to either my MTHFR or COMT gene mutations, too. I might try a Methylcobalamin B12 cream on my lips instead of taking the supplements. I’m not quite sure how to deal with this peculiar issue. http ...
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MAJOR CORRECTION! I should delete this whole thread and rewrite it into one post because I kept adding information as I found it. The site I used to find my MTHFR and COMT gene mutations doesn’t break down the information like it used to. From memory, I remembered MTHFR and COMT mutations showing up. However, I have the COMT double allele mutations while a relative has the MTHFR double allele mutations. I only have one allele mutation instead of double allele mutations for the MTHFR mutation. If you have the MTHR double allele mutations, the Methylcobalamin I’ve been taking is recommended ...
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The original DNA defect I found was with Tcn1 gene, which binds with femtomolar affinity and protects it from the acidic environment of the stomach. This is a strong red flag in my DNA with a rare frequency rate of 0%. Hence, there’s likely an issue with B12 not surviving the acidity of my stomach. Maybe B12 shots would help with this issue. However, B12 shots might not work for the other MTHFR/COMT gene defect because my body has trouble converting regular B12 or absorbing it. That’s where the coenzyme B Complex supplements come in handy. It’s puzzling how these supplements get absorbed i ...
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No, I’m not taking the Innate brand. IT NEEDS TO BE THE METHYLATED FORM. It’s between Emerald Coenzymated B-Healthy or Igennus Super B Complex. I’m trying to figure out which one works best...perhaps Igennus Super B Complex due to less Niacin and less ingredients. Keep in mind that while you have a deficiency you need to rely on the B vitamin on a daily basis until your level is normal. However, my level will likley never be normal without the help of B vitamin due to my vitamin B absorption problems. What I’m saying is I notice my lips losing it again if I don’t take the B vitamin eve ...
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I guess my body got used to the Niacin since my heart isn’t racing as much, but I’d prefer no Niacin in the B complex. Even if it’s contradictory that I can’t take the same supplement with MTHFR and COMT genetic defects, it’s working for me anyway. In the beginning, I bought several bottles of coenzyme B complex brands to see which one worked best. Each brand is formulated a little different. I’ve been sticking with one that has at least 500 mcg of B12 since that’s what worked from the start. I also need B6 (and possibly riboflavin B2). I discovered the B vitamin absorption problem was the ...
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Read this article. I have both the MTHFR and COMT genetic defects which might be related to my B12 absorption genetic defect. It’s contradictory how you’re not supposed to take a particular vitamin for MTHFR if you have COMT and vice versa. Maybe I could message the author of this article. This Niacin in the B Complex is killing me making me feel so wired. Plus, I can’t take the same vitamin for both MTHFR and COMT genetic defects. https://lauraschoenfeldrd.com/is-your-b-complex-vitamin-doing-more-harm-than-good/   [End]
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Here’s vitamin deficiences that can cheilitis: B2, B9, B12, scurvy (vitamin C), iron deficiency, or zinc deficiency Sice there’s 3 vitamin Bs listed, a vitamin B complex could cover them all if you’re not sure if you have one or the other. UPDATE: I switched from a coenzyme B Complex vitamin to a coenzyme B12 (without the other B vitamins because the Niacin or B3 was causing a fast heart rate. I don’t find the new vitamin to help as much. Could it just be the lower quality brand or could I be lacking morw than one B vitamin? So, I’m going to buy another coenzyme B Complex vitamin ...
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I want to add that I tried regular B12 vitamins in the past for a short period of time due to side effects. I probably had side effects because I wasn’t absorbing it well, and it didn’t improve my lips. I wasn’t taking a regular B12 vitamin whenever I had my B12 blood test. I also didn’t think it was important for me to take B12 because my blood tests showed a high level of it. This link might be helpful. The vitamin B12 supplements that I have used in the past contained Cyanocobalamin (synthetic). The one I use now contains Methylcobalamin (natural) and dibencozide, which is also known ...
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Besides the B12 genetic defect, I have a few of the following factors. ”The following factors may put you at a higher risk of not getting enough vitamin B12 from diet alone: - vegetarian or vegan diet - over 50 years old - gastrointestinal disorders, including - - - Crohn’s disease and celiac disease - surgery on the digestive tract, such as weight loss surgery or bowel resection - metformin and acid-reflux medications because it decreases calcium absorption and lowers gastric acidity - specific genetic mutations, such as --MTHFR, MTRR, and CBS - regular consumption of alcoholi ...
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Ok, I’ve been coming to terms that EC probably is a more simple condition than we have thought. So, I’ve been going back to simpler theories. I checked my DNA again and found something I overlooked because it didn’t seem like a big deal. However, it’s listed as a rare DNA defect. Genetically, my body produces less vitamin B12. I never worried about B12 because my blood levels have always shown a high level of B12 although I don’t take vitamin B supplements. But my blood tests also show a high level of folate although my DNA shows a defect in my body’s ability to produce folate. What I’m tr ...
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I’ve tried the Epiceram cream. It made my lips worse because the raw triangular area on my lips would get more white film that wouldn’t dry or heal. Maybe it works just on dry lips on the lower lip, but not also with raw skin on upper lip that won’t heal.   [End]
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I have a new theory. Yes, we have ended up with yeast or bacteria infections. How do you get yeast infections? Moist environments like possibly drooling in sleep? I’m thinking of vaginal yeast infections that females get due to the ph level being off. They use antifungal creams to treat it. People here who used apple cider vinegar seem to have a temporary improvement in lips. Apple cider vinegar improves the ph level. Yes, the question is what is affecting the ph level. Maybe it’s drool...drool that also has yeast or bacteria in it from inside mouth worsening the lips even more. Why mig ...
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Do you know why sufferers who had inner part of upper or lower lip removed didn’t see improvement with burning pain or white film on vermillion border? Also, do you know why sufferers with protruding upper or lower lip might have not experienced this issue as a child although the protusion was there?   [End]
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I think others have jumped on ACV in the past but some people thought they were joking because it’s acidic. I can see it working by killing bacteria/fungus. I wonder if the fresher ACV that requires refrigeration is more effective.   [End]
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I don’t know what’s up with this forum since most of the time I’m unable to reply to posts unless I reply to the very first post in a thread. I thought this Calcupotriene ointment was safe since I hardly saw any side effects listed online. Also, I’m already low on vitamin D so it seems like a good thing if this ointment increases my vitamin D level. I just don’t know if it will make all of my skin or only my lip skin more sensitive to the sun? Here’s the possible side effects listed with the prescription: Tell all of your health care prvoders that you takre this drug. This includ ...
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Anyone who is unable to see a doctor for a Calcipotriene ointment prescription or get it covered by insurance should try the Ichthammol ointment and discuss results here. I just looked it up and it’s over-the-counter with price under $10. The directions stated the Calcipotriene ointment should start working in 2 weeks, but for me it took about 3 weeks. So, I would say see how your lips look after a month of use.   [End]
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NO SPECIAL DIET OR SUPPLEMENTS WITH THIS!!! I’ve been on this forum a long time with lots of theories and treatments. Whatever I tried, some things might have made my lips stop peeling but they eventually still felt hard or dry. That’s until I recently tried Dovonex ointment. The company stopped making this brand name or only make the generic named calcipotriene ointment. I read that you only need to apply it once per day (applying it multiple tims will not speed up the healing process), and it takes about 2 weeks use for the fast cell buildup to stop. I think this will change most suf ...
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Do you use it in the solution, cream, or ointment form?   [End]
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Oh, it’s not that my pharmacy didn’t have it in stock. They said they didn’t accept any health insurance to cover that cream and it costs $400! I’m in the USA. Did your insurance cover this cream in the UK?   [End]
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My guess is that it’ the Dovonex since it has also decreased peeling in others who tried it. I treid to get a prescription for it some time ago, but my pharmacy doesn’t carry it. Are you in the USA?   [End]
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There may be remedies to help with the main cause. Something new always shows up in my past DNA analysis. I have a red flag for TCF19 gene. When I looked up that gene, it’s known as Peeling Skin Syndrome: Alias names: Familial Continuous Skin Peeling Syndrome Keratolysis Exfoliativa Congenita Familial Continuous Skin Peeling Keratosis Exfoliativa Congenita Idiopathic Deciduous Skin Keratolysis Exfoliativa Exfoliation Syndrome Peeling Skin Disease Deciduous Skin Pss   [End]
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Thanks for the helpful post. I took cod liver oil in the past, but beef liver supplements has much more vitamin A in it. I want to make a correction to my post. I wrote that people who took Accutane may have too much chemical form of vitamin A stuck in their tissues like an overload of vitamin A. But it could also be that their bodies either think they are making enough vitamin A since it is stuck in tissues or they went back to being deficient in vitamin A again (just more deficient than before) after stopping Accutane. So, I would give beef liver supplements a try(or check the link i ...
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Awhile back, I wrote a post about how vitamin A was the only vitamin showing that I wasn’t absorbing in specialized blood test although standard blood tests show normal levels in my blood. I have taken a few DNA tests, but there’s one I came across showing that I have 100% chance of having low levels of vitamin A. Because people with acne usally taken Accutance due to low levels of retinol (vitamin A), I’m readdressing the low vitamin A finding. Let’s say many of us have low vitamin A (in the case of accutane users...the fake chemical form of vitamin A may have built up in tissues and ...
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Also, I noticed in the stool sample results that I have a rare bacteria most people don’t have called Syntrophococcus. Studies have suggested that this type of bacteria could cause oral lichen planus when mixed with Leptotrichia bacteria. Since this was in my gut I don’t know that it’s in my mouth, but the mouth is part of the GI system so perhaps bacteria can travel through the GI tract. I don’t know if I have Leptotrichia bacteria in my mouth. I’ll need to search for past saliva sample to see if it includes it. Leptotrichia spp. and Lautropia spp. were found to increase significantly ...
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I’m having technical issues on here so unable to create separate post for not digesting complex carbs (the good foods). I don’t know how many of you took the free gut microbe test via ubiome. It shows that I lack a bacteria that digests complex carbs. When I searched for the supplements in the bacteria I lack, I found none. However, there is something called Beano that can break down complex carbs. Since not eating enough complex carbs can cause chapped lips (due to not getting enough nutrients), I figure not digesting complex carbs is like not eating enough? I don’t know if this will ...
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Will this stain like the mouthwash? Year ago, I wrote a report on this mouthwash but I never used it due to staining issue. But what about this clear liquid instead of a mouthwash? https://en-uk.ecolab.com/offerings/hydrex-clear http://www.dltpodiatry.co.uk/Dlt-wipes-sprays/Hydrex-Clear.htm   [End]
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What country is this pharmacy located in? I saw a TV show in which cheaper drugs were fake drugs.   [End]
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This doctor is prescribing corticosteroids. While some brands healed my lips within 3 days, my lips went back to EC lips within 1-2 weeks after I stopped using it. Did he say how long you need to use the creams or did he say they need to be used for for rest of life? I’ve heard that the effectiveness of steroids wears off if your body gets used to it by taking it every day for longer period of time.   [End]
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In response to your big lips, sometimes my big lips would decrease in size and look smaller. I’m guessing my big lips were just swollen. Do you worry that your lips now might look extra small if your lips aren’t swollen from allergies or whatever on certain days? Do you still have white film between lips?   [End]
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I’ve had mercury fillings removed, but I have no idea if I swallowed the mercury as described in this article or it if built up in my gum tissues meaning it’s still there. Through this article, I learned that it’s harder to fight viruses and bacteria infections when mercury is present. Hence, if mercury is still present in the gum tissues after mercury fillings are removed then it would be harder to fight off bacteria infections on lips. I’m not sure if taking 100 mg of cilantro 4x/day can remove mercury buildup in tissues since this article included additional supplements for cancer cause ...
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A lip biopsy could be useful if it showed sjogren’s syndrome? Does a lip biopsy determine if one has sjogren’s syndrome or not?   [End]
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I love this post. What do you think of drinking water mixed with oregano oil? It’d probably taste better to take a supplement.   [End]
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In regards to the acidic ph level of the stomach you mentioned, do you think sometimes EC can be caused by eating too much sugar? ”Sodas acidify your body. The ingredient phosphoric acid in sodas is known to dramatically acidify your body. It takes 36 glasses of water to re-alkaline your body after drinking just one soda.”   [End]
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I can’t say this will eliminate EC, but it helps with unclogging sebaceous glands. It’s also the only thing that has made bacteria in my pimples quickly come to the surface, which rubbing alcohol or hydrigen peroxide hasn’t been effective in doing so. And it doesn’t burn raw lip skin when applied. WITCH HAZEL.   [End]
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Then, people here should give the excimer laser a try according to the study protocol.   [End]
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The question is why would need to keep using the excimer laser (or wand) forever to maintain results? Hence, the laser doesn’t actual heal EC so there must be something more effective. I suppose one could could see a dematoogist 2x/week to maintain the results, but that’s rathr time consuming and expensive?   [End]
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Instead of spending lots of money on surgery, spend it on tests like this. I haven’t had it done yet or read all about it, but it’s supposed to tell you which foods have a bad effect on your body. This isn’t the same as allergy testing. You can click on the website tabs to find out more about it. Viome is not to be confused with ubiome. They are two different companies that show different things. https://www.viome.com/buy-now   [End]
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You can always cancel it for a refund. Remember that. https://www.curezone.org/forums/fm.asp?i=2074111#i   [End]
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Have you ever tried 1% Zinc pyrithione or 2% Ketoconazole? http://www.skindrone.com/book/zinc-pyrithione-seborrheic-dermatitis/   [End]
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Much of what WS says about food intolerances is true. Some users of the drug Accutane (there have been lawsuits concerning this) have developed intestinal damage which causes food allergies and intolerances. I think the problem with food allergies and intolerances is that people usually have more than one. It’s hard to know what to avoid since some skin allergy tests come back positive for certain foods while allergy blood tests come back negative. If anyone knows, I would like to know if one can eat foods that show up as positive in allergy skin tests (rash symptom), but negative in aller ...
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WhiteShark, I appreciate your videos, but I’m wondering about your evolution theory on how you mentioned that EC lips are a sign people are unhealthy or not to select them as a mate. I’m confused about this since many people have EC as you say due to allergies. I consider allergies to be a minor health condition or nothing serious like cancer. So, why don’t people with serious health conditions have EC lips?   [End]
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”Epsom salts chemical makeup is highly absorbent and draws toxins from whatever surface it encounters, including human skin.” You might want to mix some epsom salt in warm water and apply on your lips for 10-15 minutes 2x/day to see if it draws out possible vitamin A stored in the fats cells of your lips.   [End]
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I don’t know if the poster who wrote this older post will see your message, but I think he was referring either to vitamin supplements or the drug Accutane (a chemical form of fake vitamin A). Also, one can have the opposite problem of not being able to absorb vitamin A which creates a deficiency that doesn’t show up in a standard blood test. Both too much and too little vitamin A cause the same symptoms.   [End]
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There have been theories on here that perhaps we may have trouble digesting protein. Well, guess what? My DNA shows that I have a gene which causes slow protein metabolism or breakdown of protein into amino acids. Specifically, this is called Lysinuric Protein Intolerance not being able to properly digest amino acids present in protein. This metabolic disorder is extremely rare. According to the Genetics Home Reference Library, people of Finnish and Japanese origin are most likely to experience this problem. The disorder is genetic and hardly seen outside these two countries. By the ...
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I think this is how Daniel M healed his lips. Every day he exposed his lips to lots of sun and that’s when his lips healed.   [End]
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Hey, your lips are oversized because are they are inflammed and swollen. Their size will decrease once they heal so don’t mess up your lips with surgery. Someone else who had this surgery done said their lips got slimmy in the middle and felt uncomfortable. if you watch Daniel’s videos during the moisture methid, you will see that his EC spread. I think it was the various other things he did that healed his lips, not the moisture method.   [End]
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But do you need to have excimer laser treatments twice a week for the rest of your life or can you buy a UVB device to use at home for follow-up? Still, I wouldn’t want to use a UVB device on a regular basis to to skin damage/cancer concerns. I hope you can afford all the treatments. Does insurance cover it since it is a medical condition like psoriasis?   [End]
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What do you mean by killing fungus electronically? What device is used?   [End]
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Tergot, Would you say that the allergic reaction with enlarged fordyce spots caused EC lips. Do you think the fordyce spots play a major role in EC? I remember my top lips healed when I didn’t take a shower for about a week (due to skin allergy testing). I couldn’t figure out why my lip healed. Maybe it was for the reason you discuss.   [End]
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I haven’t looked into whether or not patients have taken high doses of vitamin A for EC. The only vitamin/mineral a specialized blood test showed I wasn’t absorbing was vitamin A. I may have been low in other vitamins, but at least I was absorbing it somewhat. I don’t know if maybe I just need to add more good fat into my diet (since I had enough bad fat in my diet) like coconut oil to absorb it better. I was still absorbing vitamin D somewhat although it’s also fat soluble (and I don’t get much sun). There just seemed to be a link between too little vitamin A and too much vitamin A as ...
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The test is free while they’re in the launch stage. If you have insurance that covers it, they’ll bill it to your insurance. Otherwise, it’s free. I’ll need to review my results again. I don’t remember if they only tested bacteria, not fungus.   [End]
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I know that my body wasn’t absorbing vitamin A. When I found this out, I consulted with a nutritionist. I decided not to take the 10,000 mg of vitamin A per day because I didn’t know if my body would absorb it anyway and high dose could cause toxicity. What dosage would be considered a mega dose that this boy received? I wonder if he was prescribed a high dosage taken at home or what type of doctor presribes it. I would love to take a higher dosage of vitamin A just one time if possible, but I need to know what type of doctor is experienced with this since as the article states, most docto ...
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Probiotics aren’t going to work unless you eat prebiotics with them.   [End]
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”Part of how hookworms seem to work in nature is to promote an optimal gut environment in which they can thrive. In nature, the guts of people infected with hookworm are generally healthy. Could hookworms and other intestinal parasites prove key to treating and possibly eliminating diseases like celiac, and asthma? A number of clinicians and researchers feel that if they can just get the right strain of hookworm, at the right levels, they can basically eradicate celiac disease, and possibly asthma and other inflammatory diseases. When hookworms are introduced into the gut of people w ...
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Certain gut bacteria appear to enhance the immune response to gluten which may contribute to the onset of celiac disease. Vitamin D may reduce or eliminate this enhanced gluten response, and, therefore, vitamin D deficiency may be a significant factor contributing to the onset and development of celiac disease. ”Fecal transplantation”, probiotics, and vitamin D have been advocated as possible therapy, treatment, and/or preventative measures against celiac disease. While vitamin D and probiotics may have potential as preventative measures against the onset of celiac disease early in life, ...
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”Researchers have documented the gut healing abilities of parasites like hookworm. When hookworms are introduced into the gut of people with celiac disease in the right amount, and kept at therapeutic levels, patients see their celiac symptoms disappear and their guts return to a healthy, normal condition. While still very much in the experimental phase, researchers are keen to investigate various strains and to determine the best therapeutic levels for these treatments. If all goes well, treatments based on parasitic worms will likely become more viable and more common in the future.” ...
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A 68-year old woman patient was a 10-year diagnosed victim of refractory celiac disease on a gluten-free diet. On admission for treatment of severe diarrhea, the patient exhibited Marsh IIIA villous atrophy. The patient was already receiving on-going treatment for refractory celiac disease with drugs. Additional drugs and antibiotics were given to treat the diarrhea. Eventually, the patient tested positive for C. difficile. Antibiotics were ineffective to treat the recurrent C. difficile infection. A fecal microbiota transfer was then performed. The C. difficile infection and diarrhea re ...
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It causes veins to expand, which might not affect people unless there’s a problem area where veins are sensitive to expanding without constricting back.   [End]
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Did you have the raw triangular area on the center of your upper lip?   [End]
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Do your legs feel heavy or weighed down?   [End]
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What is the name of this doctor in Maryland?   [End]
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I would say to update after a couple weeks of use because I thought my lips were healing at first, but the new skin that formed didn’t stick on my top lip. Perhaps this product will be more helpful if one doesn’t have raw skin on the top lip.   [End]
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The ointment I used had a strong scent or vapor to it. Did yours?   [End]
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This didn’t work for me. However, skin allergy testing showed that I have an allergy to dandelion, which CALENDULA is in the family of.   [End]
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Has anyone tried Benadryl cream, which is an antihistamine in cream form instead of pill form? https://www.drugs.com/cdi/benadryl-cream.html   [End]
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While you’re waiting for Whiteshark’s reply, check out this link: http://www.healthline.com/health/digestive-health/yellow-stool#causes2 What yellow stool cause do you think matches you? It could just be due to stress or anxiety, but it could be something more.   [End]
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I think your post is one of the most informative. You wrote ”My doctor told me that if the cause was allergy the steroid cream would have helped(in my case it didn’t have any effect).” In my case, a steroid cream temporarily healed my lips quickly. So, the cause of my EC must have been an allergy.   [End]
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Gluten did the opposite for me, but it can either cause diarrhea/loose stools or constipation.   [End]
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Just make sure to read all the 1 star Amazon reviews on this particualr brand. Maybe another brand will have less side effects for those sensitive to side effects. I don’t remember which brand I took, but it wasn’t this one and I experienced similar side effects as some wrote in the 1 star reviews. Someone also wrote ”To my disappointment I found they offer a deal in exchange of a review so most ”great” reviews are probably not reliable. There are no refunds or exchanges.”   [End]
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Oh, you’re thinking of erythropoietin, not evening primrose oil. Evening primrose oil interferes with iron absorption so it’d probably have the opposite effect.   [End]
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Is that a good or bad thing?   [End]
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That website link you posted is where I got the specific carb diet idea from. However, someone replied that the SCD wasn’t for celiac disease in my thread below. So, I’m confused since celiac disease may involve candida. http://www.curezone.org/forums/am.asp?i=2374766#i   [End]
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A dermatologist told me that if you apply a steroid cream to your lips every day long term, your lips will eventually become immune to it so it won’t work. There’s also the side effects of using steroid creams past a week.   [End]
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I found some past posts that I wrote about EPO. I guess 2,000 mg per day didn’t heal my lips. I wrote ”I thought the Evening Primrose Oil was working alone the first week since my raw lip skin was sensitive or tightening up. It seems to help grow skin on raw area, but the skin does not stay permanently on...at least so far with me.” I was also concerned about its interference with iron absorption since I’ve been low in the past and weight gain experienced by another member from it. In another post I wrote, I complained about how it made my knee joints feel like they were filled with fl ...
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To calculate dosage by weight, you convert your lbs to kg. Then, what is the next calculation step with the 100kg? You’re still taking 9 pills per day (about 2 pills during breakfast, lunch, and dinner) although you’re having digestive issues?   [End]
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I love these research posts. I might have taken EPO in the past, but I may have stopped due to digestive issues. You wrote that you take 9 capsules, 500mg each per day and also apply it on your belly. Since your digestive issues, do you still take nine 500mg capsules per day, which is 4500mg per day? Do you take it every 2 hours, and is this the dosage used in the study? How often do you apply it on your lips and belly?   [End]
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I saw a doctor on a TV show the other day who said a symptom of leaky gut was white film on tongue. So, you many want to look into that instead of candida although I’m not sure if leaky gut causes candida. And leaky gut causes allergies, eczema, and psoriasis.   [End]
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Perhaps that treatment may help if one has a thick buildup for skin, but there are others with thinner buildup whose lips would become raw if this was applied. Here’s a thread on a different treatment which may not be as harsh. http://www.curezone.org/forums/fm.asp?i=2365513#i   [End]
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The raw skin on top lip healed and the bottom lip stopped peeling.   [End]
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My lips completely healed while I used a steroid cream (I don’t know if it depends ont he brand). And my lips stayed healed a week or to after I stopped the steroid, but then my lips turned back to EC lips. So, stored creams are only a temporay fix. I guess we should focus on where the inflammation is coming from. If it’s coming from inside the body, then a steroid cream is only a temporary fix. If it’s coming from an allergy, then the allergic reaction will still happen after the steroid cream is stopped. I would hsve used a steroid cream if it didn’t do long-term damage (thinning lips ...
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I’m halfway through vitamin D3 treatment, but I’m quitting because it still causes GI issues the same as before. I’ve been suffering to get through 50,000IU once per week, which is equal to 7,100 IU per day. Does this mean my gut still hasn’t healed in order to absorb this vitamin without issues? I still plan on taking a lower dose of D3 after this week’s dose wears off. Maybe 1,000 or 2,000 IU, which is a significantly lower dose.   [End]
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Also, what do think of the Specific Carbohydrate Diet for Gut Dysbiosis?   [End]
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Can you let me know the main low bacteria culprits of Dysbiosis in my case? It’s common for celiacs to have gut dysbiosis. Are you already familair with these types of bacteria? Just googling each bacteria separately didn’t seem like anything serious. Actually, a high level instead of low level seemed worse for some types of bacteria. Can a certain probiotic help to repopulate the missing bacteria listed?   [End]
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I’m posting the results of the bacteria deficient in my gut in case there’s any relationship to it being out of blaance and EC. I’m only posting the out of balance bacteria. Other gut bacteria levels were normal. I should note that some levels may have shown as normal because I take probiotics. I’m low in the following bacteria: - Collinsella aerofaciens * Low level can cause IBS. - Dialister invisus - Odoribacter * Low levels can cause Crohns Disease. - Ruminococcus albus - Odoribacter - Prevotella * Low levels can cause Ulcerative Colitis. - Methanobrevibacte ...
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Since not many doctors know about low dose LDN, it’s convenient to get a prescription online for it here. I just saw that a 15-minute online consult with Dr. Handler costs $120 (since we already know the 3-4.5 mg dose). https://ldndoctor.com You could also try finding a local doctor nearby who prescribes it here, but there may not be one nearby. https://www.ldnscience.org/patients/find-a-doctor   [End]
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I guess sesame oil may be the best choice for oil pulling.   [End]
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Maybe insurance does cover it. When I had it done a few years ago, I thought my insurance was limtied to my state. I guess you need to call your insurance to ask if they cover this out-of-state lab. ”Most private indemnity insurance carriers cover micronutrient testing including PPO, EPO and POS plans. Patients are responsible for co-payments and are invoiced by SpectraCell for this fee. Patients who have not met their deductible also receive an invoice from SpectraCell. SpectraCell accepts Medicare assignment and Medicare covers most of the tests. SpectraCell also accepts Medicaid in ...
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Yes. Here’s the link. It cost around $400 when I had it done. Insurance doesn’t cover it. I don’t remember if you need a prescription to take to the blood lab. I saw a nutritionist. A conventional doctor probably wouldn’t be familiar with this test. https://www.spectracell.com/clinicians/products/mnt/ https://www.spectracell.com/patients/patient-micronutrient-testing/   [End]
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I guess I take it once per week instead of once per day. I haven’t noticed any side effects except for drowsiness a few hours after I took it. Nex time, I’ll take it a couple hours before bed. I didn’t know that there were vitamin D tablets you could take. I don’t know if I had problems with vitamin D capsules in the past due to possible rancid oil.   [End]
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Is there a photo you see online that looks similar to what you had? My fordyce spots were tiny and flat or didn’t look like herpes.   [End]
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Other people who tried juice fast had EC lips look normal after 3 days, but then lips looked EC again when juice fast ended. However, I don’t think they tried intense detox with it or beyond the juice fast.   [End]
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I gather many of you here have a vitamin D deficiency. For the first time, a doctor told me that I needed a high dose prescription, which is 50,000 IU per day for 8 weeks. I googled this and it’s the correct dosage for a deficiency. I don’t think I ever raised my levels to normal range with a lower dose of vitamin D. To be honest, I stopped taking vitamin D supplements after my level was close to normal because they aggregated my stomach...maybe because I couldn’t digest fat-soluble vitamins very well due to celiac disease. My question is if anyone here has ever taken a high dose of vit ...
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When are you going? Will you be juicing there? Also, what did you rhink of Kelly Osbourne’s Lyme treatment? I’m eager to hear how your trip goes.   [End]
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I also started with the peeling triangular area on my upper lip. It didn’t affect my lower lip until I was in college.   [End]
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Besides stem cells, thymus and adrenal glandular extracts are another way to revive the thymus. I have no idea if it’s effective. http://www.murraysussermd.com/thymus-stress-and-just-being-sick/ Also, thymus injections. I’m not sure if Kelly Osbourne had both stem cell injections and thymus injections. The clinic in Germany also has an office in Beverly Hills, CA where you can gte thymus injections. http://orthomolecularnutrition.net/vitamin-therapy/vitamin-injection/thymus-injections   [End]
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I saw Kelly Osbourne on TV speaking about flying to Frankford, Germany to cure her Lyme disease. I guess she needed to rebuild her thymus with stem cells. And now she has no symptoms. There may be more details about it in her latest book. Her alternative doctor’s name was Philip Battiade at Infusio treatment center. ”Rather than trying to kill off the disease with antibiotics, this treatment worked to strengthen my immune system so my body could fight off and get rid of the disease on its own, which is a much more complete and lasting cure. I stayed for two weeks.” http://www.infusio ...
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I reviewed my DNA genetic results again. My genes show that I have a high risk of Atopic dermatitis/hereditary eczema. After reading the description of it, I think this may be what I’ve been dealing with. I’ve also been highly allergic to dust mites. I wonder if supplements or foods high in linolenic- acid can improve this condition. Or perhaps you need to apply linolenic-acid directly on your lips since that’s where it’s missing. - Flaxseeds and flaxseed oil - Pumpkin seeds and pumpkin seed oil - Walnuts and walnut oil ”There’s a predominance of Th2 cells over (Th1 cells). The ...
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I’m not sure if all those cases can be found here, but I find recent cases in https://www.ncbi.nlm.nih.gov/pubmed/   [End]
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Hemp is good for chronic inflammation. So, this must be an inflammation problem for you whatever the cause of inflammation.   [End]
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There are certain blood tests that can show if you have eczema or psoriasis. Teh blood level is decreased in one and increased in the other. It’s not specific for either condition, but the condiitons are known for having increased or decreased this or that. Personally, my blood test results reflected having eczema, not psoriasis. Psoriasis is also often described as havin silver tinted dry patches.   [End]
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I didn’t realize glycerin borax was hard to find at stores. You can get it in throat liquid form in the USA at this pharmacy. Maybe they’ll ship it. Scepter Pharmacy 2520 K Ave Suite 600, Plano, TX 75074 http://www.scepterpharmacy.com/pharmacy-contact-us Mostly, India sells it. I saw it listed on ebay from Thailand, but I’m not sure I trust it. https://www.indiamart.com/proddetail/borax-glycerin-i-p-1837285091.html Pharmacies that sell it pop up when you click on images of glycerin borax after googling it. If anyone finds a convenient and reputable online store to purchase ...
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