I am around 14 months post, feeling great overall. Trying to get pregnant again. Wondering if anyone else has suffered any type of permanent nerve damage? I Am concerned I have. The left side of my tongue tingles still from time to time, especially if I have mint. Anyone else??   [End]
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I am 9 months or so post removal and my floaters and wavy lines are worse than ever. It is only in bright lights or with a white background. It is like little waves or spots. My eye doc said they are nothing to worry about but also there is no way to make them go away. Anyone else have these? Please tell me it gets better!   [End]
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dizziness.... Most of the time Muscle twitching....Most of the time weakness... not anymore, except R hand all of the time gagging feeling....nope anxiety......... on and off. fatigue......all the time, ugh! ears popping....most of the time I have nearly all of the above. My dizziness isnt a classic dizzy feeling, it is almost like I am stoned or drunk. I also have swelling around the outer corners of my eyes, look like a basset hound, I have been to an ENT And, like everything else, everything is normal!   [End]
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I am around 6 months post removal and was thinking I Was experiencing heat intolerance. I was out today with my son and it is only 60 here but very bright. I get very quickly fatigued, headache, heavy feeling legs and see spots/wavy lines.... anyone else??   [End]
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Recently, I am 5 months post removal, my lower legs (shins and calves mainly) and hand tingle, not as bad as if they are a asleep, just a basic annoying humming tingle. Anyone else?   [End]
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Exact same symptoms, even down to be primarily on R side. Crazy.   [End]
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Interesting. what were your symptoms?   [End]
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Someone posted to me about him and I cannot find the post. Whomever saw Dr. Sluss what procedures did he do, what were your symptoms, and what was the outcome? I saw Dr Goslin and had BRain MRI, Spinal MRI, Optic Nerve MRI, Evoked potential (EEG) on eye/brain, fingers, toes etc., blood work and 2 neurological exmas all completely normal.   [End]
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Anyone else experience this? Last night laying down I had tingling in my upper back and torso area. It is not pins and needles and it is not as intense as hitting an elbow or when a limb is asleep, just a dull tingling. I have it in my feet as well if they get too warm. Also a return of bloating! I am 5 months post removal and seriously contemplating going back to neurologist. Just cant get myself to believe it isn’t MS even 3 MRI”S and 2 evoked potentials later...   [End]
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I too had addies pupil about 6 weeks post insertion. It has jsut now returned to normal and I am 5 months post removal. My L pupil was the size of a dime and my R was the size of a crumb.   [End]
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kim goslin   [End]
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I have no pain but the R side of my face feels a bit tingly, a bit weak and my eyes are watering. It almost feels like the sensation one gets after you blow up a balloon. My eye feels like it is almost being pulled down. I have posted on mirena site also because I had the mirena and had an awful experience. I am just coming off some hormones as well but wondering if what I am experiencing is a migraine...? Also looking @ sunlight makes my vision blurry   [End]
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I have never had a migraine but could this be a type of migraine? There is no pain but the feeling is a tinglin/weakness on R side of face (no numbness), seriously tight shoulder on same side, watering eyes....facial pressure   [End]
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So I am convinced this is all hormonal because I was on the up, 5 months post removal. I just came off a does of pregestrone (challenge to try to get period going) and I am 5 days off of that and today my facial symptoms are back. These include Pain behind my eyes and a feeling of tingling/almost like after you blow up a balloon on R side of face near ear and side of eye. Anyone else have this? I feel like I am either going crazy or have undiagnosed MS. I wish there was an answer   [End]
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This could not have come at a better time! I am 5 months post removal and have had pronounced tingling the past week. I did just come off a dose of prometrium. But this morning and last night I had tingling in my torso, hands and have been having heat sensitivity again. I guess I am a bit comforted in that we couldn’t ALL be experiencing this and have MS... right? I have had 3 MRI’s and 2 evoked potentials which show nothing at all to be concerned about but I cannot move on. Even with therapy. Last night I said to my husband ”DO you think I have MS and it just hasn’t shown on any test ...
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Anyone else have tip of nose tingling??   [End]
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I know we can attribute most of our issues to Mirenas effect on our hormones etc. But... I just had my hormone panel done and all numbers are normal. Can I still blame Mirena for ongoing tingling, heat sensitivity, fatigue??   [End]
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I have had 3 MRI’s and 2 evoked potentials, all showing nothing, no lesions, nothing pointing to MS. Thanks for reply!   [End]
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I am 5 months post removal and brain fog is the hardest part. I am convinced this is MS! My brain fog feels like this: Stoned Out of body experience Buzzed Lightheaded/dizzy head pressure fatigue Is this what everyone elses feels like? anyway you have found to help it? anyone know a doc in Oregon who is a mirena believer, that it really could cause all of this!   [End]
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I am so glad you posted this. I was about to post one that says basically the same thing. I think the hardest part of all this is that MS is something that can never be 100% ruled out so there is always that thought in the back of our heads since our symptoms are identical to MS. I have had 3 MRI’s, 2 evoked potentials and 4 neurological exams all showing not a single sign/symptom of M. But... cant get it out of my mind and just can believe Mirena could have cause all of this sh*t! Tingling, blurry vision, numbness at times, heat intolerance, fatigue etc. Anyone feel that same thing? I am ...
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I am so glad you posted this. I was about to post one that says basically the same thing. I think the hardest part of all this is that MS is something that can never be 100% ruled out so there is always that thought in the back of our heads since our symptoms are identical to MS. Anyone feel that same thing? I am 5 months post removal and this week have had the return of tingling in legs and left arm and heat intolerance. Does anyone else have heat intolerance? I do not have it when I am internally heated, I run 8 miles everyday no problem and sweat on stairmaster but... if I sit in the su ...
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Yes Yes Yes and weight gain. I am 4 months post removal, havent changed a thing with my daily running mileage etc. and I am down 7 lbs and not bloated at all.   [End]
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Anyone done this post mirena? I have had secondary ammenorhea for years, used clomid to get pregnant and have done a challenge before to jumpstart period but never done one post mirena removal... has anyone out there???   [End]
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I have noticed that when I sit out in the sun I get tingling in my fingertips and my feet. I am 6 months post removal. Anyone else have this? Trying to convince myself it is not MS Heat intolerance. I have had 3 MRI’s and 2 evoked potentials which show NO MS. I have also been improving steadily since removal. This seems to be the only lingering issue.... Would love to hear others havet his to help me feel better!   [End]
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That is hard to say. I have an odd (or lack thereof) cycle. I have weeks where I feel like I have my period but no bleeding. I have been ammenhoreic for 5 years.   [End]
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I am 3 months post removal and feel 100% better. Today though I began having very benign ”symptoms” similar to those when I had that awful device inside of me. Have others had this happen? I have not had a period post mirena but today began feeling 1. Leg weakness/stiffness 2. A bit of right handed weakness and tingling Anyone else out there? Even though I have had 4 MRI’s that show NOTHING to indicate MS I always worry. I am so MAD at the mirena for all it put me through, horrifying my family that I may have MS or some other unkown disease.   [End]
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I am 3 months post removal, also a marathoner, log 80+miles per week and was on a diet logging all calories exercise etc with a body bugg. I didnt drop a pound until about 2 weeks ago and now it is coming off as should. I am 3 months post removal. I was looking at my loss after baby and it went like this: Pre baby 112 Post baby 129 1 week post baby 120 2 weeks post baby 118 3 weeks post baby 117.5 4 weeks post baby 116.8 5 weeks post baby 115 6 weeks post baby 114.3 7 weeks post baby 113.8 8 weeks post baby MIRENA 9 weeks post baby 115 10 weeks post baby 117 around 15 weeks ...
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I had adies pupil followed by extreme blurry vision and seeing halos constantly. My eye doctor found nothing unusual and I had an MRI of my optic nerve and an evoked potential of my vision that showed nothing unusual. Had to be the mirena!   [End]
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4 weeks   [End]
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It was one year ago today that my first symptom occured and that was numbness on the R side of my face and tongue, following that is the laundry list of symptoms leading to numerous MRI’s etc... stuff we have all been through! One symptom I had was puffiness on the outer corners of my eyes and inside my eye brow on the inner corner of my eyes, it was so weird and I spent forever trying to figure out if I was alergic to something etc. Well, since I had the mirena out there has been NO puffiness whatsoever. The only lingering symptom seems to be fatigue and tinging in the arches of my feet. ...
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I did and had an MRI to look at Optic Nerve and a visual evoked potential and nothing was found to be wrong!   [End]
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Wondering if anyone else experienced Adies Pupil http://www.healthline.com/galecontent/adies-pupil after having Mirena placed? I had a whole host of symptoms but wondering if this was actually attributed to mirena. My L pupil got much larger than R and is still a bit larger, to this day, and I often see a halo with only L eye. Thanks!   [End]
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I too am about 2 weeks out and feeling much better. The past few days I have had tingling but isolated to my lower legs and left foot. MUCH better than the tingling I was getting in the face and hands! I have had a few angry days but overall feeling much calmer and more in control. Havent lost a pound which is annoying. I run for 90 minutes a day and have been counting calories just to check and not a pound lost. Did you experience any tingling or numbness? It seems maybe these symptoms are the first to improve. I had a return of some symptoms, as I said, but not as bad at all. I am convin ...
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Overall I am 110% better but I am 2 weeks post removal and still have some R sided hand weakness, a sore back of my neck and a bit of hand tingling. Anyone else? I did not ice an uptick of these also when I was a bit sick last week.   [End]
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Do you have any you would recommend?   [End]
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I had my mirena removed 2 weeks ago due to a year of symptoms that I can only attribute to mirena. These side effects led to me having 2 MRI’s and 2 evoked potentials to rule out MS, which was. My question for others of you is, how long did it take you to lose the weight gained on mirena? While on Mirena I gained 10 lbs. I have never been (Except when pregnant) a stitch over 112 and am stuck at 120. I run 90 minutes a day and lift weights and the scale has not BUDGED.   [End]
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All I know is that I had NO Tingling, NO numbness, NO weakness, NO blurry vision etc until 6 weeks after I got my mirena inserted   [End]
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I just got my IUD out on friday and already feel much much better. It is almost like a year from absolute hell that is finally over. I cannot believe all of the MRI’s and other tests I went through were,most likely, due to mirena   [End]
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I am so thankful to have found you all. I have had so much anxiety that even thought ALL tests point to this not being MS it could be. But now that I know that others are out there with the same problems I feel so relieved. Trisha, I will be eager to hear what spinal says; I am confident it will say nothing!   [End]
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Here is my brief story outlined in a list! I would love to hear what others may have experienced OCtober 2009 - Son born DEcember 2009 - IUD place 2/1/2010 - Woke with one sided facial numbness which over the next 3 months turned into 1. Muscle fasciculations (twitching) in legs mailny calves 2. Perceived Weakness 3. Tremors 4. Facial tingling and a feeling of facial numbness 5. Tingling in legs and arms 6. Weakness in one hand 7. Adies pupil and blurry vision 8. Feeling of heaviness in legs 9. dizzy at times and feeling almost drunk when walkings 10. Weight gain, especiall ...
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