thank you for the second long, educating and helpfullanswer. really thank you and best regards Goran   [End]
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Thank you for the info but the EB you described is a more severe tzpe of a skin disorder. Our problem is” Erythodermia ichtyziformis bullosa it is a milder tzpe of a skin disorder even though some characteristics are similiar to what you described. Thanks again   [End]
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Hi Goran! I am thinking supplements of Collagen ( Gelatin )...some people use the suppliment to make their hair , nails, bones and cartilage in the joints stronger. Some children are missing Chromosome 7, and their bodies can not create elastin which is part of collagen. And some childrens bodies may not be able to chemically create enough collagen to supply the bonding and elasticity in the skin. Here are the reasons why I am thinking this way, and what function it has in the body. What Is Collagen? Short Answer: A fibrous protein found in skin, bone, cartilage, tendon, and ot ...
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Epidermolysis Bullosa: I think this is the same illness you described? Even though doctors say there is no cure. I will tell you what I think will help, and explain exactly why in my next message. ...a child with painful wounds similar to burns covering most of his or her body. ...having to wrap each tiny little infant finger with Vaseline gauze and then cover it with gauze to prevent the hand from webbing and contracting. ...never being able to hold your child tight because if you did, their skin would blister or shear off. ...a child who will never know what it’s like to run, ski ...
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My friend has a one and a half year old daughter with a skin disorder from birth. Her diagnosis is: -erythodermia ichtyoziformis bullosa Her skin is degenerated to the degree that blisters/boils form all over her body, and on falling off, leave exposed flesh. On the other hand, skin around her toe nails is extremely tough, with thick skin layers forming on top of each other, making it nearly impossible to cut with scissors. She only wears cotton, her skin needs to be moisturised very often and open wounds need to be desinfected with alcohol. On touch, her skin comes off very easily ...
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