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Update on Aaron- good news! by Hidden Username ..... Muscular Dystrophy Forum

Date:   4/3/2005 9:32:14 PM ( 20 y ago)
Hits:   842
URL:   https://www.curezone.org/forums/fm.asp?i=711196

You may recall the article I posted from Doctor Yourself.com. I just received an email from Kathleen Hanson, the grandmother of Aaron, who was the subject in the original post in that article.

This is part of Kathleen's response to the email I recently sent her:

>>Hello Donna,

So good to hear from you....
...I still receive about 3-4 e-mails a week as a result of posting Aarons story and I write back to all. If someone doesnt respond I dont like to keep inquiring because I dont know what that person or family might be going through but please know that all of you still are with me in my thoughts and prayers.

Aaron is doing great. My daughter has been giving him the vitamin supplements for almost 17 months, twice daily, without fail. His health is good, no colds or flu, no doctor visits and there has been no sign of regression. He has been attending an MRDD preschool this past year, has passed his little Kindergarten readiness test and will attend the regular school system for K in the Fall....

I too have learned more about the different types of MD, as the e-mails come in from all over the world, regarding all different ages. These include so many suggestions and experiences from others,.but like you through it all have come back to the importance of nutrition and diet.

This has been an amazing journey so far but still feel Im at the beginning and there is much yet to come. These e-mails seem to come in special batches, where one in England has asked for help and at the same time Im offered some hope on the same topic from someone whos just written from Arizona. Im criss-crossing information all over the world sometimes.

And so it comes again with your letter written on the 24th. This morning of the 26th Ive received a letter from a 54 year old man diagnosed with FSH in 2000, had his three sons (27, 30, 34 yrs of age) DNA tested  ALL positive and is now in the process of having 2 grandsons tested and with serious concern for his next grandson due in June.

The doctors have offered no help, except pain meds and muscle relaxants. Beyond that they have no further clue....

That sounds like a wonderful idea of yours about exploring the possibility of a non-profit org to help those unable to afford the vitamins. I have heard from many, this being a great concern. Also thank you for the invitation to participate on the forum. It is something Id like to get into at some point but it has been a challenge this past year just corresponding with those who contact me from the Dr. Saul site.

Again thank you for your timely e-mail.

Blessings to you and your family, Kathleen<<

NO SIGN OF REGRESSION!!! NO SIGN OF REGRESSION!!!

Kathleen, Fuzz 22, Hemant, Bob, Tyler, Owen, Southern Belle, Cyrulis, 2-Tuff, Wren, Lapis, Alicat, and of course, Dr. Schulze and the late great doctors that have gone before us, plus Califlady, birdlady, Mental Nomad, Eileen 45, all of you, my dear friends, we are going to find the cure. We are going to do it together. And we are going to reach out to others who need God's healing touch.

Please, please, please pray for Kathleen and David, Hemant, and I as we discern the Lord's calling and move in His wisdom alone.

Many blessings,
-Donna

 

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