Date:   3/13/2020 4:52:32 AM ( 4 y ago)
Hits:   661
URL:   https://www.curezone.org/forums/fm.asp?i=2431546

I totally know how you feel about feeling like you’re looked at as an inconvenience by doctors. I’m so sick of being treated like because this isn’t fatal it isn’t worthy of being taken seriously. It doesn’t kill you but it makes life difficult in a way most people can’t comprehend. I’m a 23 year old female and there’s so much pressure already to look a certain way and when one of the features you actually feel ok about with yourself goes out of whack its devastating. Especially bc of all it prevents us from doing normally. I’m happy I found this forum and Daniel Miller’s channel bc I’ve been on the brink of complete insanity and would’ve COMPLETELY lost it by now if I haven’t. I took off from my job for a few months after saving up some money at the cost of making my lips so much worse. I was in and out of the bathroom every 10 minutes at my job viscously rubbing off the skin. I would bite, lick and suck them constantly to make sure no one could see what was going on. Now I’m basically quarantined with all of the Coronavirus stuff going on and my classes are now online. I feel so much pressure to fix this now while I don’t have to see many people. It’s scary bc what if the way I’m treating it makes it worse and I run out of time. I know if I really have to face the world I could lose control and go back to my old ways of peeling them. Right now I’m using a flutisacone and alternating it with Tacrolimus every 2 days. I also use aquaphor a few times a day. I haven’t picked or interfered with them at all for a few weeks now. I’ve made mistakes of bumping into them or something but I’m trying not to beat myself up for that. Mine started as angular chelitis and redness in the corner of my lip. I used Mupiricon for the cut (Cleared it right up) and cortisone cream for the redness. I overused the cortisone bc the red kept coming back and I think it damaged my skin. It got so dry and I would constantly try to fix it in all the wrong ways. This is why I’m worried about using flutisacone now but I’m hoping it’ll decrease the inflammation while the skin grows back. I’m trying to cut out gluten and dairy lately but today I had a really bad panic attack which resulted in me ordering a 20 piece nugget and 2 iced coffees. I’m revisiting my dermatologist tmmrw and asking about dupixent bc she mentioned it the last time I was there. Maybe you could ask your doctor about that. She said it helped another patient with peeling lips. Seems like more of a biological treatment. I’m trying to remain hopeful bc what other choice is there? Daniel millers YouTube channel is proof that your lips could be in this state one day and then suddenly you find what works for you and you’re awake from this bad dream and living a normal life. Maybe even a better life bc you’ll appreciate it more. Anyway, this was a longer post than I planned. I just have no one to talk to about this who gets it and your posts really resonated with me. Next year at this time maybe we’ll be living normal lives. In the meantime I’m working on being kinder to myself and enhancing my other features and doing what I can do for now. We are all doing everything we can.
 

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