Date:   3/24/2018 8:47:04 AM ( 6 y ago)
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URL:   https://www.curezone.org/forums/fm.asp?i=2405738

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I am wondering if anyone had mirena for 8-10 years before symptoms started Or even closer to the 5 year Mark?

I have had mirena for 12 years now (multiple mirenas) to control polycystic ovarian syndrome and endometriosis. Both are fairly severe cases with the end on other organs. It has worked great for these issues, but in August I developed
Shingles and never fully recovered. It is now March and the doctor's have diagnosed me with post herpetic neuralgia, carpal tunnel, Rheumatoid Arthritis , and are testing for ms.

The only concern I have is that the Ana and all of the advanced protein and DNA blood testing the doctors have done show NO signs of any Rheumatoid Arthritis . Even my rheumatologist was shocked and baffled when she got the results of the ultrasound showing ra, she can't explain it herself and doesn't no how it's possible.

My hands are pins and needles all the time, my feet are pins and needles most of the time, I have full body edema despite having RA in only 2 joints in my hands. I get dizzy, have blurred vision and double vision through out the day most days. I haven't been able to work in 3 months. I am using amitriptyline for nerve pain and metheltrexdate for the RA with little improvement in symptoms.

When I saw this site I started researching and reading posts from other mirena users but they all seem to refer to short term use. When I spoke to my doctor she basically dismissed it as i have been using mirena for years and side effects seem to show up much quicker. I reminded her that I also had severe side effects from my estrogen treatment after 10 years of using the same treatment 20 years ago but we ran out of time to discuss and as my go she isn't all that well versed on all of the treatments for treating my end and pcos.

I have had 2 mri's, over 110 different blood tests, seen a neurologist and rheumatologist. I am scheduled for an ekg and ecg this week because they now think I may also have heart troubles due to the edema. It's been a crazy road with tons of tests and no one can explain why.
 

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