Date:   10/13/2016 8:27:20 AM ( 8 y ago)
Hits:   1,627
URL:   https://www.curezone.org/forums/fm.asp?i=2338795

Hi everyone.

I realise this forum is not that active but that's ok, we all share a common problem and I have learnt to be very patient over the years.

I am a male aged 30. I was recently diagnosed with lichen sclerosus after a visit to a dermatologist. The reason I saw the dermatologist was because prior to this around 2005-2006 I started suffering from ejaculatory anhedonia (numb ogasm) and I lost a lot of sensation in the head of my penis. I have ben checked by a neurourologist who could find little wrong and I was referred to a dermatologist as part of the diagnostic process.

My lichen sclerosus is life long. I caused trauma to the foreskin/head of my penis when I was a youth after inserting a pen knife to try and loosen the foreskin in order to retract it. This was due to a conversation I had with a friend who could easily retract his foreskin, yet I couldn't. It gave me a lot of anxiety at the time which is the only way I have of explaining why I did it. There was a little bleeding at the the time but I did not go to hospital thinking it would stop, which it did.

I have never been able to have comfortable erections or retract my foreskin when erect. I have lesions around the head of the penis (white bumps), as well as down the shaft of the penis which I've been told are harmless sweat glands.

I have other skin complaints elsewhere on my body (mainly hair and face, chest line) - dermatitis. I also suffer from peeling lips which I've recently considered my in fact be lichen planus/sclerosus. I did not discuss this much with the dermatologist at the time at I keep the lips moisturised which makes them appear less worse than they are. If I leave them alone they will chap and blister, peel and bleed if I bite away the dead skin.

In wanting to get to the bottom of this I've considered that perhaps my lifelong untreated genital lichen sclerosus may be having strange effects elsewhere in the body if indeed the body is reacting to the urine which the damaged skin comes into contact with. Is the autoimmune response having negative effects elsewhere in my body?

My first question is is this possible ?

Secondly, I have been prescribed Enumovate ointment (clobetasone butyrate) which I am shy of using as I hear bad things about steroid ointments for this condition.

Instead I am proposing to use calendula ointment, it contains the following:

organically grown helianthus (sunflower) seed oil,
organically grown calendula officinalis (calendula also called pot marigold), cera flava (beeswax), tocopherol (vitamin e).

Any info appreciated.
 

<< Return to the standard message view

fetched in 0.03 sec, referred by http://www.curezone.org/forums/fmp.asp?i=2338795