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TMAU- My story..getting through it by #176583 ..... Trimethylaminuria (TMAU) Forum

Date:   9/28/2013 8:06:46 PM ( 11 y ago)
Hits:   6,291
URL:   https://www.curezone.org/forums/fm.asp?i=2109436

Hi everyone...a little backround information of when it all started [or at least when i became aware]...JHS there would be random days where people would say i smell and spray me with body splash. from then on, i was ALWAYS equipped with body splash and lotion to mask the smell even though i never smelled myself. I just really didnt understand. same thing went on in HS. There would be days where people in the classroom would say it smells like sh*t and i knew it was me and i would sit there all embarrassed. usually i just got up and left class. at this point, i never knew something like TMAU even existed. i was too embarrassed to even talk to someone about it. in my eyes, i was clean as a whistle. i went away to college...and no one made any remarks to me really. i had room mates and everything...was in a sorority. i was rather popular. that was another thing, i always had a lot of friends and guys always liked me so i was confused.

it was at that point, that i figured i must be ok..no more "smells" coming out of me. well now im 27...i have a great job, i work wiht great people..only to sometimes over hear side convos that i smell! there is nothing more embarrassing than that. i avoid meetings in the ocnference room. i dont go in the elevator anymore. im not trying to be conceited or brag but many guys are attracted to me and lately i think things are going well and i havent gotten past a third date with anyone - probably cause they cant put up with my smell.

i;ve tried EVERYTHING on this site. if anything, the vitamins are making me nausea and i just cant keep up with it. i decided to grow enough coverage and ask my 2 closest friends about if i smell and they both said no which hurt me even more...cause obviously i do. i made an excuse like the doctor took a blood test and noticed i cant break down choline and with that my pores emit toxins which cause me to smell and i asked if they smell me. they said no not at all if anything i smell like perfume.

with all that said - i dont let it get to me most of the time. i wake up every morning..i take a shower..i do my hair, i do my make up, i dress well. i just appear confident and getting pretty makes me feel better. ive gotten a personal trainer [who i feel bad for since i must stink but they dont say anything]i go to the gym 5x a week...i do whatever i can to feel good about myself. ive given up on taking the supplements cause i dont have anyone honest who will tell me if its working or not.

ive also noticed that if im thinking about it and constantly paranoid any time someone says a word beginning with the word "S" for smell i think theyre talking about me.,,,which 95% of the time theyre not.

i just wonder if body lotion and perfume makes it worse? also, i have a huge problem with deoderants. they make my arm pits smell worse...and that smell i am able to smell. sometimes musky - sometimes just a bad mixture with the fragrance. ive tried unscented and that was just a disaster

IF ANYONE WANTS TO TALK IM HERE FOR YOU!
 

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