Re: New on forum Hi everyone!! by lauren18 ..... Trimethylaminuria (TMAU) Forum
Date: 6/30/2013 2:57:31 PM ( 11 y ago)
Hits: 5,237
URL: https://www.curezone.org/forums/fm.asp?i=2079623
Hi thanks so much for your suggestions. I havent really been open about this issue, am embrassed and going to the doctor is out of the question right now. i have read way too many cases were doctors only do studys and find out nothing about this condition. i feel they are not awaree & have the knowledge on this condition since its very rare. i am trying to self cure for now, following a couple of things i have read on this forum. i believe i can find better solutions based on personal experiences ppl have gone thru rather than asking a doctor who is not so aware of the condition. i have been taking liquid chlorophyll and that kind of seems to help, & vitamin b-2. but i am confused i read in some places vitamin b-2 is recommended and in others that it produces a stronger odor? would u suggest i keep taking the vitamins? the worse part is i cant even smell myself, if only i could be able to tell what was making the smell worse or better but i have no way of telling whats working or not. and i really havent spoken openly about this to anyone. the fecal Body Odor is coming out of my skin i suppose, people do cover their noses when i pass by so i am guessing is my skin or pores. i was taking activated charcoal but i stopped felt it wasnt helping me, but i will start taking it again for a longer period of time, suppose i need to be more patient. i have also read zinc is good, & probiotics? have u tried any of these? for some time i thought i had candida, when i was on my period one day we were getting in the car my sister said it smelled like "fresh baked bread" lol so i am thinking maybe its something having to do with yeast
or hormone imbalance so i started doing the candida diet about 4 months ago, i am still following it. i dont eat wheat,eggs,soy,yeast,milk, cheese, and i try to eat the least meat possible. except for chicken & turkey once in a while. and seafood is out of the question. i do feel this has helped a bit, before my odor was just worse, i would be able to smell it right when i woke up, would be halfway asleep just waking up and senses were much more sharper and i could detect a strong feces smell was such a bad way to start off the day. but now i dont notice it in the morning which is a good thing, but ppl still cover their noses when i walk by , when am out in public. now i only eat vegetables, not even fruits, or any sweets either, i just stick to vegetables & broths am loosing alot of weight, if anyone knows of any foods or recipes we can exchange that would be greattt, if we could exchange recipes.
I stay positive always, we should be strong am sure therre is a cure for thisss , i just cant be living with this smell my whole lifee. just wish i could do alot of everyday things ppl normally do without having to worry about things like if they can smell me or not. i am such an outgoing person but i feel like this holds me back alott in persuing alot of my dreams, i am 24 and would really like to go to college & start a carrer but this is holding me back. my high school years weere the worse, & i cant really see myself going thru it all over again. if anyone would like to talk on messenger send me amessage would be gud being able to talk to someone about this and exchange ideas come up with solutions. hope u all have a great day !! :-) stay positive
<< Return to the standard message view
fetched in 0.02 sec, referred by http://www.curezone.org/forums/fmp.asp?i=2079623