Date:   4/1/2012 6:57:17 AM ( 12 y ago)
Hits:   8,963
URL:   https://www.curezone.org/forums/fm.asp?i=1924541

I agree with you, we need to do something to gain support for this rare disease. Both my twins have it and I have no experience with dealing with it. I'm trying to find out what treatment to do with them and it seems that I have not been able to find a dentist that doesn't have to look it up first to be able to give me information on it. It's going to be VERY expensive for treatment and something needs to be done to insure that insurance companies help us out more. You may private message me if you want.
 

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