Date:   7/4/2010 12:14:03 PM ( 15 y ago)
Hits:   13,774
URL:   https://www.curezone.org/forums/fm.asp?i=1647385

I hope he finds his answers, sometimes they are only found at the last moment and others times never found at all. Here is the 'long story' I alluded to in my original post of divine intervention that provided a diagnoses when the doctors didn't have a clue.

I awoke one Sunday morning and stumbled as I got out of bed, I thought nothing of it but became more clumsy as the day went on. We had company later that day and drank a little wine out at the pool. By evening I knew something wasn't right and the next morning I was so wobbly I appeared drunk. My girlfriend drove me to the hospital. After examining me the doctor took Debbie outside the building and ask her how much I drink? She told him about the wine on Sunday but it was only a few glasses and rarely do I ever drink any at all. Then he kept on saying, "No, really how much does he really drink? This was their first diagnoses 'a stumbling drunk'. Then they moved to stroke, I got a cat-scan and every test they could use to prove it was a stroke which remained inconclusive while waiting on an MRI slot to become available (it was a VA hospital) as the days went by my paralysis became worse each day and there was talk of needing to put me on a ventilator. Debbie was leaving the house getting ready to come back up to the hospital when the phone rang. She almost didn't pick it up as it was the fire chief from her volunteer fire dept where she is treasurer on the caller ID and she didn't want to get stuck in a long conversation on her way out the door. She told Tracy I was in the hospital along with a description of my condition yet the doctors were clueless. He said it sounded similar to what his dad was presently going through. Debbie came to the hospital and relayed this to the head nurse on duty who immediately 'googled it' and relayed the info to the doctor. Two hours later the neurology team surrounded my room to announce my rare condition as being exactly what Debbie had told them. I was hooked to a machine that centrifuged the plasma out of my blood along with the bad anti-bodies receiving these treatments daily until I improved. The syndrome I had, Miller Fisher Syndrome was more rare than one in a million a variant of Guillain-Barre' syndrome which is what Tracy's father had which is also very rare in itself. The timing of the phone call, his dad have the same thing and that being very rare is all WAY beyond the odds of reality.
 

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