Spinal Muscular Atrophy by FairyGold ..... Ask Dr Mom: Ask Sandra K. Ellis M.H.
Date: 12/29/2008 11:55:52 AM ( 16 y ago)
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URL: https://www.curezone.org/forums/fm.asp?i=1323603
What would you do if you had an infant with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. If the infant was diganosed 6 wks after being born, and is now a year old what would you do? He has outlived what the doctors suspected, but is not improving. Please help with any suggestions!
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