Gosh Amanda, thank you so much for the support! its way past midnight and I just can't sleep. I am devistated over this ... I keep reading stuff and it scares me to think about all the possible complications of the disease and all that could happen if condition left untreated. He refuses to take steroids (which kinda makes me happy yet Im not sure if it is a good thing to do) and his condition is worsening. He lives in canada and im in DC. he will be coming to stay with me for awhile and we will try this . I will keep u updated