Re: My Story
Our disase is not the easiest to live with and what makes it harder to understnd is it is not recognised and frowned upon as being "all in our heads". You are strong, so am i and also our fellow sufferers and we will continue to grow in our suffering together until a cure or a remedy to reduce the symptoms are found. Now Ive been a sufferer of 20 years and am releived to find this website and finally put a name to this disease of mine. I now know I am not alone. Ive been through many an embarassing situation at home, work with friends but although I have not found a cure I have found many a remedy to relieve the problem short term. THis may work for you it may not but its worth trying. I have been diagnosed with, as well as many other things, a very bad case of small bowel bacterial overgrowth or dysbiosis of the small bowel. So bacteria in my body is a problem. Whether it is the main problem is yet to be seen, however, many of my remedies are for bacterial removal.
My faecal body odour is constant and seems to get worse when I drink or eat something. Smelly wind is also a problem which has reduced significantly with these remedies:-
Butt plug (fanny flug) - (no, im not kinky just desperate) bought over the internet, sex shops, ann summers etc. Works well to reduce odour from rear end. A bit uncomfortable but works for me.
A mixture of grapefruit, lemon, lime and orange. Juiced in a juicer. Drank either before or after food and watch the smell disappear. Although mine reared its head again once i ate or drank something. This has been the most effective and I am still trying this out.
peppermint oil - good for removing bacteria in the bowels and great for IBS. This will reduce the wind and some odour (in my case). Put several drops in a water bottle and drink throughout the day. I did not get any side effects from this. I also added this to water as you skin is great at absorbing things.
grapefruit seed extract - capsules - always take after eating food as I found when you dont you feel like chucking up or feel very nauseaus. I took 6 capsules 3 times a day. Again this removed the odour after about 40 minutes. I would especially take this when going out with friends to control the smell for a while. This is anti-bacterial and anti-fungal and works on many levels if taken long enough. Remeber everyones different. Works well with the butt plug.
chinese herbs - detoxing the liver works wonders to reduce underarm b.o, bowel odour and faecal odour. Find a good chinese reputable chinese herbalist. Also get them to get your bowel moving to empty bowels on a regular basis.
enema - helps to remove any waste sititing in the rectum which doent want to get out on its own.
Not to mention your basics. Drink lots of water and eat fibre. Porridge oats is good.
Try to avoid things that will put a strain on your liver. Alcohol (especially red wine for me), drugs and crappy junk food.
I am still experimenting with a few things. Dont worry things will change for the better for all of us in the long run. Just be patient sweetie and stay strong. Im still working on a cure and seem to get closer to it every day. I will keep in touch. Hope you will too if this works for you all.