I've never posted on this site but your post pulled at my heartstrings so much that I had to respond. I'm dealing with almost everything that you describe and have felt defeated so many times. When I feel this way I give myself a day of rest and dust myself off (literally) and get up and fight again. Research research research! We are a strong and intelligent species! We can figure this thing out. There is no way I'm letting some f***ing whack ass fiber take my life from me!
I believe this is something much greater than we all know. Call me crazy, but the more I research the more I think this little fiber could possibly be responsible for a lot of other diseases.
I'll post more when I have more time.
Hang in there! Fight!