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Re: Suffering from Folliculitis Decalvans, please help
Livehappy1985 Views: 2,718
Published: 6 years ago
This is a reply to # 2,214,280

Re: Suffering from Folliculitis Decalvans, please help

So I've suffered with foliculitis decalvans for about 15 years I'm 32 years old. At about 17 years I got a pimple that would itch and bleed if scratched at the crown of my head. I thought nothing of it continued to wash my hair daily and thought it was probably from surfing everyday and possibly the ocean with all its bacteria. It wasn't until about 2-3 years later when I noticed a small infection on my scalp probably the size of a pea that I went to urgent care to see what it was. They prescribed all types of ointments and it never fully went away so I went to my gp and he prescribed more topical stuff and still never really went away. with no luck I just continued to wash my hair daily in hopes it would go away I tried otc shampoos like selsen blue, head and shoulders etc...finally after about 5 years in I had a scar about the size of a quarter and tufts of hair emerging out. I figured it was time to go back to the dr this time he sent me to a dermatologist. The first dermatologist I saw prescribed more topical creams and ointments and told me it's probably because my hair is so thick and curly it's causing this infection. So again no luck with the topical solutions I went back throughout a course of about a year and still no luck with any medications prescribed. I decided to try a new dermatologist as my scar was starting to get bigger. The 2nd derm to look at my head instantly New what this condition was and labeled it tufted foliculitus aka dolls hair. He put me on a course of Antibiotics including rifampin and clyndamicin for 6 months. After treatment my scalp had cleared only to return about a year later. I let it slide for about a year and returned back to the derm after scar got bigger. He put me on another round of Antibiotics this time around I got c-diff and got extremely sick. After this I pretty much told myself I was done with Antibiotics and asked if there was another alternative treatment he told me there was but that this medicine had lots of harsh side effects he called it isotretinoine aka accutane. Before trying it I consulted my neighbor who is a world class eastern medicine practitioner. I asked him if he knew of any herbal remedies that might clear this up. So I tried some herbal medicine he put together and so no results. Long story short ended up going on accutane and saw no results after 6 months. Finally I was ready to give up and asked my derm if there was anything else anything I could do besides taking anymore medications. He recommended a bleach bath and then informed me there was a new shampoo out called CLN. I ordered this stuff about 2 weeks again and well within 3-4 days my scalp was practically cleared up. I see a lot of reviews of people saying it didn't work for them but I can attest that it worked for me. I will continue to use this shampoo. ThanksCLN

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