Re: vitamin D and sarcoidosis
Sorry you have not received a reply sooner. Sounds like you could have Sarcoidosis, did you test both Vitamin D Forms the inactive 25 Vitamin D and the active 1,25 Vitamin D(The Most important test the 1,25). Sounds like you just tested your inactive Vitamin D which is usually normal or low in Sarcoidosis, but the active 1,25 Vitamin D is usually high in people that are sick with Sarcoidosis. ***WARNING*** Vitamin D3 Supplements about killed me! There are some health conditions and diseases like SARCOIDOSIS that Vitamin D3 can make you very ill and even kill you by causing Sudden Cardiac Death. Most people do not know they have Sarcoidosis, if you have this and start taking D3 you could be in for One Hell of a Ride. I am 45 Male in decent Health, I started to exercise to improve my health and was making good gains and improvements as soon as I added D3 to my routine i started going downhill and having all sorts of problems. You will get a tight anxious feeling in chest, dry irritated lungs and throat irritation and eventually a constant anxious state of mind and body its a extremely miserable feeling hypervitaminosis d3 1,25, frequent urination to the point you know something is very wrong, twitching in facial muscles, ringing in ears, brain fog, upset stomach, belching, pain in stomach, fatigue immediately after eating and the worst is heart palpitations and very hard erratic PVC's the type that can cause Sudden Cardiac Death its a very scary feeling. I was taking at the most 2,500 IU a Day for 1 to 2 months and was basically at deaths door from taking this crap is it because I have Sarcoidosis, its very possible I have it but unfortunately very hard to get this disease diagnosed. THESE MANUFACTURES selling D3 need to have a WARNING on the label not to use this product if you have Auto immune disorder like SARCOIDOSIS. I was using different products like ProArgi-9, Natural Calm with D3, and regular D3 Supplements with the same symptoms. I have been getting several medical test, and one thing I learned is most doctors will ONLY test you for the INACTIVE form of D3 to tell if you are low or not, but for some certain conditions like SARCOIDOSIS you can be LOW on the inactive form of D3 that doctors test for but ACTUALLY BE HIGH on the ACTIVE form of D3 and no one will be aware of it. If you where to get a Big Dose of D3 like 50,000 IU it could cause Sudden Cardiac Death and kill you! BE VERY CAREFUL WITH THIS VITAMIN or HORMONE its the worst stuff I have ever taking in my life! THE REAL QUESTION is what is there active form of vitamin D 1,25-dihydroxyvitamin D (1,25(OH)2 D) Blood Level that unfortunately doctors are not testing for this. I am positive people are dropping dead from Vitamin D3 and are well under the 72pg/ml picogram per milliliter. According to very informative Sarcoidosis Websites 1,25 levels above 45pg/ml a person with Sarcoidosis can experience serious hypervitaminosis D symptoms. Since you have nodules you could get them biopsied and then be able to have a positive diagnosis of Sarcodosis. If you have SARCOIDOSIS taking Vitamin D3 Supplements could make your worst nightmares come true, be very careful with this stuff I am still recovering!