I see we all have same thoughts at the begining when this hellish condition pops out through the night,like - this is not happening, why am i being punished, i wonna kill myself...
the doctors dismissed me with - wash and you wont smell! (with dusguist in their tone).
But, dont despair, miracles happen and maybe one day it will be our turn - e.g. they discover a cure for this.
But i don't belive doctors think it's worth the trouble and costs afcourse, for couple of hundred people with this condition. Because it's not life threatening they think - imo