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Re: 3rd time
 
jsl123 Views: 5,490
Published: 11 y
 
This is a reply to # 2,112,962

Re: 3rd time


yeah i agree imuran is pretty much my last drug im going to throw at me for at least 2 or so years iv been through alot in the past 3 years and i know its definately not good for my longterm health...

lee's can i ask you a bunch of questions and then i wont hassle you anymore... its just so relieveing to actually talk to someone who has cured this and has actually had there lips back to normal..

1. with your ec did you also experience the forcyde spots? im trying to solve if they are part of the condition or not or if they just appear during ec due to irritation. one person claimed during healing their spots dissapeared.

2.did you ever experience this white line that forms especially during talking alot of the inner boareders of ec?

3.when you finally healed did you lips have one last peel and then that was it or did the ec area shrink or did you just wake up one morning and bang the irritation was gone the stinging inflammation etc etc was gone and you just knew your lips were back to normal?

4.do you experience this top middile triangular aera? were for some like myself ec first started to show its head.. and if so did you notice that the colour is darker underneath this part? and if you did, did the darkness dissapear once healed...

5.while with ec if i excercise or play sport i feel like the blood flow causes my lips to become more inflammed and almost like have a heavy pulse.

6.when you lips healed and went back to 100% flexibility.. do the lips heal back like a slight difference almost like a scar heals back or is it literally like you would think nothing was ever wrong with them?

7. my lips burn and sting.. did you experience this and if you did, did it all of a sudden stop at once when the peeling stopped orr? i expect my stinging pain is due to the lips being raw but even when i have build up on and there not fully raw they still sting?

8 moisturizing or leaveing them alone? dudring my treatment my drug is designed to suppress imuune system so slow down cell trun over and decrease inflammation due you think i should keep moist or leae alone. i worry that keeping moist makes the skin fall off and shed quicker then normal

i think that it if you could answer these question that would be great! i guess weve really not got to talk to anyone who has been fully cured before especially not once but twice... i cant believe the guys arent asking you hundreds of questions! i wonder if the condition is triggered by something... or if it is like an auto-immune and it can just come and go as it pleases and actually always sits idle in our bodies... i hope one day i can just have a break of it! its very tireing condition especially for young man like myself in our early 20's its taught me alot. and has defintely changed my views and thoughts on life... from a invinsible upcoming semi professional sports star to a ec suffer it brings you to the bottom of the barrels and test your self belief and endurance... im tired but not broken... if one can get rid of it that means it is cureable
 

 
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