Re: lets talk about daniel! (Peeling Lips Exfoliative Cheilitis) 8/15/2012 1974854

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Re: lets talk about daniel!

Peeling Lips Exfoliative Cheilitis

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jsl123 Views: 2,128
Published: 10 years ago

This is a reply to # 1,974,850

Re: lets talk about daniel!

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also i was wondering if anybody would be interested in finding a medical research clinic that would be happy to maybe try and investigate our condition. i would be more then happy to fly to any part of the world and would more then happy to pay 50% of the costs or what ever is involved.

i dont have a choice in life i must get rid of ec so i can move on with life i refuse to be told to just get on with it.

also i have rang and rang and rang this fkcuking hopsital and all tey say is your on the admin list it could be anyday just depends when a bed gets available im so angry its beyond me.

All of my messges on this board All of my messges anywhere

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Expand the next 20 of 41 messages

lets talk about daniel! jsl123 10 years ago 2,412
- in my opinion Daniel has a strict case of exfoliat... ryan34 10 years ago 2,559
  - I haven’t seen Daniel’s lips lately. Wasn’t his to... longterm 10 years ago 2,185
    - I agree with Ryan. So Ryan, What exactly are... Healing2021 10 years ago 2,249
      - Healing 2021, my doctors suggestions were protopic... ryan34 10 years ago 2,524
        
        Have you had a biopsy done? I think the combinatio... sirpreis 10 years ago 2,297
        
        Is there a compounding pharmacy in your area? Tha... brillig 10 years ago 2,363
        
        That would be great. I’m wondering what other natu... sirpreis 10 years ago 2,174
        
        It won’t sound paranoid at all, that is one of the... brillig 10 years ago 2,455
        
        I don’t live in the US (Germany), but ordered a pa... sirpreis 10 years ago 2,168
        
        It would be worth looking into how tacrolimus is a... brillig 10 years ago 2,449
        
        I hope that the pharmacist could help me with that... sirpreis 10 years ago 2,081
        
        Last week, I heard about a local compounding pharm... longterm 10 years ago 2,136
        
        Ryan, Why not just do what the doctor says? Usi... Healing2021 10 years ago 2,231
        
        By the way, I found out a lot of lip balms have hi... longterm 10 years ago 2,222
        
        Longterm,,,,,,, where is the hidden gluten in lip ... brillig 10 years ago 2,452
        
        I don’t know. I just read many lip balms may conta... longterm 10 years ago 2,195
        
        Um... how could you ”be careful” if you don’t know... brillig 10 years ago 2,457
        
        I do not consider gluten-free diet books or celiac... longterm 10 years ago 2,076
        
        You can’t see it, it’s hidden! ;-)) I think tha... sirpreis 10 years ago 2,178
        
        Expand the next 21 of 41 messages
        
        It is just like food that has hidden gluten ingred... longterm 10 years ago 2,185
        
        Do you have an example of a food that has hidden g... sirpreis 10 years ago 2,189
        
        There are examples of hidden ingredients you can f... longterm 10 years ago 2,249
        
        Do you have an example? I don’t have such a book. sirpreis 10 years ago 2,112
        
        There are many examples, but I did not write them ... longterm 10 years ago 2,049
        
        Yea, I know about those. At least where I live, th... sirpreis 10 years ago 2,120
        
        Well, oats is a good example of a product that mig... longterm 10 years ago 2,006
        
        ”Be aware of ingredients such as starch, modified ... longterm 10 years ago 2,124
        
        Yea, but if you want to eat gluten free, you would... sirpreis 10 years ago 2,121
        
        I have not started my gluten-free diet so I have n... longterm 10 years ago 2,098
        
        I’ve been on it for a few weeks, probably about a ... sirpreis 10 years ago 2,103
        
        If you have celiac disease, I read it can take up ... longterm 10 years ago 2,101
        
        Yea, but if I had celiac disease with a lot of dam... sirpreis 10 years ago 2,121
        
        Unfortunately, it doesn’t seem to be possible to g... sirpreis 10 years ago 1,998
- my opinion about daniel i remember in a post ... heavenlyhealing 10 years ago 2,357
  - heavenly do you reckon his intestine problem got b... jsl123 10 years ago 2,251
    - also i was wondering if anybody would be intereste... jsl123 10 years ago 2,128
      This is the position of the above message within the thread.
    - also this is not just a topical condition. sim... jsl123 10 years ago 2,156
      - healing2021 keep going strong! the longer the bett... jsl123 10 years ago 2,178
        
        I might want to add that I don’t get drunk THAT of... danielxmiller 10 years ago 2,384
        
        Yeah Daniel, I dont think drinking once a week ... Healing2021 10 years ago 2,323

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