We need to unite as one community

Hi all,

Hope you are doing well.

We are all on the same boat pondering why we have such a rare condition, which affects our daily life with what we do or who we interact with.

It's a difficult condition to cope with but with hope and faith it goes a long way.

Lets unite as one voice and raise concerns to push for funding in finding a cure to this disgusting disease.

For now live life to the fullest in anyway you can.

It's hard but a cure is on its way hopefully.

In the mean time I'm just following Maria's blogs on the latest updates. Mebo Research is the only charity that is pursuing for a cure with TMAU1/2

Cheers Tweet