Hi - Good to hear from you. I completely feel for you and the anxiety! UGH - it is horrible. I am having a rough month again. I had to go to the hospital over the Holiday b/c of severe facial swelling - It was for surely an allergy issue - although I didn't eat or take anything out of the norm. Finally when I went into urgent care I talked to a dr. who finally recognized that the mirena could do this to someone and she wants me to go see a specialist. She did some research and thinks that the synthetic progestin in Mirena may have triggered an allergy/autoimmune issue - she thinks I may have something similiar to Autoimmune Progesterone Dermatitis (APD) - basically I am allergic to my own progesterone. Right around day 12/13/14/15 (mid) of my cycle I start to experience ANXIETY, swelling specially in the face, facial redness/rash (feels extremely hot), red eyes, dry eyes, swollen eyes and eyelids, bowl issues, muscle tension, thickened mucus in lungs and sinuses etc. This lasts until about 4 days into my period - so basically I have one week out of the month when I feel almost 100% - and that is around day 5 - day 12. I am waiting to find out when I meet the specialist (who will probably be at Mayo Clinic) since it is very close to where I live. At this point I just want a diagnosis - I want someone to tell me what i have so i can concentrate on fixing it.
Thanks again for your post and hang in there - I'll keep you posted if / when I find anything more out.