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Re: Trimethylaminuria, Fish Malydor Syndrome, TMAU real life stories by sufferers.
mpdela Views: 3,626
Published: 13 years ago
This is a reply to # 1,300,124

Re: Trimethylaminuria, Fish Malydor Syndrome, TMAU real life stories by sufferers.

Hello Beautiful26,

Did you see the very informative interview on TMAU?  Vanita, a Member of the TMAU Foundation in the UK interviewed Dr. Robin Lachmann, PhD, MRCP, Consultant in Metabolic Medicine, National Hospital for Neurology and Neurosurgery in London, on November 13, 2008. He presents the latest ideas on this condition, the testing process for it in the UK, and its management.  I hope you find it helpful.

The Arkansas Children’s Hospital Lab is now accepting adult and children's urine samples for TMAU testing sent directly to them, as opposed to having to send them first to the Mayo Clinic. This must be collected through your Physician or a lab referred by a Physician. Any Physician can order this test by calling this number for additional instructions, at:

Metabolic Genetics Lab
Arkansas Children's Hospital

Certain insurance companies, like BC-BS, have paid for the test which currently costs $126.35. You may want to check with your insurance company to see if they will pay or how to appeal if denied. If denied PLEASE appeal - for everyone’s sake. The majority of appeals are usually approved, and by appealing, we are showing the demand for this test.




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