Re: Mirena to treat Endometriosis and Adenomyosis
Please seek another doctor. Adenomyosis is not something to mess around with.
No doctor should pressure you into making that decision for you.
A short history, I've battled Endo since the age of 15, I will soon be 35. I started my period at the age of 10 with heavy extremely painful periods, age 15 had my first of 7 laparascopies, at this point I was diagnosed with endometriosis and cysts and was told no children in my future. Age 21 I was conceived my son, with several miscarriages following, I am pleased to say I'm lucky to him he is my world. At one point I had a scope done for endo and three months later back in to have a grapefruit size ovarian cyst removed (odd too pain level was only 4-5, I thought I had a low tolerance for pain-Doctor and nurses expressed differently). Over the years the pain was consistant along with heavy flow and inconsistant periods. We tried lupron to put me thru menopause, BC pills, etc to stop the endo and pain-nothing worked. Two years ago, I started bleeding like I have never bled before, two weeks non stop, the doc put me on birth control pills (never used it before) one whole month I was to take in one week. It stopped for one day then back at it again, they took me in for a DNC, I had atypical precancerous cells. Doc put me on the pill to see if I would regulate, I stopped for one week, then back at it, I bled for another month, with nothing to make it stop, the doc did another scan and found I had adenomyosis, I was bleeding so heavy and clotting baseballs the doc insisted on a hysterectomy (this was heartbreaking, I still wanted more children). They couldn't schedule my appointment for 5 months, one month before my I ended up in the ER then admitted to the hospital for 4 days, blood pressure 70/40 and not a vein to be stuck. They put me on a steroid called Megace to stop the bleeding. Not only did it stop the bleeding it stopped the extreme pain-this to me was a MIRICALE PILL! I had the hysterectomy a month later it was the best thing I could have done- still slapping myself for wasting my life in pain for so many years! The only draw back...I didn't realize how much IBS (irritable bowel syndrome) effected my life. I was diagnosed with it about 6 or so years ago. I have intestinal pain (which could have easily been misconstrewed as endo pain) and have bouts of bloating...etc. But I have with diet learned to regulate it, if I screw up, I know I'm doomed. This may be something you want to check into as well.
I have done a lot of research for Adenomyosis and learned that if you do not want children and are not near menopause, a hysterectomy is the route to go. If you can withstand the symptoms until menopause then wait. If you have a choice, use it.
Here are some sites I found useful.
Oh...I forgot to mention, my adenomyosis infected uterus was the size of a 7 month pregnancy. YESÖthe hysterectomy was well worth it.
The reason Iím on this site and found your posting, a girlfriend had Marina IUD placed about 3 weeks ago and is a lot of pain. Her reasons for the IUD: heavy painful periods. She did not do a lot of research before she had it done, after sending this site to her, sheís kicking herself for making that decision. Kudoís to you for checking it out first.
Please seek a second opinion before you go thru with this doctor, as I said before, you should never feel pressured by a doctor!