Read your message. Please let me know if you have got new information since and what they are.
Through reading I have come across a number of things.
1. Some Exercise
2. Vitamin B12 sublingual under the tongue. 1000ug daily. Can start with 2000ug for the first week. It rehabilitates the neurons and helps with movement. ( surf the net for: ALS and vitamin B12.
3. No MSG. check food labels,canned, boxed etc.
4. Apples or apple juice daily. If eating is difficult, peel and steam. Can make your own concentrated dark red apple juice. Wash skin properly.
5. Good nutrition
6. Laughter or smile
7. Email Dr Ming (firstname.lastname@example.org)in China on their herbal teas for that purpose. He will prescribe according to the symptoms that the patient has. A 30 day supply can be around 250US or 140US etc, depending on what is recommended. They also advice if possible the massage and acupuncture.
Good luck all the way. Pray.