People on here are obsessed with hav... 
Healing2021
10 y
2,432
I have learned something crucial since I have had normal(ish) lips for the past year or so. EVERYONE'S LIPS ARE f***ED UP! My lips literally look better than 95% of the people I run in to, especially in the winter. Because I have had this obsession with my lips over the past 3 years, I look at everyones lips when I talk to them, and mine are better than 95% of them! Im dead serious! Half the people I talk to look like the have chapped crusty lips.
Which gets me to my point. People on here are stuck on having perfect lips, and don't seem like they will be happy until their lips are 100% flawless and 100% cured. Well Im sorry to say folks, but for most of us, THIS WILL NOT HAPPEN!
For instance, I saw that Daniel Miller posted a brand new picture of his lips a few weeks back. His lips looked PERFECT. Literally flawless. His lips are literally probably in the 98th percentile of lips in the WORLD. And some person posted under it saying something like, "Daniel, your lips look pretty good. The bottom looks OK but I cant really tell if the top is OK".
ARE YOU f***ING SERIOUS!? People, if you are not satisfied with having lips that look like Daniel Miller's currently look, EVEN with having to moisturize them daily, then you are OUT OF LUCK.
I think its time people on here started having rational expectations. You cannot complain and say that you would do anything to get rid of EC, but then complain that you don't want to put moisturizer on your lips, because its "too shiny". Yes, everyone would like to no have to use it, including me, but I have literally read of people not wanting to try the "moist healing" method because they don't want shiny lips.
Re-evaluate your expectations people. Because a lot of people on here have expectations that CAN NOT be met.
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- Re: People on here are obsessed with... Drewww
10 y
2,128
This is a reply to # 2,187,026I agree with you. I see people's lips all the time that don't look anywhere near perfect. I'm doing moist healing, and need to be open to the fact that my lips may never look perfect. They also most likely weren't perfect before I got this. By the way, are you pretty much in the same boat that Daniel is? In other words, no crusts forming, but slightly dry lips every day?
- Re: People on here are obsessed with... longterm
10 y
2,092
This is a reply to # 2,187,050I don't think he gets the white line, which is the most troublesome part?
- Re: People on here are obsessed with... sirpreis
10 y
2,119
This is a reply to # 2,187,058I'd like to have EC where a white line is the most troublesome part :)
- Re: People on here are obsessed with... Drewww
10 y
2,146
This is a reply to # 2,187,058I can't speak for everyone else, but I only get the white line when I wake up. It doesn't bother me too much. I just hate the crusts that keep growing.
- Re: People on here are obsessed with... longterm
10 y
2,055
This is a reply to # 2,187,101This says a lot. What I mean is I wonder if some people just get the white line because they breathe through their mouth all day, but I know people get it for other reasons and have to deal with it all day long.
"I get some white gunky stuff if I've got a blocked nose and have to sleep with my mouth open to breathe."
http://forums.digitalspy.co.uk/showthread.php?t=1266371- Re: People on here are obsessed with... jsl123
10 y
2,208
This is a reply to # 2,187,116yes of course thats easy to say healing when you have stated your lips no longer peel and aernt to inflammed and your pratically cured.. for other that have inflammed lips and still suffer from the white line of slosh which makes it impossible to smile and very difficult to eat is a whole different story... i fully agree i have also began to try not obsess and same does it works majic when my lips are ok but other days when the white line is chronic and you have a date with a girl or going to hang with some mates the last thing you want is white junk all on the insides of your lips.. the white line is what causes ec.. if you look its actually the position that keeps pushing out over and over and produces the stuff daily.... get that under control or stop it the lips would stop peeling! anyways good to hear from you bro!
- Re: People on here are obsessed with... jsl123
10 y
2,208
- Re: People on here are obsessed with... longterm
10 y
2,055
- Re: People on here are obsessed with... sirpreis
10 y
2,119
- Re: People on here are obsessed with... longterm
10 y
2,092
- Re: People on here are obsessed with... palacima
10 y
2,023
This is a reply to # 2,187,026I actually don't agree that our lips look as good as everyone else's. Our lips are actually quite bad relative to other people's, even after we have exfoliated. I agree, however, that we need to walk with more confidence and not be obsessed with the fact that other people have normal lips. We especially need to accept that people may react to our lips because they sense that something is wrong with us, even if they are not consciously aware of it. Good luck and stay strong.
- Re: People on here are obsessed with... longterm
10 y
1,966
MoreThis is a reply to # 2,187,383Some people have lost their jobs due to their lips not looking normal to customers.
- Re: People on here are obsessed with... palacima
10 y
1,968
This is a reply to # 2,187,393I don't know if this is in response to me or not, but I wasn't suggesting that people can't ever tell that something is wrong with our lips. People have reacted to my unsightly lips on plenty of occasions. That's one of the reasons that my self-esteem is so abnormally low. However, if we exfoliate and constantly try to conceal the condition, most people don't know that we have a disease. That's all I was trying to say.
Although the assertion that people have lost their jobs due to having unsightly lips seems perfectly plausible to me, how did you find this out? Perhaps these people tried to go out in public w/o exfoliating and/or while using topical medication. I actually did this around the time I first got the condition. All I can say is thank gosh I worked second shift in a small social services agency because it was pretty. I don't have the courage to do it again.
- Re: People on here are obsessed with... palacima
10 y
1,968
- Re: People on here are obsessed with... longterm
10 y
1,966
- Re: People on here are obsessed with... finding a cure
10 y
2,079
This is a reply to # 2,187,026Yeah that was me that made that comment. I think when you take a picture with your lips together it's harder to tell some of the rawer parts because the insides of people's lips are usually where most of EC is noticeable. But it doesn't seem like Daniel in earlier photographs had severe damage in the upper lip triangle in the center that others with EC like myself have. He did make a comment saying he uses chap stick all day. His EC might return if he stops using it, but I guess will never know because I doubt Daniel would want to stop using chap stick. I've been leaving my lips alone for a while, and when you leave them alone with EC the lips are going to peel and that is far from normal looking. I want to eliminate the possibility of my method not working before applying something like Aquaphor healing ointment and go the route that Daniel has gone. But it seems from reading the forum that a lot of people who have used Aquaphor said it didn't do anything for them. I think my specific method of leaving them alone is working and progressing however so I am going to continue to do it until I can completely rule it out. Because if I decided to use aquaphor and other lip products all day to make my EC manageable then I believe it would negate all the work I've done up until this point with my specific method of leave alone.
- Re: People on here are obsessed with... moleybear1222
10 y
2,077
This is a reply to # 2,187,402Its not aquaphor thats healing the lips its keeping that constant barrier on your lips where the build-up usually occurs.
- Re: People on here are obsessed with... Healing2021
10 y
1,988
This is a reply to # 2,187,594People are completely misunderstanding my point. I am not saying that people who have EC have normal lips. Its pretty obvious that EC lips are not normal.
I am saying that I think that people on here have become so obsessed with their lips, and healing their lips, that they wont be happy unless their lips are 100% perfect. And Im saying that most people in real life don't have 100% perfect lips, so people's expectations on here are way too high.
I saw people commenting on Daniel Millers' picture, saying that his lips looked "OK". Im sorry but if his lips just look "OK" to you, then you are shit out of luck. Because his lips look better than 95% of the world.
My point is that its about time that people started tempering their expectations. Most of us may never have 100% healed/normal lips, including me. Im not saying there is anything wrong with trying your hardest to achieve it (like I still am) but Im saying that, if you cannot be happy with lips that look like Daniels or mine, just because you have to put chapstick on or something, then your lips aren't the real problem. Its being obsessed with having perfect lips that is your problem.- Re: People on here are obsessed with... longterm
10 y
1,803
This is a reply to # 2,188,205Did the dermatologists in training look at your lips like they looked normal at the rounds event?
- Re: People on here are obsessed with... Healing2021
10 y
1,885
This is a reply to # 2,188,404When I went to the rounds event I still had full blown EC. And I was leaving my lips alone at the time, so they were covered in crust.
Like I said, I am not saying that EC lips look like normal lips, if that is what you are trying to get at.- Re: People on here are obsessed with... longterm
10 y
1,826
This is a reply to # 2,188,415Just saying many EC sufferers still get that white line when they moisturize their lips. It's not chapped lips others judge, it's the white line or crap on lips, which is comparable to crusty lips.
- Re: People on here are obsessed with... Healing2021
10 y
1,929
This is a reply to # 2,188,434I know longterm.
Like I said, and have now repeated plenty of times, I AM NOT saying that EC lips are like normal lips. I am saying that not everybody in the world has perfect lips, so if someone cannot be satisfied with lips like Daniel Miller's then they will not be happy because his lips look better than 95% of the population.
Meaning I AM NOT talking at all about people's lips while they have full blown EC. I am talking about peoples' expectations of their lips.
Not sure how else I can put it, sorry.- Re: People on here are obsessed with... longterm
10 y
1,770
This is a reply to # 2,188,453I think most people here thought Daniel's lips looked good in the photos or would be happy to have his lips.
- Re: People on here are obsessed with... palacima
10 y
1,808
This is a reply to # 2,188,454I personally think that he takes photos after exfoliating, which makes his lips appear halfway normal. I have done the same. Leave your lips alone totally and dunk them in water and then snap a photo and tell me if he is cured.
- Re: People on here are obsessed with... palacima
10 y
1,808
- Re: People on here are obsessed with... finding a cure
10 y
1,761
This is a reply to # 2,188,453Hi Healing,
I was wondering what your timeline has been like with EC. When did you get it, what have you tried in chronological order. I noticed in some of your previous posts you tried moist healing like daniel with Aquaphor healing ointment. I'm assuming that didn't work. It seems like that was the main reason for success with Daniel's lips. In Daniel's previous pictures I don't think he had the upper lip raw triangle that many EC sufferers have. I've been leaving my lips alone and that is the hardest part to notice any sort of improvement. I'm curious as to why Daniel has used aquaphor and it's helped him and it hasn't helped others.
I can't completely tell if Daniel's lips are healed and it was my comment you were referring to in your original post. It's not that I wouldn't necessarily be satisfied with my lips looking like Daniel's in the picture even with constant moisturizing. It's more that if I start using Aquaphor now I'm afraid any progress that I may have gained leaving my lips alone will be lost once I shift to using Aquaphor. And aquaphor may not be a full time solution. So currently I want to stick it out with leaving it alone until I have deemed that it will not 100% work. But it is tough because I believe I have seen progress using a slightly varied leave alone and so it would be tough to switch. But my confidence in this leave alone method wavers constantly.
- Re: People on here are obsessed with... longterm
10 y
1,770
- Re: People on here are obsessed with... Healing2021
10 y
1,929
- Re: People on here are obsessed with... longterm
10 y
1,826
- Re: People on here are obsessed with... Healing2021
10 y
1,885
- Re: People on here are obsessed with... longterm
10 y
1,803
- Re: People on here are obsessed with... Healing2021
10 y
1,988
- Re: People on here are obsessed with... moleybear1222
10 y
2,077
- Re: People on here are obsessed with... palacima
10 y
1,777
This is a reply to # 2,187,026I agree with the gist of this. We are obsessed with lips; not just our own, but others.' We have to accept that this is a chronic attitude. This attitude of "not taking this shit" to the grave is actually harming some of us, both physically and mentally. I'm trying my best our their in the world, but man oh god how am I struggling with eating in public, especially outside in the sun or in well-lit restaurants.
- Re: People on here are obsessed with... Drewww
10 y
2,128
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