You're definitely not alone.... i was passing those things for ages and heaps of them.... some people think their morgellons.. I really don't know...

I am hopefully responding to "usedtobemor"'s message concerning her much improved outlook on her (insert explicitive") husband's reaction to this horrific condition.
I have recently experienced what I now know is an undiagnosed and horrific disease that is driving me CRAZY! However, I think I am a little better prepared than most because I already have a medical condition that doesn't fit into a "diagnosis".
My background: In 2007 I had ANOTHER laparoscopy and this time, my doctor implanted a "mesh lining" because my uterus had attached to my c-section scar from the birth of my son in 2005. My history with pain and menstrual issues led to my first diagnosis of endometriosis, which can only be verified with surgery. So, what was supposed to be a routine procedure has instead been a daily battle. When my doctor made his way to me after my surgery, he advised me I should no longer have any problems now that the mesh was implanted, separating my uterus from my scar. I can only imagine what my face must've looked like because I was just dumbfounded! It was like the 14 years of pain and constant menstruaton no longer existed and all will be cured by this magical mesh lining! But, what can you do? I thought, well at least it should help with the pain, right? Oh, how ignorant we can be when we want to believe. September 21, 2007 was my last day to be excruciating pain free! I went to everywhere trying to figure out what was causing this pain that was constant and worse than my 26 hour labor, including the Mayo Clinic, and the best answer I received was that the mesh lining was causing sores, even more scar tissue than I previously had, and because I still had endometriosis along with POCS my nervous system was now confused and wouldn't stop sending pain signals to my brain. Like they had no shut off valve. So, here I am, at the time a 29 year old new mom that appeared physically fine, constantly curled up in a fetal position in my bed with a heating pad, my medication and using every bit of strength to keep from screaming out in agony. I was finally able to find a doctor that not only understood my condition, she was familiar with it! (Apparently Mayo had some prior knowledge of the damage mesh linings were causing because they came to the exact same conclusion by the end of my general physician visit, but their plan of treatment included a colostomy bag and giving up the use of my legs). However, since there still was no actual diagnosis for my condition, after each of my doctors visits (which my husband never had time to attend), I would get yelled at because of how much MY condition effected him and he was tired of these ignorant doctors not know what they were talking about. And how I needed to figure out another avenue to "cure" me. I guess though in a lot of ways, he did me a favor. By pi$$ing me off so much my anger was stronger than I'd allow my pain to be and I learned how to push through it when I could, and how to manage it as best it can be managed, and became happily divorced. Of course, I'm sure most of you are aware that about 6 years after my surgery, when someone asks about my medical condition, all I have to do is mention "mesh lining" and it's like they immediately understand! Even though that's only a small part of my condition, I don't even go there. I'm just happy I no longer have to give a seminar on the nervous system and pain everytime someone is curious about my condition. And I now have a very loving, understanding, helpful and supportive husband that goes with me to each doctors visit and tries his best to understand how much effort it takes to show the world and especially my son that I can handle this. Well, that is up until about 2 1/2 months ago.
I woke up one morning with one very LARGE swollen bump on my face, accompanied by about 4 or 5 smaller bumps. It was hard to tell since it looked like I tried to shove a baseball under my eye! I assumed I was having some type of allergic reaction at first, but then when the swelling subsided, I could see 3 seperate sets of bite marks around my largest bump. Initially I thought MRSA. I'd had it once before and it wasn't much different, other than I'd never experienced six occurring all at the same time, all uniform size, except one that was 8 times larger than any others. So, then I thought it was just the worst cyst I've ever had since I first got them at 19 and only recently concluded the cause of them was an allergy to fleas. So that was all but scratched off the list since I had only had maybe two in the last year and a half since we made that discovery. So.....what was causing these horrible large cysts that weren't going away, they couldn't be popped and they had these weird white tags way down inside them stuck to my flesh? Then, one day, about a week after they appeared, the largest bumps scab came off and I could see what appeared to be necrotic tissue. So, I just knew that it was another brown recluse bite and for some reason the other sites had to be connected, or wait, maybe those were cysts because of my allergy and this one was a spider bite! And the species of spiders that's known to be fearful of humans, just happened to bite me 3 times in the same area! So, I went to the doctor. Sure enough, it was a bite from a brown recluse. Nevemind they did zero testing on the tissue, they just prescribed the standard Antibiotic and sent me on my way. Of course, two days later I was back in the same doctors office since, the appropriate Antibiotic was related to pennisuluan which I'm very allergic to. My good friend thankfully was worried enough to come check on me to find that I was so lethargic I wasn't able to stand amd took me to yet another local physician that again agreed I was bit by a brown recluse.
However. these other lesions/bumps were just too much of an abnormality for me to ignore. I did quite a bit of research and finally found an article on a clinical study done by the University of Texas explaining that the venom of a spider bite CAN spread when the site doesn't have any/much fatty tissue to absorb the venom. And two days later when all of these white sac looking things started coming out of my pores, well I found an explanation for that as well. That was my body producing collegian to wrap up the venom to prevent spreading/contamination. And then when they spider web looking threads started coming out along with the sacs, well that was just my left over collagen! Now the last few rationalizations were done all by myself. I coudn't find anything anywhere to medically support my theory, but I had no desire of history repeating itself. I dangerously ignored logic and made up my own answers when my husband questioned my theory. I even told him that it was probably because the spider venom contained the fibers they use to make their webs, and quickly return my head into the sand.
Fortunately, I have an awesome husband now that was concerned and he decided to do some research on his own. A few days later, he brought me home an article he had printed out at work. It was concerning a disease called Morgellans! Unfortunately, this article came on the same day I blew my nose and noticed there was an entire bug on my tissue! I could not believe it! While I've had a bug or two fly up my nose, blowing one out of my nose, well that was a little bit different. And this was after the other different, unexplainable, multiple oddities were being pulled from not only the bumps, but out of all my facial pores! But, I went with it. I was good, it was Morgellans and it was going to go away on it's own and soon. It just had to!
I'm sure you know what's coming next, right? Yep, more bugs blown out my nose, more fibers, more threads. I think I came up with at least 3 more diagnosis after Morgellans until finally, two nights ago, I was trying to put some make up on to cover up some of the damage so we could go out for a nice family dinner when what happens? A black half larvae/half bug pushes itself right on out of a pore on my face! I instinctively put my hand up and caught it before it fell to the ground. And there in my hand was this wiggling, disgusting nastiest whatever the heck it was, I have ever seen in my life! I immediately instinctively slice it in half with my thumbnail and killed it. When we went to look at it through a magnifiying glass, we could see a clear wing with black webbing in it and it's guts gooshed out on my finger! So, I am no longer in denial that I have something that thinks it's alright to take over my body and use it as a human incubator as well as what can only be this new disease called Morgellans that most doctors apparently still believe is psychological? And in my small town, I guarantee you won't find a single one that would ever admit it even if he did believe there was even some truth to it. I drive over 2 hours to see my doctor for my other condition, and I'm sure you understand why it's worth it after reading my medical background!
So, right now, I'm up all night looking into ways to kill these things and do whatever it takes to get rid of all that I can!
I just started my third cycle two days ago and I'm once again back to obsessively trying to get these things OUT of my skin! However, as soon as I am done with this post, I am going to apply the 6 different products I purchased and start going through them one by one to get rid of as many as I can!!
But, I felt it was important to first take the time and say THANK YOU to all of you that have shared your story. Especially the person I mentioned above. Because I want you to know that I can relate to what you went through. I'm sure you were mild compared to the truth of the hurtful words and actions that you really lived daily, just as I was. I know the impact it has. And I know the strength it took to get to the place you're at and I want to say that you are awesome! And thank you for sharing your story. You inspired me to stop feeling sorry for myself, get back on that horse and tackle this B like I know I can!
I know my post was a long one. But hopefully if even just one person reads it and it helps, then it was worth my time!

Hi,

i know the feeling of people thinking you are crazy which just adds to this illness. My problem started around 2004 and really became a issue in 2007. I have studied so much Biology, fungus, bactiria, gnats and parasites to actually have a clue on what is going on. It's to long to type with my 2 thumbs on a Cell Phone but I can tell you there is answers and real reasons all this is happening so there is hope.

I can tell you it is a parasite Infection in the GI track that moves anywhere in the body it wants like your skin. The gnats are attracted to use because they see so UV light which these Nematodes are seen. There is real studies done about roundworms and gnats, they eat parasite eggs which are just under the skin and thats why you can feel a sting now and then from them pulling it out. There in in-depth detail about it but too long to type.

It took until this year for my entire family and doctors to believe in my and try and get the right meds for me. We have just been unable to identify what roundworm it ia because the labs suck.

If we were a 3rd world country your avg Doctor would know exactly what's going on but most Doctors haven't seen this or treat the symptoms and not consider anything but bactiria or a fungus infection.

I have taken my sample to my doctor and record everything on video and was able prove it. I went as far as take a sample to a Vet and he knew right away what it was, he said it's a roundworm infection commonly seen in cattle. He then asked where I got it and I was so excited to have a answer I told him it was from myself. He said he doesn't treat people but for me to go home and look up roundworms/hookworms. I mentioned Ascaris and he said as he was shaking his head yes that I need a doctor for people to answer that and asked why I would think that. I just said after looking at thousands of pics it looks like that. I mentioned the skin issues and gnats and he said yes that happens in cattle and horses too.

I finally have Validation and that was the biggest thing to me and now I am going to have a colonoscopy April first of all days and my doctor is doing all he can and said we will keep running whatever test we can think of to find out.

It's still a up hill battle but I am finally not going it alone. I have gone to the urologist who happen to work overseas and has seen parasite infections and after everything I showed him he called up my PCP and they have been working together to try and figure it out. My doctors first treatment with Albendozal didn't work so he wants to wait to find the exact treatment so I don't destroy my liver and kidneys. Albendozal is used for it but parasites in cattle have been able to survive it so even though it's the most commonly used anti parasite drug used, it's not always effective. Nematode is a Greek word for small gray hair and if you get out a black light or woods lamp you will see this stuff in your skin and all over the house. They live in water and you plumming and will survive in your tolit so keep everything clean and learn how to kill it in your yard, car and house.

Good luck and message me if you have questions.

Hi i've had the same thing it's not morgellions-yet. But it is one of the many things leading to it i found they hate tea-tree oil, epson salts and any alkline products i found a hot bath with soluble tea tree oil and half a small box of epson salts will make them want to leave get the ph of the bath 7-8.5 works good as well as internal treatment to raise body ph i ate more garlic(they hate that if your game to put that in a bath) hot spicy foods and i had a shot or two of apple cider vineger every day. The bath will make them want to go deeper into the body but with internal treatmeants the is only two ways for them to get out so i found if you alkinise your body they will want to go as much as you want them gone that parasite delusion thing is B.S. and i will go to any doctor and say it as these things shoot small fibres all over his desk they are a geniticly modified nematode parasite developed for pest control for the cotton industry but they seem to like people and animals better. If you want to know more just ask i spent weeks online looking into these things after a doctor didn't believe me and i'm almost rid of them. It not a delusion when they come out your skin in the bath.