Getting well 
Muchbetter
17 y
4,795
Hi all,
I want to give you all some hope. Yes, I too had MCS. HAD, as in the past. It is possible to get through this. Yes, I was hopeless and desperate. Yes, I felt totally isolated and alone.
But this is all behind me now. I am well. I went to a psychologist who does neurofeedback. Neurofeedback helps to balance the brainwave patterns. People with MCS have very high beta waves. The delta waves represent deep sleep, theta waves represent ligher sleep, alpha waves represent meditative states or drowsiness states, and beta waves are the fully awake and alert states. (These are overgeneralizations but you get the idea.) There are several levels of beta waves. The higher the level the more anxious the person is. With MCS people present with higher levels of beta waves . The high beta waves then send messages to the mind that the situation presented is dangerous and as a result the mind then triggers various things to happen in the body ... (such as increases in certain hormones, heart rate, blood pressure etc.) By reducing the higher beta waves the anxiety levels come down and the body is given the message that everything is safe. The anxiety state that drives all of the negative effects in the body ceases and the body returns to a more balance state.
People with higher beta waves condition more quickly than people with low beta waves. What does this mean? By being around X smell, if your beta waves are low, you will not have a reaction. But, if your beta waves are higher, you would. MSC, from this standpoint, is a conditioned response.
Doing the neurofeedback is just one part of the treatment. Another part is doing diaphragmatic breathing. People with MCS typically breathe from their chest, not diaphram. (Check out your breathing right now. Put one hand on your chest, another on your stomach area. Take a deep breath. Which hand is pushed forward - the one on your chest or the one on your stomach? ) As a result the breathing is shallow and there is a CO2/O2 imbalance in the brain which causes imbalances in the body such as a hyperacidic state, tight muscles, indigestion, sleep problems, panic attacks, anxiety, heart palpitations, etc, etc etc. I did diaphragmatic breathing for 30 min twice a day.
Are your hand cold or warm? Cold hands generally indicate that your beta waves are running higher than they should be . A calmer state would produce a more balanced blood flow into your hands.
The third part of this treatment is cognitive therapy. It is extremely important for the neurofeedback to work that the person stop catastophizing (this increases beta waves) and becomes more positive thinking. The thinking will impact the beta waves. So when you think unpleasant thoughts, your beta waves go up. Calm, positive thoughts bring the beta waves down. If you frequently think negatively , this will cause the beta waves to predominately be high much of the time.
As part of my healing I distanced myself from others with MCS. The beliefs did not help me, nor did any of the books, newsletters or other readings which reinforced the MCS beliefs.
I also know of people who have gotten well from MCS by doing Neuromodulation Technique, which is an energy based treatment, NAIT, another energy based treatmen, Allergy Antidotes, yet another energy based treatment.
Of course it is helpful to address whatever other imbalances that are going on in your body.
I hope this helps some people. Stay positive. It is possible to get well.
Muchbetter!- Re: Getting well #28627
17 y
4,329
This is a reply to # 1,023,226So glad to hear that this person has felt some kind of relief from the symptoms of their "disorder"... but AARRGGHH!! While reading this post...it is also apparent that this person has asked for INPUT from the curezone MCS community about cat litter. If this person is "well" or even "much better" why seek input from the community they have "shunned" or "disengaged themselves" from? Also, it seems that the person has confused CHEMOPHOBIA for MCS, because MCS is not an "anxiety" attack and neither is it a psychological reaction to a "perceived" danger, and it is not the ungrounded/unfounded "FEAR of chemicals". The medical, and scientific fields have confirmed time and again that toxic chemicals and their fumes and food additives and pharmaceuticals cause physical bodily injuries and even death. It does not matter if you are "prayed up", it doesn't matter if you are the healthiest person on the planet. It is PHYSICS - the human body was not created to withstand these synthetic toxic substances without being harmed or killed. Burned airways, heavy metal poisoning, toxic overload, toxic-induced loss of tolerance, chemical injuries, cancers, aplastic anemia, etc. will not be "cured" by psychological or "energy" therapies such as NMT, NAET, NF... Insights into coping mechanisms while enduring the injuries might be gained, but the FALSE "HOPE" that is offered by this post is in, of all things, the psychological field! How demeaning to the MCS Community that has worked so hard to get out from under the "psychobabble" that MCS is a psychological disorder all these years - just like the people with MS had to work so hard for so many years before it became acknowledged that MS is not a psychological disorder! It appears that this person has believed the LIE - that human beings (or ANY LIFE for that matter) can continue to expose themselves to toxic chemicals, food additives , heavy metals, and pharmaceuticals without being adversely affected with injury, illness, or death. What kind of AGENDA is being promoted? The kind that would tell a person who is allergic to peanuts to go ahead and eat peanuts because the peanuts won't hurt them - that anaphylactic shock is all in their mind? The kind of agenda that says to people who have chemical sensitivities to go ahead and expose themselves to these toxins because they won't hurt them - that the adverse effects are all in their mind? Psychological therapy does not change or fix GENETICS - even the scientific community says that about 10% of Caucasians cannot metabolize xenobiotics, pharmaceuticals, etc. The HOPE is that through EDUCATION humanity will stop creating and using these synthetic toxic substances. Until such time, avoidance (as much as possible) of the toxic substances, detox and cleansing, rebuilding and supporting our immune systems, fresh air (as much as possible), eating the least toxic foods, and knowledge are important in getting through it all.
- Re: Getting well Muchbetter
17 y
4,292
This is a reply to # 1,030,669I will respond to this email. Yes I asked about issues around products to remove cat pee smells from carpet...mostly because my husband is fearful of the mcs returning as a result of a kitty accident and using something that would cause the whole thing to start up again. HE is fearful. I am not. I asked this community because of that. He does not want me to get another cat because of his fear. I do want a cat and so am committed to finding a way that will appease his fear.
Now, you can see why I don't want to have my email available to this community because I don't want to be on the receiving end of these sorts of rantings. Also you can now see why I have been reluctant to put this story out there, however I felt that I wanted others to hear options.
If all of what I said is "psychobabble" then why is it that many people , having been treated with the protocol that I outlined, are now well? I can be around perfume and am fine, I can eat out in a restaurant and am fine, I can go to full day lectures and workshops with many other women and am fine, I can go into stores and am fine. Can you do these things? I was not able to do this when I was sick. If this is "psychobabble" then why is that true?
Also why is it true then that the neurofeedback can show at baseline how the nervous system is OUT OF BALANCE and then after doing diaphragmatic breathing for 20 minutes how the system becomes more balanced? That is objective data.
The kinds of things in your post are the exact thoughts that create higher beta waves as demonstated objectively using the neurofeedback tracings. Anger, resentment, fear...all of that causes higher beta waves and sets up the body for a reaction.
Try getting over your anger and open your mind up to other ways of thinking. If this makes you angry that is your choice.- Re: Getting well #28627
17 y
4,368
This is a reply to # 1,030,685"For God does not give us a spirit of fear, but of power, and of love, and of a sound mind." "Knowledge of the truth shall set you free."
My mind is open to knowledge of the truth and not to every whim of man.
People who, seeing the warnings and knowing the consequences, choose to believe the UNTRUTH that continued exposure to toxic chemicals will not hurt them, reveals how entrenched and addicted people are.
When the manufacturers of these toxic products themselves put WARNING labels on some of these products saying they can cause illness, injury, and yes even death, it is the manufacturers telling the truth about their products. When the pharmaceutical industry puts warning info in their packets, that say their products can cause side effects, injury, illness, and even death it is the pharmaceutical industry telling the truth about their product. When the food manufacturers put warning labels that what is in their foods may cause injury, illness, allergic reaction including death, it is the food manufacturers telling people what may happen if people use their products. When chemical manufacturers make MSDS sheets about their products that declare their products are known to cause cancer, SENSITIVITIES, injury, illness, etc. the manufacturer is telling people what may happen upon exposure to that product.
ALL TELLING PEOPLE THE TRUTH ABOUT THEIR PRODUCTS!
Do people think those manufacturers are lying? It is not out of fear that people should avoid these products, it is following the advice of their own sound mind which has acquired the knowledge of the truth from the warnings provided by the manufacturers themselves as well as the knowledge of what has happened to people who have used and continue to use the products, and by information provided by the NIH, WHO, INTOX, INCHEM.
It is not me promoting fear, but it IS me who is telling people to HEED THE WARNINGS the manufacturers are providing outright. It is me who promotes Dr. Hulda Clark 's and so many others' books who recommend not using these toxic products and avoid them as much as possible because they are detrimental to a person's good health. It seems that your husband genuinely cares about your continued good health and is not just acting out of fear - like the caregiver of a person who is allergic to peanuts is dilligent about that person not being exposed to peanuts, avoidance of the peanuts to keep them from experiencing serious adverse effects from that exposure to peanuts.
Why would a person of sound mind WANT to subject themselves to the kinds of adverse effects and reactions these products are known to cause - whether the adverse effects and reactions are immediate or whether they happen later on down the road?
Why would a person of sound mind WANT to support the manufacturers of products intentionally made to kill - such as chlorine - which was created and used in the world wars to kill people.
Why would a person of sound mind promote the lie that MCS is caused by and is solely a psychological problem when it is more likely the case that the chemical/heavy metal exposure is the cause of a psychological problem? Some products were created to alter human neurological and psychological behavior. Just look at the TV ads for them. The users can't even function normally because all they want to do is inhale the product - and that is not even people who have MCS! There again, the manufacturers showing you what their products can do to people.
There IS such a thing as Toxic Inhalation Injury!
Why would a person of sound mind be "happy" that they "get" to go shopping in a mall or store where their mind intentionally gets altered by the inhaled chemical products, etc.; or "gets" to go out to eat in a restaurant that cooks with GAS and that serves food full of unhealthy additives, etc.; or "gets" to go to a church where the mind gets altered by highly scented candles and mineral spirits, etc.?
Why aren't people "happy" anymore without those "things"?
Why aren't people "happy" with the natural?
Why isn't the natural "good enough" anymore?
As far as the people who got "well" from the NF, NAET, etc. Maybe they were at a stage of MCS where it was still reversible. It is unknown what symptoms they were "cured" of: Severe Migraines? Facial Swelling? Paralysis? Unable to hold down food? Tremors? Seizures? Cancers? Aplastic Anemia? Metallosis? Asthma? Skin Problems?Diabetes? food allergies ? Inflammation? Hallucinations? Catatonia? Anxiety? Liver Damage? Brain Damage? Lung Damage? Heart Damage? Chemically-Acquired Immune Dysfunction? Neuromuscular Disorder? - Re: Getting well #28627
17 y
4,252
This is a reply to # 1,030,685MuchBetter, Well, since you did not address me when replying that you did not mean to suggest that MCS was only a psychological disorder and lashed out at me as if my anger is a bad thing, I am posting these experts' statements explaining that all anger is not "bad".
"Ideally, good anger was a sense given to an individual as a tool to condemn injustice and help build relationships. In pure form, anger is an emotional signal that alerts a person that something needs to be changed. It obviously was intended to be a positive motivator to be used in giving one another feedback about how life can be lived more productively. Unhealthy behavior must be understood and realized that it has consequences. Unhealthy behavior can be changed... it must be changed, or there can be no hope for a healthier society in the future. To do nothing but complain will surely leave people unprepared to respond to the challenges the future will bring.
Anger can cause conflict and conflict is a normal part of relationships.
Anger can provide an opportunity for a better understanding of another person.
When someone cares enough to take the time to resolve a conflict, that person demonstrates caring. Conflicts can occur because of the differences between individuals. Relationships do not have to be destroyed because of those differences. Rather, recognizing the differences and viewing them in mature, responsible, positive ways instead of being fearful or unwilling to work through differences gives credence to the positive side of anger. Every person must learn to recognize the positive and negative effects of anger. Few people take the time to observe their actions when under stress or when their behavior is openly challenged. "
" Being angry is a necessary emotion and reaction. As with many emotions God has given us, it is used to accomplish something. "
From Me:
I am not resentful that MuchBetter is better, I said I was glad didn't I? I sincerely meant that! I am better than when I first got sick also, but to suggest that MCS is all psychological and has only been cured by psychological therapies is not acknowledging that the whole person needs to be addressed.
By the way, just like all human beings, I do get angry. The kind of angry I get is the same kind as Christ was when he threw the moneychangers out of the temple for ripping the people off. The kind of anger that pushes me to hopefully spur people to think for themselves and to take action where their health is concerned. Things do need to change when manufacturers can take an otherwise harmless statement like "I get to use and expose myself to these products now and I am okay" which actually furthers the manufacturers own moneymaking agenda. At the same time they are insinuating that something must be mentally wrong with a person who has MCS, since they can't tolerate their products, so they should seek help only from a psychiatrist or psychologist because theirs are the only therapies that cure MCS, when in fact these manufacturers themselves state the adverse physical health effects and even death these products can cause - especially to that 10% of the people who cannot metabolize them due to genetics - but people just don't heed the warnings.- Re: Getting well Muchbetter
17 y
4,244
This is a reply to # 1,031,118Let me be clear. I did not suggest that MCS is "all psychological". Nor did I suggest that it has been cured by "psychological therapies". Neurofeedback is not a psychological therapy. Diaphragmatic breathing is not a psychological therapy.I also stated that imbalances in the body such as nutritional imbalances , hormonal imbalances, etc. needed to be addressed.
When someone gets an antiseizure drug , their brainwave patterns are changed. When someone gets neurofeedback, their brainwave patterns are changed. These are physiological changes in the brain which are identified via objective testing. One tool is medication, another is neurofeedback. Both have the same resulting effect. Changed brainwaves.
Another way to change brainwaves (although it takes longer) is to change thought patterns. Negative thoughts create higher beta waves. Positive thoughts create calmer, lower beta waves. While being hooked up to both neurofeedback and biofeedback devices I could see the effect of upsetting thoughts (higher beta waves)along with other responses in my body (galvanic skin response changes, respiration changes, body temperature changes) compared to positive thoughts which produced lower beta waves and resultingly more balanced responses in my body as measured via galvanic skin response, respiration, body temperature, etc. All of this is objective data.
And yes, sometimes it is a good thing to be angry and to express it. It is when this manner of expression is the predominant one, that blow ups and confrontations are commonplace , that your brainwave patterns become stuck in the higher beta wave levels and thus negatively impacts your autonomic nervous system which in turn sets the stage for illness.
Whatever you believe however will determine how you will perceive information. It is your filter system. If you believe that MCS is "X", and I say it is "Y", then regardless of what I say you will see this as incorrect. This is not meant as an invalidation of you or of what you have gone through with this illness.
Bruce Lipton, who used to teach medical students, has an excellent book out about beliefs called Biology of Beliefs. Perhaps you might be willing to read it to get another point of view about health and healing in general.
- Re: Getting well #28627
17 y
4,353
This is a reply to # 1,031,124Hi muchbetter!
I am seeing conflicting information and wanted to kind of clarify what I am understanding from your statements and what I have read about neurofeedback. At first you said that because you were desperate and felt isolated, due to what you said was MCS, that you went to a psychologist who administered neurofeedback, yet in a later post you said that neurofeedback is not a psychological therapy. From what I read about it, it seems to be used as a phychological therapy based on the theory of the Pavlov's dog experiment where the dog was rewarded for acceptable behavior - whatever behavior was acceptable to the dog or behavior that was acceptable to the scientist performing the experiment. In other words, neurofeedback rewards the person for acceptable behavior in the form of acceptable brainwave patterns - whatever the therapist deems as acceptable or whatever the person receiving the therapy deems is acceptable behavior.
I am concerned that, from what your posts state, and from what I read about neurofeedback, MCS may be considered by some to be "unacceptable behavior" and thereby considered a behavioral disorder - which it is not. From what I read, neurofeedback is like a video game where the person is rewarded when their brainwaves reach an acceptable level - whether the acceptable level is defined by the therapist or by the person receiving the therapy. Some articles expressed that the person is "guided" into a deep meditative altered mental state to achieve the goal. Some articles stated that people were made worse due to neurofeedback and they were permanently neurologically damaged.
Illness and chemical injuries do not occur because of your mental status. Your mental status does not "set you up" for injuries from toxic chemicals and your mental status does not "set you up" for illness. Malaria does not care what your mental status or what your brainwave pattern is. Lyme disease does not care what your mental status is nor what your brainwave pattern is. Chemical fumes do physical damage to the body no matter what your mental status is, no matter what your brainwave pattern is. Radioactive products do damage no matter what your mental status is, no matter what your brainwave pattern is.
Whether these items do damage over time, or whether the damage happens immediately upon exposure depends on the amount, the physical form it is in, and exactly what the product doing the damage is.
Birds cannot be trained not to die from non-stick product coated cookware fumes while someone in the house is cooking in a non-stick product coated pan.
Frogs cannot be trained to not get malformations when they are exposed to chemicals such as those in pesticides and runoff from chemical plants, etc.
Humans cannot be trained to not have their airways burned and scarred from toxic chemical fumes like ammonia, chlorine, etc.
So, logically, just changing or controlling brainwave patterns cannot keep a human being or an animal from having adverse reactions upon exposure to chemicals, biological, radioactive, or nuclear products which are known to cause illness, injury, and death - not even at low levels (which happens to people who have MCS because their bodies are incapable of metabolizing properly - whether due to genetics, damage, overload, etc.) and not even in those who are considered to be physically, spiritually, and mentally balanced. It is physics.
A lot of the products were created to do just that - cause damage, cause death, and cause injury. This is not just a "belief" and has nothing to do with a belief system. Whether or not you "believe" chemicals and NBRs cause injury, death, illness - they still do so - that is a known fact.
The truth is not in just the believing it is in the knowing.- Re: Getting well Muchbetter
17 y
4,219
This is a reply to # 1,031,984The thing about neurofeedback is that it is a way to balance brain wave patterns. "MCS" per se is not identified or labeled in any way. The person doing the treatment is merely looking at the brainwave pattern presented. Anything seen out of balance is identified as out of balance (too high, too low, etc) and treated by bringing the brainwaves slowly back to a more balanced state.
There are some medical doctors doing neurofeedback. It is not a "psychological treatment" per se. One opthamologist uses it for people who are nearsighted to correct their vision.
The issue here is that a more balanced brain will allow the body to be working at its optimal level. Thus the immune system will be strong and the likelihood of getting other illnesses is lessened. Or if the person does contract something their immune system is strong and they are able to recover much faster and more easily than someone with a weakened immune system.
Accidents certainly can happen to damage the body regardless of your mental status. The issue becomes whether or not the initial damage moves into a more general problem associated with more and more exposures (as in mcs) or if it just ends with that one incident.
- Re: Getting well Muchbetter
17 y
4,219
- Re: Getting well #28627
17 y
4,353
- Re: Getting well Muchbetter
17 y
4,244
- Re: Getting well #28627
17 y
4,368
- Re: Getting well Muchbetter
17 y
4,292
- Re: Getting well bioticsadp
17 y
4,312
MoreThis is a reply to # 1,023,226Muchetter...I would ignore this person he or she sounds a bit nutty. Good to hear a postive story once in a while. I have come across others who have beat MCS and are very normal today. They dont even bother telling people their stories because people are so sceptical in the 1st place. Any advice from you would help the community greatly. Thanks
- Re: Getting well #28627
17 y
4,215
This is a reply to # 1,030,962Thanks for this Post by bioticsadp with link to Dr. Mercola's information:
How to Avoid the Ten Most Common toxins...past r/n
//www.curezone.org/forums/fm.asp?i=428389
//www.curezone.org/forums/fm.asp?i=411604#i
- Re: Getting well Muchbetter
17 y
4,220
This is a reply to # 1,030,962Thank you . I really do appreciate your response. You might want to read Symphony of the Brain... (or maybe it's Symphony in the Brain?) which talks about neurofeedback. Also Bruce Lipton's book Biology of Beliefs is very interesting as he talks about how your beliefs literally change your biology at a cellular level. Depok Chopra also is good to read as he talks about the mind body connection.
I did not mean to suggest that MCS is a psychological disorder. The mind has great impact on the body and thus the way a person thinks, believes, and feels will impact his or her physiology creating wellness or illness. To address just the physical level alone for any illness is being shortsighted.
People with MCS are focused on avoiding toxic chemicals, toxic foods, etc. There are also toxic people and toxic thinking that also should be avoided. Avoid negative people, people who catastrophize, people who fill you with fear, anger, or other forms of upset. Sometimes it means not listening to the news or reading the newspaper. Sometimes it means letting the answering machine pick up and not talking to someone who drains you. Focus on positive events and activities, positive thoughts, healing stories. Fill your mind with positives.
If you have any further questions about this protocol or others that I have listed please let me know.
Thank you again for your response.
- Re: Getting well #28627
17 y
4,215
- Re: Getting well fantgolf
16 y
3,949
This is a reply to # 1,023,226Thank you for your post. I discovered on my own the "breathing" problems with myself and have experimented with it and have had some success. I've had full blown MCS for about 8 months since a major paint exposure and am determined to get well. I believe that there is an anxiety component to all of this and have felt those affects also. Again, I appreciate your post and plan on investigating your approach. Please respond to this reply. I would like to discuss further. Thanks
- Re: Getting well Cayman799
8 y
1,822
This is a reply to # 1,023,226MUCHBETTER, I recently sent you a private message pertaining to your post about recovering from MCS by doing Neurofeedback. Did you receive it? I am doing neurofeedback for ocd/anxiety/depression, but it's in a room where there is new carpet. I have gotten sensitized to other things (I think, as other chemicals around me smell a lot stronger suddenly) even though I wear a mask during neurofeedback. My neurofeedback therapist says because my beta waves are very high, that this therapy will help eliminate MCS. But I'm struggling to get through sessions because of the chemicals around me. Makes me unable to fully relax, too. My question is, will neurofeedback enable me to overcome MCS even when I'm doing the sessions in chemicals that bother me? I'm so confused. Hoping for a reply from you, even though your post is so many years old.
- Re: Getting well #28627
17 y
4,329
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