Blog: Birthday Bash
by #195831

Plagued by Parasites, Truth or Delusional? Part I

Part One (Revised): Plagued by Parasites: Truth or Delusional? My Story and Its Impact for My Family

Date:   5/6/2015 8:00:49 PM   ( 7 y ) ... viewed 782 times

FYI: I am editing out information that is too personal.

I am a graduate of Eckerd College. I had a home and made a family with my college sweetheart, E (married 10 years); we became proud parents to V (7 yrs) and F (3 yrs). In 2007, I had occasional diarrhea during my first pregnancy. We ate out often; I didn't think much about it. After giving birth, diarrhea increased. I consulted two doctors. The first diagnosed me with IBS. The second diagnosed me with celiac disease. Neither indicated that it would be a problem if I got pregnant again; we had our second child in 2011. During that pregnancy, diarrhea increased upwards to 8x/daily. My OB/GYN put me on 42 weeks of broad spectrum antibiotics for refractory UTIs in pregnancy. After giving birth to my precious little guy, F, diarrhea continued (an unwelcome companion). My health declined, severely after taking antiparasitic herbs (Humaworm). I moved in with my mother January 2015 for extra support. Now, I usually sleep 12-14 hours a day, wake up unrefreshed. I have little appetite. When I eat, I experience nausea, gastric pain, and diarrhea. My average daily intake amounts to a bowl of cereal, piece of pizza, or a couple of cups of pistachios.

It is my dream to return to my family. At this point, none of that seems possible. I appreciate your listening to "my story". I believe I was pigeonholed with a diagnosis of Delusional Parasitosis without proper attention to the details of my medical symptoms. I am also extremely concerned about the health of my children, that they may have contracted a difficult to diagnose parasitic infection that needs to be treated.

Prior to the debilitating diarrhea, Eric and I essentially lived outdoors. We tent camped for a month in the California deserts. We lived in Asheville, NC, and hiked in the woods regularly. When we moved back to FL, we canoe camped in 10,000 islands in the Everglades. We canoed the Hillsborough River, kayaked in Tampa Bay and The Gulf of Mexico, paddle boarded, and hiked nature preserves. After the birth of my second child, my life as a happy wife and mother changed drastically. I was thrilled to have my baby boy. However, rampant attacks of diarrhea prevented me from driving. I needed to be near a toilet at all times. I could not take the kids to school. I could not go to the mall or other outings with friends. I could not exercise, nor go to the gym, nor swim, nor kayak, nor stroll the beach with my best friend, E. I never once thought I had parasites, not when my diarrhea first began, not as it increased.

I was desperate for help. I sought the counsel of innumerable doctors without success. In hindsight, I wish someone had counseled me about parasitic infections and how to treat them, how to prevent them from leaving the gut where they can be contained and treated.

Various techniques assess whether parasites are present in the human body, though none are absolutely reliable and tests can be cost prohibitive to the average consumer. In December 2013, Dr. Holden, a functional integrative physician recommended to me by my brother, tested and found me positive for blastocystis hominis (protozoan). Dr. Holden left his private practice to work full time training other physicians about integrative medicine. In August 2012, I began to use a tertiary hospital, University of FL Health, three hours from my home for treatment. At UF Health, Dr. Glover, a gastroenterologist, claimed parasites do not exist and refused to treat me for them. Instead, she shut down my immune system with Remicade. She put me on steroids without a diagnosis of Inflammatory Bowel Disease (making my body more susceptible to parasitic infection if parasites were present). I trusted her. When Remicade did not help, Dr. Glover had a hole put into my stomach for a feeding tube; that did not work either. In July 2014, I flew to NJ to see Dr. Chung, a functional integrative physician recommended by a friend. He diagnosed me with tricuria (whipworm). Distance made it impossible to continue treatment with him. In September 2014, Dr. Minkoff, functional medicine physician in Clearwater, FL, diagnosed me through Diagnostechs Laboratory with toxoplasmosis, trichinella, and salmonella. Too sick to take care of my kids, I moved to SC (not where I want to be permanently; I miss my children & spouse); my husband and in laws took over child care duties. Knowing how my own body feels and understanding parasites, I can only conclude that treatment for parasitic infection has been a vital missing link, and ineffective herbs and steroids created this systemic grade parasite infestation. The next section of "my story" will include reasons why some doctors do not take parasitic infections seriously in the US, suggestions for how to assess if you have parasites as well as implications for my life. I want to put this chapter of my life behind me. It has been a nightmare.

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Comments (20 of 29):
Re: Tired of Being… #1686… 7 y
Re: Numerous Hospi… vch 7 y
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Re: I Am Only 36 a… vch 7 y
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You seem to stick … vch 7 y
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Re: Tired of Being… #5043 7 y
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