Blog: Birthday Bash
by #195831

Only a Fool.....

Angry, mistrusting spouse, ill children, strongyloidiasis

Date:   5/5/2015 1:18:54 AM   ( 7 y ) ... viewed 788 times

Only a fool would infect her children with an awful parasitic disease (strongyloidiasis and pork tapeworm), trichinella, tricuria (sp?), toxoplasmosis, to name a few that have been diagnosed in me. I never intended to infect them, never. I don't deserve a Mother's Day, and I won't get one with my kids because my husband is frankly being mean. I didn't mean to infect him either, but he didn't believe I had anything infectious. He should take a look at that list of what I have, thus far, been diagnosed as having. The strongyloidiasis is next to impossible to diagnose that is why it is in parantheses. I often wonder if the insensitive test UF gave me for it did not diagnose it because it cross reacted with another parasite that I do have, or because I got it through a fecal transplant- hence my body did not build up antibodies to it. IDK but I do believe I have it. What else would get worse with steroids, manifest outside the colon, and infect our innocent children? I had the classic strongyloides smoldering diarrhea and urticaria rash on my buttocks, yet he mistrusts. That hurts and really baffles me.

I am pissed at myself for getting sick with worms. I am pissed that a doctor had me on every variety of immunosuppression with worms. I'm pissed that I have a mistrusting spouse. I'm pissed that doctors (pediatrician) suck so bad at diagnosing and treating my kids- it's their only hope. I'm pissed that my husband might be infected but hopeful that his immune system is strong enough to fight it. This is hell. Being away from my kids is hell. Not being able to help them is hell. This stupid strongyloidiasis and disseminated worms is hell. I couldn't have created this nightmare in my mind in a century.

It appears my silly shrink, silly because at first he thought this was delusional. My silly shrink believes me now, I guess, and has prescribed me an ivermectin/albendazole protocol. He needs to speak up to my children's pediatrician, and get the ball rolling on their treatment. He gave me a ridiculous paper from a self-proclaimed parasitologist. She is really a professor of forestry and agriculture. I think calling herself a parasitologist is a far stretch of the imagination. I wouldn't wish this disease on a soul, but for one day it would be nice for her, the silly shrink, mistrusting husband, in-laws, and mother, brother to first handedly experience strongyloidiasis and dissemination. They would scream in horror, I am sure. My husband is really pulling the wool over his eyes, living in a fantasy world. It's not cool at all, and he claims to be putting the kids first. Sadly, by ignoring me, he is putting them last. I can hardly bear to see my children's pictures. I love them so much and their faces say 1,000 words, with grimacing and pain.

In an effort to help my children, I have written a research paper, explaining what doctors do not realize with parasitic infections. They are Neglected Parasitic Infections for a reason. It's high time they not be neglected.

Sorry for my rant and pissy attitude. I am tired of fighting this insidious disease. I am devastated on my children's behalf. I am supposed to get my kidneys and liver tested this week. It should be interesting to see how they are functioning. My last blood work revealed extremely low WBC count (my immune system is so messed up) and low RBC count as well. I have anemia. My WBC count was 4.5, talk about a non functioning immune system. I think my BUN, creatine, bilirubin were also abnormal. My EOS are nonexistent, that is not good with disseminated parasites.

If you are here because you have suffered a similar fate, I am SO SO SO SORRY.


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Comments (20 of 29):
Re: Tired of Being… #1686… 7 y
Re: Numerous Hospi… vch 7 y
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