Blog: Birthday Bash
by #195831

Seeking help

Entering the medical system

Date:   4/18/2015 12:23:09 AM   ( 8 y ) ... viewed 686 times

Well folks, I wrote this portion of my blog last night but lost it somehow.

After I gave birth to my darling son, I was able to pursue medical treatments that were too invasive during pregnancy. I had endoscopies, colonoscopies, traveled to Charleston from FL for help, paid Dr. Dahlman for nutritional guidance. None of it helped.

The Feb.2012 colonoscopy results were microscopic colitis (a fancy name for diarrhea of unknown origin). The doctor gave me Asacol. The D was so bad that the pill looked the same coming out as it did going in. I was in a miserable state, eating only lobster or crab and avocados. It was terribly sad. I couldn't enjoy eating or any food whatsoever anymore.

I remember the day of my son's baptism. I cried so hard before and after it. I couldn't stop having D but I had to make myself up and put a smile on my face. Smiling with so much hidden pain. This was a day to celebrate and praise God, and I had to worry about being dehydrated and running to the restroom. I cry because my sweet boy didn't ask to be born into any of this pain. He's hurting now (age 3) and my husband doesn't even know nor acknowledge it.
I cannot stop crying, this is not fair on my babies. I'll explain soon.

I had to wait about 6 months but my local GI in St. Pete, FL, advised that I start travelling to UF Health IBD specialties or Cleveland Clinic. I wonder now if I had gone to CC if I would have properly diagnosed and treated versus UF.

I wound up at UF, sitting amongst many in the state who had been diagnosed with Crohn's or UC. My Dr., Dr. G, was a woman. I was initially hoping for a male MD, I know that's so sexist but I figured with my bro and dad as dentists, that a male might be best. My husband laughed at me for this thought.

I remember sitting on the exam table, with our little boy along with us, and asking the Dr if she would have to cut holes into my stomach for feeding tubes to stop this insane diarrhea. She said, "no way, you're not near needing that". I thought phew! She's going to work a miracle. She immediately thought I had Crohn's disease and possibly a recto-vaginal fistula. I returned shortly after this consult for an endoscopy which showed a very atrophied small intestine, and an MRI that did not reveal Crohn's nor a fistula. She went ahead and started me on oral steroids, budesonide aka Entocort. I tell you again, I trusted her with my life, so I took the steroids. I was ready for relief but all the doctors in my family, and ND Carla Hutt, warned that steroids are the big guns and not to be taken indefinitely. I did not want to take them but I needed relief.
The Entocort did help a little. It at least slowed things down somewhat. I was on it for three months. Once I got off it, all I could eat was a few veggies and meat, in order to not explode and maintain a little remission.

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