Dear My Story, You probably have schistosomiasis. I also had "chronic cystitis" for over ten years. They had me on antibiotics constantly. I had that bizarre and painful "urethra stretching". THis is even tho these idiots KNEW that I had recently returned from extensive international travel [yes, third world] Save time and money: buy Praziquantel [biltricide] on the net. Take as directed for schistosomes. What do you have to lose?
Several years ago, I found a forum where women who had exactly the same thing were discussing solutions. Most had schistosomes. Naturally, I can't find it now. But you are not alone.