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Re: Cervical inflammation by kathryn101 20 y
Angielynn...Has Lichen Sclerosis been mentioned? If not... what kind of inflammation are you talking about? Lichen Sclerosis is on the order of a Yeast infection...but horribly, HORRIBLY worse! You really need to get the biopsy.. you barely feel it...it’s not as bad as it sounds. That would confirm or rule out Lichen Sclerosis, also. It’s very unlikely it’s cancer. But you DO need to know for sure what it is. Do you drink a lot of orange juice? Just something like that could be causing you a problem. 1,708 hits
Forum: Ask CureZone
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Re: Itching by kathryn101 17 y
Hi jacobe...Let me tell you...if you had lichen sclerosis...you’d know it. No doubt about it. I’m 60 years old...we have 3 children and the last one was almost born in the waiting room of the hospital 33 years ago because the nurse who checked me when we came into the hospital...thought I was having false labor pains. I knew I wasn’t...so we just went to the waiting room...when we were about to deliver our own baby...we finally got some attention. The point I’m getting at is this...after 60 years...I’ve been through a lot...one of which was almost delivering our own baby without a ... 6,039 hits
Forum: Lichen Sclerosis Constipation
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Re: Fledging & others..about Lichen Sclerosis.. by kathryn101 17 y
refreshed....Lichen Sclerosis is nothing like Endometrosis...I’ll take a good case of Endometrosis any day instead of Lichen Sclerosis. And I had Endometrosis when they did the hysterectomy and didn’t even know it. I also had fibroid tumors...didn’t know that either. Lichen Sclerosis is like a yeast infection to the thousandth degree. Raw oozie skin in that whole area..inside and out...you can’t even shower without excruciating pain beyond your wildest expectations. The ’pain’ is comparable to a really bad burn...it’s a ’burning pain’ with lots of pins and needles...not an ache, ... 4,951 hits
Forum: Lichen Sclerosis
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REVERSE Lichen Lichen Sclerosis!! 2/2012 by healthygirl110 12 y
I’ve been able to reverse Lichen Sclerosis by going on a Low Oxalates diet. What are oxalates? Oxalates occurs in low to high amounts in a wide range of plant foods including fruits, vegetables, legumes, grains, spices, herbs, and almost all nuts and seeds. Meat, dairy, and eggs contain negligible amounts of oxalate. All of these foods are either low, medium or high in oxalates. How does eating a low oxalates diet solve Lichen Sclerosis? For me I have a leaky gut. Why or how did I get a leaky gut? I have celiac disease.. (FYI..Oxalates from food travel out of your stomach and create a p ... 5,291 hits
Forum: Lichen Sclerosis
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#35033...Sounds like Lichen Sclerosis! by kathryn101 20 y
#35033...This really sounds like Lichen Sclerosis...and can only be confirmed by a biopsy. Now, if you’ve never had a biopsy...it’s not as bad as it sounds. It’s not much more uncomfortable than a pap test. Honest to goodness. Lichen Sclerosis starts out feeling like you have Candida. But it can get 100 times WORSE than Candida. I know that women that have had Candida or Vulvitis will read this and think that isn’t possible...but get back to me after you’ve had LICHEN SCLEROSIS. Lichen Sclerosis starts out itchy, red, sometimes ozzy. The skin thickens...turns white... ... 16,259 hits
Forum: Gynecological
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Lichen Sclerosis & Emu Oil Miracle by kathryn101 16 y View Entire Thread 2
(This post was originally posted on the Lichen Sclerosis forum about 10 days ago... I thought I’d post it here hoping more women suffering from this debilitating problem...would see it. Other posts under this same link are on the Lichen Sclerosis forum. So if you are fighting Lichen Sclerosis, I hope you’ll check out my update post, etc. on the Lichen Sclerosis forum) I just had to post about the miracle oil I have just recently found for Lichen Sclerosis...and I’ll tell you right up front...it’s Emu Oil. I was just reading natural healing testimonials on another website ab ... 15,924 hits
Forum: Gynecological
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Lichen Sclerosis Miracle Oil...easily found anywhere. by kathryn101 16 y View Entire Thread 9
I just had to post about the miracle oil I have just recently found for Lichen Sclerosis...and I’ll tell you right up front...it’s Emu Oil. I was just reading natural healing testimonials on another website about 3 weeks ago...and one just happened to be about Lichen Sclerosis. I was really surprised because you just don’t hear much about Lichen Sclerosis, period. But I was diagnosed with it in the mid 90’s after a hysterectomy and was told at Vanderbilt in Nashville...that it is usually the result of a hormonal imbalance after menopause...but ’can’ occur at any time from teens o ... 60,209 hits
Forum: Lichen Sclerosis
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Re: Fledging & others..about Lichen Sclerosis.. by kathryn101 17 y
Hi fledging...Your post is so old, you’ll probably not even find this reply...but just in case, I’ll tell you what little ”I” know. :-) I had a total hysterectomy in June of 1996...in the fall of 1997 I came down with what my gynecologist said was Lichen Sclerosis. I thought I had a bad yeast infection...because that’s the way it started out...symptoms just like a bad yeast infection. I was told that Lichen Sclerosis is a result of a hormonal imbalance after a hysterectomy. But that it was just impossible to turn around after having the surgery. I found all kinds of ’excuses’ ... 5,786 hits
Forum: Lichen Sclerosis
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mailanee... by kathryn101 17 y
Hi mailanee...The steroid cream should turn you right around...and while you may hear all kinds of horror stories about steroid creams...ignore them! The pain and suffering from Lichen Sclerosis is much, much worse than any little side affect from a steroid cream. I’ve been on the cream once a week for 11 years and will be on it for the rest of my life...and I’m 60. Once in remission...your intimate life can resume and be just like always. And I don’t know of a good website. I learned what I know from experience that I got the hard way. ”I” was told at Vanderbilt in Nashvill ... 6,594 hits
Forum: Lichen Sclerosis
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Re: #35033...Sounds like Lichen Sclerosis! by kathryn101 20 y
It still sounds like Lichen Sclerosis....mine progressed over about an 8 month period. It would come and go...and each time... came back worse. The biopsy will comfirm it if that’s what it is. Then if they can’t help you...let me know. I’ll check my personal email in case I forget to check back...so you can contact me if you want. Put Lichen Sclerosis in the subject line. I’m not sure on you being too young. I’ve studied natural healing for more than 20 years...and had never heard of this until I had it. But it’s best to check it out. It CAN be turned around...don’t let t ... 16,467 hits
Forum: Gynecological
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#41809.... by kathryn101 19 y
Well, 41809....it’s a good thing this wasn’t an emergency,isn’t it? I rarely read the guest forum. I don’t think this is anything serious...but it could be the start of lichen sclerosis...and believe me...you would want to get that under control before it gets away from you. It’s related to imbalance in hormones...(lichen sclerosis is). But very hard to get under control once it gets a grip. So if I were you, I’d make an appointment with a gynecologist and get checked out right away. You say you ”were” checked out...but was it by a gynecologist? Did you have the problem when you h ... 2,548 hits
Forum: STD Gynecological Herpes
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Lichen sclerosis by roxygirl56 12 y
I have had lichen sclerosis for about 22 years. The past year, I have had frequent flare ups despite using meds. I have also had urinary leakage due to a prolapse. I suspect that the urine on a pad is making the lichen sclerosis worse. I saw a urogynocologist who is reccomending surgery to support bladder and uterus. I am going back and forth about the surgery. Has anyone had the sling surgery using pig tissue? If so, what was the outcome? Has it helped your LS? 1,651 hits
Forum: Lichen Sclerosis
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Re: Lichen's post pregnancy by lost abroad 15 y
I’m sorry but this is not an answer to your question posed a while ago, but I wonder if you could let me know did you give birth naturally with lichen sclerosis? I am pregnant with my second child and am trying to figure out if I should go for an elective c-section as I’m afraid of the damage (had an emergency c-section the first time). Do you think the damage you have is caused by the pregnancy or the birth? I’m curious to know your thoughts. Oh, and if this is any help I’ve been using a cream prescribed to me by my homeopathic doctor which is called Majorana Vaginalgel which is a topi ... 4,302 hits
Forum: Lichen Sclerosis Pregnancy/Birth
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Lichen Sclerosis and Lupus? by wishforafallinstar 15 y
When I was 17 I was diagnosed with Lichen Sclerosis. Though very uncommen in my age group i’ve learned to deal with it’s issues. Recently, I’ve been dealing with alot of other symptoms related to possible lupus, and was wondering if anyone has thought of there possibly being a link between Lichen Sclerosis, and Lupus. Both are believed to be an autoimmune system disease. I’ve had many tests done (blood,ct scans,x-rays...etc) to try to find out what is wrong, yet they do say that Lupus can take years to properly diagnose.Any one have any ideas? I would love some feedback. 5,071 hits
Forum: Lichen Sclerosis Lupus
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Ok hanna.... by kathryn101 19 y
Ok hanna....I’m 58...and raised in the Ward and June Clever days...but I’ll put a little info here. :-) I’ve never had Vulvitis...but I have had Lichen Sclerosis. They are very similar but Lichen Sclerosis is Vulvitis times 100. (The doctor at Vanderbilt Hospital told me this). He said women run to him all the time with a ’yeast infection’ they can’t get rid of...but a woman who has had Lichen Sclerosis would laugh their head off at a woman complaining of a bad yeast infection. Vulvitis is inflammation of the Vulva. It can be caused by infections, bacterial, viral, fungal.. ... 3,271 hits
Forum: Ask CureZone
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It's not lichen sclerosis, so what is it? by susanH 19 y
Have had the horrible burning and itching and dry plaque like lesions around the outside of my vulvar area for 4 years or so. Seen nurse practitioners, OB/GYN practitioner, 3 GYN of which 2 were female and totally ignored by pleas regarding my symptoms, and the male GYN told me I had herpes, but did not address the burning/itching, nor did he really address the herpes diagnosis; although his NP that I saw first was certain it was lichens and gave me a prescription for Clobetasol Proprionate Cream which did nothing for me. Saw another NP a few years later who gave me 2 different medicati ... 1,441 hits
Forum: Acne
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Re: Lichen Sclerosus KEEP HOPE by Ulga 6 y
I was diagnosed also. Hadn’t had symptoms for a while until this week, and bad. Didn’t know why until I realized I had been on antibiotics last week. Now I know - I think what they diagnose as lichen sclerosis might be nothing more than a flaming Candida infection! Going to take probiotics, eliminate all sugar and make st carbs, and see what happens, will let you all know. 976 hits
Forum: Lichen Sclerosis
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Wrinkle relief & other small miracles... by kathryn101 16 y
Girls...The reason you suffer from large pores is because you’ve evidently never been caught with ’egg on your face’. :-) Try this one time...and see the unbelievable difference. ”Wash” your face by putting a little salt or baking soda in with a little mayonnaise...the mayo has to be real mayo...not fat free. Gently rub that all over your face. Splash with warm water to be sure you get it all off. Next...break open a raw egg and spread the egg white all over your face...spread a lot on there to get a good cover...let that dry for about 20 minutes....try not to laugh or even sm ... 7,127 hits
Forum: Beauty Tips
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interesting by julie819 16 y View Entire Thread 4
do we think this might be psoriasis? i know a lot of people have mentioned it before. look what i found on a website: Psoriasis Just because your lips are flaking and peeling does not guarantee you have chapped lips. Such skin concerns as psoriasis (a genetic condition in which the skin is made too quickly and the affected areas become thickened and scaly) may affect your lips. So too can other medical conditions as lichen planus (LP), lichen sclerosis et atrophicus (LS et A). Treatment for these conditions is similar to that on other areas of the body. Lips that are unresponsive t ... 2,576 hits
Forum: Peeling Lips
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Am I using the right cream? by morrie 16 y
Hiya. new here. I had diagnisoed Lichen Sclerosis about 20 years ago. Was given Betnovate and it cleared up - with the odd flash here and there. After giving birth last year my tears have reawakend the Lichen. I went to a well woman clinic and the gynae told me I shoudl get my doc to refer me to a special vulva clinic, and that Betnovate had now been disgraced, and could possibly make me worse. I then went to doc who wouldn’t refer me (she has an aversion to making referrals) and said the betnovate was fine and i shoudl start using it again. Is it? The strength is 0.01 so really wea ... 2,828 hits
Forum: Lichen Sclerosis
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Re: Lichen planus, and I'm on a raw food diet. HELP!!! by #134779 14 y
I am interested to find out how your case of LP resolved...or did it? Are you still raw. FYI lichen planus is auto immune, not any kind of cleansing or toxin release. It is a over growth in the skin layers...i have it on my fingernails. And its wicked cousin lichen sclerosis (groin -ugh) I too have been ’raw’ for a number of months and am very frustrated by this hideous disorder. My primary care provider ordered blood work which came back with low white blood count...i am reassured by what i have seen online; LWB typically paired with raw food diet - not to worry... 6,545 hits
Forum: Acne
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Re: lichen sclerosis sucks! by staystrong1 13 y
I’m so sorry you are going through this- I am brand new to this forum and thought maybe my experiences could help someone. Your post caught my eye. Long story short- Diagnosed with vulvar cancer in February 2010- also lichen sclerosis- Had severe itching for 25 years, creams, etc. and nothing worked. Prescribed by doctors too! Finally when I had lesions growing on the labia, I went to gyn again. Biopsy revealed nothing but non-viral, benign papillomas. She sent me to a gyn oncologist to do the excission of the area and get a second opinion. excission was done and pathology revealed v ... 6,347 hits
Forum: Lichen Sclerosis
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Re: mailanee... by kathryn101 17 y
Well mailanee...once you get your Lichen Sclerosis under control, you just go on with your life as you did before. Now I’ll be the first to admit that when mine was active, I was almost out of my mind. But within 2 weeks of coming from Vanderbilt (and we’re just 10 minutes from Paducah, Ky...in Southern Illinois) I was back in control of my life and happenings. I’m not one to brood over spilt milk...I had experienced extreme suffering when my Lichen Sclerosis was active...but once it was under control I had things to do, places to go and people to see. :-) So I went right back on ... 5,848 hits
Forum: Lichen Sclerosis
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Jennifer....!!!!! by kathryn101 19 y
Jennifer....I’m really busy right now...but I will get back to you as soon as I can. I know EXACTLY what you’re talking about...feeling like acid has been poured on you. I had Lichen Sclerosis for about 6 months in 1997...very similar only much worse....3 doctors told me there was nothing that could be done. But they were so wrong..... I’ll get back on here as soon as I can...hopefully within the hour. I KNOW EXACTLY how miserable you are. I really think we can fix you right up. Tell you what... this is kind of a ’delicate subject’....I’ll email you within the hour. kathryn ... 3,334 hits 2 of 2 (100%)
Forum: Ask CureZone
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Re: Lichen sclerosis by catdog65 18 y
I was diagnosed with Lichens Sclerosis about 6 years ago, but believe I have had it since childhood. I suffered terribly from the symptoms for 4 years before I started treatment as per a yahoogroup called lichenSclerosis@yahoogroups.com. This support group is wonderful and the moderator has researched extensively ”treatments” for this condition, since it cannot be cured at this time. I went from having lacerations up to two inches long on my genitals and loosing a lot of the female architecture down there to having no more lacerations or papercut like lesions and regaining some of wh ... 8,204 hits
Forum: Lichen Sclerosis
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Vaginal Odor by celticnagel 19 y View Entire Thread 7
I am in the process of transitioning to a raw vegan diet - two weeks now. All of a sudden during the last week I have this awful vaginal odor with no discharge. How can I get rid of it and is it diet related? Just curious. If I go do my physician I am sure he will prescribe antibiotics and I don’t know if that is the correct course. There is no discomfort whatsoever. I do have lichen sclerosis but that has been under control for several years now. Thanks 28,076 hits
Forum: Gynecological Vaginal Odor and Discharge Bacterial Vaginosis Cure Candida Cure Forum
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Lichen Sclerosis anyone? by Littleoneinohio 19 y
My sister was recently diagnosed ( FINALLY!!! ) with Lichen Sclerosis, so I thought I would look around for some alternative advice and support. I know it is an autoimmune disorder, and that she is stuck with it for life (she is 60, and menopaus has been a nightmare for her ), but I was wondering if anyone has had any luck lessening the symptoms?? She just finished her first Master Cleanse ( easily ) and hopes to do it 4 times a year ). She didnt lose more than a couple of pounds either!! I think she may have a cyst on her Thyroid.H er endocrine doctor doosn t seem to be worried about ( ... 1,259 hits
Forum: Menopause
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Re: Mirena IUD Side Effects-Itch from hell! by chumchum602 17 y
I too had the same thing! I’ve had Mirena for the past 6 years and I never made the connection with the lichen sclerosis and the BV and yeast and everything else. Wow! I had a new one put in in January and it’s driving me crazy!! I noticed a change in myself as well... no sex drive and my temper is volatile as hell. The side effects are getting too out of control and I have an appt with my gynecologist on Weds to get this thing out!! The only good part of this whole thing was I never got pregnant on it. I already have two kids and that’s all I want pretty much so it worked well in that sense. 57,924 hits
Forum: Mirena IUD Birth Control IUD Malfunctions
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bjdesp..... by kathryn101 16 y
Hi bjdesp...I just found your post...I’m so glad things turned out well for you. I just posted an update...so be sure and read that. I tried 2 other Emu Oils while waiting for my Purple Emu Oil to come in the mail. (the one I was using was from 10 years ago...was a tiny sample bottle and was almost empty when I found it...so it ran out fast). After the experience I’ve just had with these 3 seperate oils...I will never stray from the Purple Emu Oil. There’s just something different about that one...and for me...Lichen Sclerosis is just too debilitating to play around with. I ... 19,041 hits
Forum: Lichen Sclerosis
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Lichen Sclerosis cure for me by buddysgirl 13 y View Entire Thread 2
I have had Lichen Sclerosis for almost 10 years. I have finally found what keeps it almost completely in remission. I take Culturelle (probiotic) everyday. I do not use soap. I use a tiny bit of 100% all natural shower gel and rinse well. Every day I coat the area with Aloe from the plant not bottle and Vitamin E capsule opened up. If I ever do get a split, I use Aquaphor for 3 days and it is clear. My skin is pink now and not white. I have no itching or pain. I also stick to almost completely all natural diet. I have for the feminine pads would cause a split so now I use cotton washable p ... 7,312 hits 1 of 1 (100%)
Forum: Lichen Sclerosis
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Possibly have lichen sclerolus by DaisyJ 10 y View Entire Thread 2
Hello, I went to Gyno the other day and she has asked me to have a sample taken as she found white patches on my labia etc. she said if it is lichen sclerosis then I would be our on topical steroid cream. Now I am reading this could be linked to leaky gut, candida, some kind of imbalance. Is there a diet, would taking oil of oregano help. Do I need to detox? Help it seems to me this should be fixable with fixing gut flora eat. Any advice? Thank you 2,037 hits
Forum: Ask Dr Eric
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prescribed Clobex by bart2011 12 y View Entire Thread 2
Last week my doctor prescribed Clobex lotion for what he suspects is lichen sclerosis. (I am waiting to see a Gyno to confirm this.) I’m trying to find out if anyone else has been prescribed this lotion? I’m to apply the lotion twice a day for two weeks than once a day for two weeks. I always make sure I’m clean and dry when I do so. The stinging is unbelievable. Is this normal? Have I been given the wrong drug? Some of the side effects of this drug is thinning the skin and it can be absorbed into the bloodstream causing further problems. I have read several of the messages but nowheres ... 3,655 hits
Forum: Lichen Sclerosis
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Re: lichen sclerosis sucks! by #145964 13 y
I was recently diagnosed with early stage Lichen Sclerosis and was prescribed a steroid ointment. The ointment does give relief, but it only lasts a couple days, then I have to use it again. About 10 days ago I ran out of my usual bath soap (Dove) and used a bar of homemade soap. I don’t know what was in it; it was one of those brownish tan rough square bars, perhaps with Lye in it. It gave me great relief, and I have used it every day since and have not yet had to use the steroid ointment again. I have had zero burning or itching. 2,495 hits
Forum: Lichen Sclerosis
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Lichen Sclerosis - where does it end? by Ashley123 9 y View Entire Thread 4
After reading all of your messages I feel obliged to let you know that lichen sclerosis can indeed turn to cancer. I know because I have had three laser treatments in that area where they burned the skin off right down to the last layer and still ended up with two major surgeries. I know this is not what you want to hear but it is what you need to hear. I have had both a vulvectomy (first surgery) and a radical vulvectomy because of cancer. Doctors try to avoid this disease because they don’t understand what they are dealing with and some really don’t seem to ... 2,997 hits
Forum: Lichen Sclerosis
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Update: Lichen Sclerosis/Emu Oil by kathryn101 16 y
Well...as I said above in my other post...the bottle of Purple Emu Oil that I found and started using after reading the testimonials...was about 10 years old and there was very little left in it. When I saw how well it worked...I immediately ordered a large bottle from the company. (This was a very tiny sample bottle someone had given me years ago). But after a few days, I ran out of the Purple Emu oil and I could tell within a couple of days that my Lichen Sclerosis was going to come back...without daily use of the Emu Oil. So I went to the Health Food Store and the only kind they ... 27,919 hits
Forum: Lichen Sclerosis
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What worked for me by #209272 8 y
What has worked for me to halt the symptoms of Lichen Sclerosus is pure Calendula Oil. I use organic from Herb Pharm, which you can easily get online or in some health food stores. It has alleviated all symptoms and halted the progress of this disease for about a year now - and I was miserable. I promised my daughter, a doctor, I would post online to help others. Good luck. 616 hits
Forum: Lichen Sclerosis
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Re: Emu Oil and Lichen Sclerosus by thewoman 8 y
i have to add my experience to the lichen sclerosis discussion. i too suddenly started experiencing intense itching and burning, but with no discharge or odor. i first thought it could be an allergic reaction to new underwear (chemicals), even tho they were white cotton, or scott toilet paper which i had switched to recently and read a bit about some people experiencing a reaction. changing both of these didn’t seem to help. i read about emu oil and immediately ordered some. since it was going to take a couple of days to get delivered, i did what i could out of desperation. i had som ... 2,801 hits
Forum: Lichen Sclerosis
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Re: Anal Itching by #156954 12 y
OMG, I have the exact same problem and it feels the same way. Absolutely horrible, and once you start scratching, you’ll tear yourself to pieces because of the relief. I’ve had this on and off for years. The first time it happened, I too thought it was pinworms. I did a daily compress of boric acid diluted in water. Everytime I went to the bathroom, after cleaning, I would apply this boric acid compress and after a few days, the itch went away. Not only that, but my skin returned to normal (I had been doing such damage, my skin looked and felt like elephant skin around the anus). ... 54,682 hits
Forum: Eczema/Excema
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Lichen sclerosis, I would like to share my story. by Emuforlife 14 y View Entire Thread 2
Hi, I am 30 year old woman. I was diagnosed with lichen sclerosis about 8 months ago. My symptoms began in my mid- twenties.As many of you know suffering with the terrible disease, there is not much help out there for us. I was determined to figure out how to treat my symptoms without using steroids or creams that in the long run would make everything worse. I searched the Internet pretty much day and night. I tried everything from tea tree oil to wheatgrass, aloe gels... Nothing seemed to be working. After weeks and weeks of feeling depressed,ashamed,worthless and less of a woman...Final ... 11,115 hits
Forum: Lichen Sclerosis
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Re: Itching by kselibrary 17 y
I’d absolutely get a biopsy. The longer you wait with LS, as I understand it, the worse the scarring can be...and once the damage is done, you either can’t, or have a harder time fixing it. I got morphea on my back, was reading on morphea and had a EUREKA moment, when the term lichen sclerosis came up with a list of symptoms. Mine were tearing (think episiotomy) during sexual intercourse and itching around vuvla and anal areas. Today is my first day of steroid creams, and in the 6 hours I have had them on, I have seen a color change from the white, the red part is still red, bu ... 5,212 hits
Forum: Lichen Sclerosis Constipation
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