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An update - three years on
An update on how your life can be changed by these bugs, and how I cope.
Date: 11/6/2014 2:12:16 AM ( 10 y ) ... viewed 2986 times I thought I would write an update on my progress, three years on from being cured of parasites.
First I want to apologise to all those people who have tried to contact me over the last 11 months, needing advice and assistance.
I am sorry, but I kind of wanted to move on for a while.
I also thought that this blog would alert me to messages through my personal email, but it didn't. I will reply to you, although I apologise in advance for the lateness of my replies.
I have met some great people via this blog who have been through the same personal hell I went through, and you my friends and fellow current and former sufferers, are the only ones who will ever really understand what it is like to be infected with these horrible parasites and go through the whole journey of trying to get better.
I want to tell you that there is hope. Recovery for me has meant that I have more energy, and can participate in life again. As for my gut - even though the parasites are gone, it will never be as it used to be.
The result for me from being infected for the year of 2011 with parasites was the development of fructose intolerance and dyspepsia.
Over the years I have tried diets and different medications and I am still on my journey to full (as possible) health.
One of my more unexpected issues is a kind of post-traumatic stress which occasionally rears its ugly head. Usually this will be where there is a period of weeks where I have unformed stools and/or diarrhoea and I start to panic that I have parasites again.
Over the last three years I have probably maybe 4 or 5 further 3-day parasitology tests, convinced I had parasites - only to find that I did not.
To give myself some credit: towards the end of last year I developed functional dyspepsia which is uncontrollable belching, diarrhoea, dry retching and heartburn - which I thought was parasites! Then another time I was developing appendicitis over a couple of months - and I thought that was parasites...so fair enough that I felt I needed to re-test.
The parasites have caused long term health issues, and messed up my enteric nervous system. So no wonder on occasion I feel nervous and panic and think I have parasites. Meditation helps - if only I could stick to it!
I don't think this irrational fear will ever leave me, but I hope it fades over time, and I can move on. I have very clear memories of the dark times, which I would rather forget.
Maybe it all happened for a reason. I felt so lost and alone that whole time - being told "Oh, you've just developed IBS, and get on with your life - there's nothing we can do." I trusted my gut (ha) and through persistence and the right testing, found I had intestinal parasites, and finally found a treatment which worked.
Maybe I had to suffer so I can reach out with understanding to people who are struggling as I did, and give them the information and answers which I pretty much had to find for myself in order to get the help I needed.
In a lot of ways I had to "educate" the health professionals, who can't stay on top of the research on everything in their specialties and fields of interest.
If I have one word of advice, it would be "persevere".
Best wishes, Dsquat.
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